“Real #healing doesn’t happen until you are home in your own bed & can get good quality #sleep ..You will #recover a lot faster when you are at home in a more relaxed environment than you ever will lying in a #hospital bed.”: buff.ly/TEzEop0
by sarahlynn358
#PostOp #spoonie #ChronicPain #disability
by sarahlynn358
#PostOp #spoonie #ChronicPain #disability
buff.ly
January 22, 2026 at 12:30 AM
“Real #healing doesn’t happen until you are home in your own bed & can get good quality #sleep ..You will #recover a lot faster when you are at home in a more relaxed environment than you ever will lying in a #hospital bed.”: buff.ly/TEzEop0
by sarahlynn358
#PostOp #spoonie #ChronicPain #disability
by sarahlynn358
#PostOp #spoonie #ChronicPain #disability
Ugh. Food poisoning. Threw up at PT while in the pool. Thankfully, the phys therapist was fast enough to get me a garbage can so I didn’t throw up *in* the pool.
I feel terrible, but managed to get home without throwing up in my car. I’m counting it as a win.
#spoonie #chronicpain #chronicillness
I feel terrible, but managed to get home without throwing up in my car. I’m counting it as a win.
#spoonie #chronicpain #chronicillness
January 21, 2026 at 10:54 PM
Ugh. Food poisoning. Threw up at PT while in the pool. Thankfully, the phys therapist was fast enough to get me a garbage can so I didn’t throw up *in* the pool.
I feel terrible, but managed to get home without throwing up in my car. I’m counting it as a win.
#spoonie #chronicpain #chronicillness
I feel terrible, but managed to get home without throwing up in my car. I’m counting it as a win.
#spoonie #chronicpain #chronicillness
"Don’t get me wrong. Coupley things are important, as they generate memories and build bonds. But as a person with #ChronicPain and fatigue, my energy bar is limited, and I need more downtime than others.": buff.ly/iiCuDM9
#ChronicFatigue #relationships #dating #disability
#ChronicFatigue #relationships #dating #disability
January 21, 2026 at 9:30 PM
"Don’t get me wrong. Coupley things are important, as they generate memories and build bonds. But as a person with #ChronicPain and fatigue, my energy bar is limited, and I need more downtime than others.": buff.ly/iiCuDM9
#ChronicFatigue #relationships #dating #disability
#ChronicFatigue #relationships #dating #disability
I had a huge confrontation with my internalized ableism when I got run over.
Things I've learned:
-It's ok to have limits.
-It's ok not to be able to do things.
-It's ok to be patient with yourself.
-Ableism happens in big and small ways.
#disability #ableism #chronicpain
Things I've learned:
-It's ok to have limits.
-It's ok not to be able to do things.
-It's ok to be patient with yourself.
-Ableism happens in big and small ways.
#disability #ableism #chronicpain
January 21, 2026 at 8:57 PM
I had a huge confrontation with my internalized ableism when I got run over.
Things I've learned:
-It's ok to have limits.
-It's ok not to be able to do things.
-It's ok to be patient with yourself.
-Ableism happens in big and small ways.
#disability #ableism #chronicpain
Things I've learned:
-It's ok to have limits.
-It's ok not to be able to do things.
-It's ok to be patient with yourself.
-Ableism happens in big and small ways.
#disability #ableism #chronicpain
How do you deal with extreme nerve pain on the daily without painkillers or marijuana?
#disability & #chronicpain community please provide your insight
#disability & #chronicpain community please provide your insight
January 21, 2026 at 8:55 PM
How do you deal with extreme nerve pain on the daily without painkillers or marijuana?
#disability & #chronicpain community please provide your insight
#disability & #chronicpain community please provide your insight
“I only managed…” → “I managed.” 💭
That’s reframing.
Start building this skill at our FREE meetings ➡️ bit.ly/3suRNrn
#WonderWednesday #ReFraming #ChronicPain #SelfManagement
That’s reframing.
Start building this skill at our FREE meetings ➡️ bit.ly/3suRNrn
#WonderWednesday #ReFraming #ChronicPain #SelfManagement
January 21, 2026 at 8:03 PM
“I only managed…” → “I managed.” 💭
That’s reframing.
Start building this skill at our FREE meetings ➡️ bit.ly/3suRNrn
#WonderWednesday #ReFraming #ChronicPain #SelfManagement
That’s reframing.
Start building this skill at our FREE meetings ➡️ bit.ly/3suRNrn
#WonderWednesday #ReFraming #ChronicPain #SelfManagement
It helps to find the right practitioner when you know how to look for the meaningful info on their website, for one thing.
#BlogPost #ChronicIllness #ChronicPain #EDS #MCAS #POTS #HolisticHealth #Acupuncture 💕 #Wellness
#BlogPost #ChronicIllness #ChronicPain #EDS #MCAS #POTS #HolisticHealth #Acupuncture 💕 #Wellness
Acupuncture & EDS: How to Find a Practitioner of Chinese Medicine When You’re a Zebra
~~~~~ My first blog post about finding an acupuncturist was in 2019, so it’s been a while. Besides, the original essay…
buff.ly
January 21, 2026 at 8:03 PM
It helps to find the right practitioner when you know how to look for the meaningful info on their website, for one thing.
#BlogPost #ChronicIllness #ChronicPain #EDS #MCAS #POTS #HolisticHealth #Acupuncture 💕 #Wellness
#BlogPost #ChronicIllness #ChronicPain #EDS #MCAS #POTS #HolisticHealth #Acupuncture 💕 #Wellness
Standing/crouching etc in the cold, not to mention the running to help (who knew adrenaline can overrule even #ChronicPain?!), has left me in a lot more pain than usual but oh well.
Now I'm at my pre-booked blood donation session!
#BusyDay
Now I'm at my pre-booked blood donation session!
#BusyDay
January 21, 2026 at 6:47 PM
Standing/crouching etc in the cold, not to mention the running to help (who knew adrenaline can overrule even #ChronicPain?!), has left me in a lot more pain than usual but oh well.
Now I'm at my pre-booked blood donation session!
#BusyDay
Now I'm at my pre-booked blood donation session!
#BusyDay
“This is #adaptive trailcraft. Not what you planned. What's #possible now. So I opened the window & let the sky pour in. Watched the light crawl across the floor. Listened, breathed & let that count – it does.”: buff.ly/w4JPyNn
by @stillrollingout.stillrollingoutdoors.com
#ChronicPain #mindfulness
by @stillrollingout.stillrollingoutdoors.com
#ChronicPain #mindfulness
Window Trail: Letting the Sky In When You Can't Go Out
When the body says no, the window says yes. Some days, letting the light crawl across the floor is the trail.
buff.ly
January 21, 2026 at 6:30 PM
“This is #adaptive trailcraft. Not what you planned. What's #possible now. So I opened the window & let the sky pour in. Watched the light crawl across the floor. Listened, breathed & let that count – it does.”: buff.ly/w4JPyNn
by @stillrollingout.stillrollingoutdoors.com
#ChronicPain #mindfulness
by @stillrollingout.stillrollingoutdoors.com
#ChronicPain #mindfulness
Pain is my shadow; connection is my spotlight. #ChronicPain
January 21, 2026 at 6:15 PM
Pain is my shadow; connection is my spotlight. #ChronicPain
"The results of this experiment are now visible everywhere, and they are not subtle. Patients are sicker, more desperate, more marginalized, and more exposed to dangerous unregulated substances than at any point in modern medical history."
#chronicpain #opioidhysteria #pain
#chronicpain #opioidhysteria #pain
Prohibition Medicine and the Collapse of Patient Safety — Pain News Network
By Michelle Wyrick For more than a decade, the United States has been running a vast, uncontrolled policy experiment in medical care. Under the banner of “opioid reduction” and “overdose prevention,”...
www.painnewsnetwork.org
January 21, 2026 at 5:44 PM
"The results of this experiment are now visible everywhere, and they are not subtle. Patients are sicker, more desperate, more marginalized, and more exposed to dangerous unregulated substances than at any point in modern medical history."
#chronicpain #opioidhysteria #pain
#chronicpain #opioidhysteria #pain
Due to Chronic Wrist Pain we are reading a LOT MORE audiobooks on @libbyapp.com and @libro.fm
HURRAH FOR ACCESSIBLE READING!!!!!!
#disabled #chronicpain #allsysystemsred #aflowertraveledinmyblood #therushworthfamilyplot #automaticnoodle #audiobooks #lgbtqia #queer
HURRAH FOR ACCESSIBLE READING!!!!!!
#disabled #chronicpain #allsysystemsred #aflowertraveledinmyblood #therushworthfamilyplot #automaticnoodle #audiobooks #lgbtqia #queer
January 21, 2026 at 5:07 PM
Due to Chronic Wrist Pain we are reading a LOT MORE audiobooks on @libbyapp.com and @libro.fm
HURRAH FOR ACCESSIBLE READING!!!!!!
#disabled #chronicpain #allsysystemsred #aflowertraveledinmyblood #therushworthfamilyplot #automaticnoodle #audiobooks #lgbtqia #queer
HURRAH FOR ACCESSIBLE READING!!!!!!
#disabled #chronicpain #allsysystemsred #aflowertraveledinmyblood #therushworthfamilyplot #automaticnoodle #audiobooks #lgbtqia #queer
January 21, 2026 at 5:05 PM
I’m officially 1 year post-op from ACDF neck surgery, and I finally shared everything I wish I’d known before surgery.
If you’re facing ACDF or already recovering, I hope this helps.
🎥 Watch here: youtu.be/Ss9KO_fo9bw?...
💙 You’re not alone.
#ACDF #NeckSurgery #ChronicPain #RecoveryJourney
If you’re facing ACDF or already recovering, I hope this helps.
🎥 Watch here: youtu.be/Ss9KO_fo9bw?...
💙 You’re not alone.
#ACDF #NeckSurgery #ChronicPain #RecoveryJourney
#30 ACDF Recovery What I Wish I’d Known Before ACDF Surgery | 1 Year ACDF Recovery Update
YouTube video by Mama Fix It ACDF Recovery - My Black Belt Journey
youtu.be
January 21, 2026 at 4:30 PM
I’m officially 1 year post-op from ACDF neck surgery, and I finally shared everything I wish I’d known before surgery.
If you’re facing ACDF or already recovering, I hope this helps.
🎥 Watch here: youtu.be/Ss9KO_fo9bw?...
💙 You’re not alone.
#ACDF #NeckSurgery #ChronicPain #RecoveryJourney
If you’re facing ACDF or already recovering, I hope this helps.
🎥 Watch here: youtu.be/Ss9KO_fo9bw?...
💙 You’re not alone.
#ACDF #NeckSurgery #ChronicPain #RecoveryJourney
" #OccupationalTherapists (OTs) are experts in identifying specific #exercises or activities that will improve function necessary for specific tasks. OTs are also experts at modifying activities to make them easier to perform.": buff.ly/TTTrl7U
#ChronicPain #PainManagement #PainCycle
#ChronicPain #PainManagement #PainCycle
The Chronic Pain Cycle & How to Break It (Top Tips From an Occupational Therapist)
Cynthia Hill is an occupational therapist with over 25 years of experience. In this post, she shares tips on how to break the chronic pain cycle.
buff.ly
January 21, 2026 at 3:31 PM
" #OccupationalTherapists (OTs) are experts in identifying specific #exercises or activities that will improve function necessary for specific tasks. OTs are also experts at modifying activities to make them easier to perform.": buff.ly/TTTrl7U
#ChronicPain #PainManagement #PainCycle
#ChronicPain #PainManagement #PainCycle
Ibuprofen isn't enough for my #chronicpain but I don't want to take narcotics forever
January 21, 2026 at 2:53 PM
Ibuprofen isn't enough for my #chronicpain but I don't want to take narcotics forever
i remember a reddit thread on r/chronicpain about the maths u gotta do to accurately mark these charts when you have chronic pain so a doctor will actually understand/listen to you, cus uh, if im in pain 24/7 that 3 level is gonna be my 0
January 21, 2026 at 1:56 PM
i remember a reddit thread on r/chronicpain about the maths u gotta do to accurately mark these charts when you have chronic pain so a doctor will actually understand/listen to you, cus uh, if im in pain 24/7 that 3 level is gonna be my 0
“Chronic conditions are just that. Chronic. They’re not short term temporary issues and there’s no getting better soon, maybe not even ever. All we can do is manage the symptoms and deal as best we can.” https://buff.ly/7M19Zqi @InvisiblyMeBlog #ChronicIllness #ChronicPain
January 21, 2026 at 1:23 PM
“Chronic conditions are just that. Chronic. They’re not short term temporary issues and there’s no getting better soon, maybe not even ever. All we can do is manage the symptoms and deal as best we can.” https://buff.ly/7M19Zqi @InvisiblyMeBlog #ChronicIllness #ChronicPain
UK-based researcher here 👋
Would you like to participate in online research about endometriosis pain?
Taking part involves completing a short anonymous online survey (~15 mins).
Link:
psychiatryoxford.qualtrics.com/jfe/form/SV_...
#endometriosisuk #endowarriors #chronicpain #womenshealthresearch
Would you like to participate in online research about endometriosis pain?
Taking part involves completing a short anonymous online survey (~15 mins).
Link:
psychiatryoxford.qualtrics.com/jfe/form/SV_...
#endometriosisuk #endowarriors #chronicpain #womenshealthresearch
January 21, 2026 at 10:40 AM
UK-based researcher here 👋
Would you like to participate in online research about endometriosis pain?
Taking part involves completing a short anonymous online survey (~15 mins).
Link:
psychiatryoxford.qualtrics.com/jfe/form/SV_...
#endometriosisuk #endowarriors #chronicpain #womenshealthresearch
Would you like to participate in online research about endometriosis pain?
Taking part involves completing a short anonymous online survey (~15 mins).
Link:
psychiatryoxford.qualtrics.com/jfe/form/SV_...
#endometriosisuk #endowarriors #chronicpain #womenshealthresearch
Been a while since I did a #TeaAppreciation post. Tbh struggling to figure out navigating small/big goals with debilitating chronic pain/fatigue... Deep breaths.
Grateful for tea! 🍵🌸
#chronicPain #tea #DisabledArtist #selfCare
Grateful for tea! 🍵🌸
#chronicPain #tea #DisabledArtist #selfCare
January 21, 2026 at 10:28 AM
Been a while since I did a #TeaAppreciation post. Tbh struggling to figure out navigating small/big goals with debilitating chronic pain/fatigue... Deep breaths.
Grateful for tea! 🍵🌸
#chronicPain #tea #DisabledArtist #selfCare
Grateful for tea! 🍵🌸
#chronicPain #tea #DisabledArtist #selfCare
At that point, it's not just gaming anymore, it's syncing games with how my body functions.
Pain makes the world unpredictable.
But in a roguelike, that unpredictability feels fair.
#ChronicPain #GamingLife #Roguelikes #MentalHealthAndGaming #DisabledGamers #PainManagement
Pain makes the world unpredictable.
But in a roguelike, that unpredictability feels fair.
#ChronicPain #GamingLife #Roguelikes #MentalHealthAndGaming #DisabledGamers #PainManagement
January 21, 2026 at 9:13 AM
At that point, it's not just gaming anymore, it's syncing games with how my body functions.
Pain makes the world unpredictable.
But in a roguelike, that unpredictability feels fair.
#ChronicPain #GamingLife #Roguelikes #MentalHealthAndGaming #DisabledGamers #PainManagement
Pain makes the world unpredictable.
But in a roguelike, that unpredictability feels fair.
#ChronicPain #GamingLife #Roguelikes #MentalHealthAndGaming #DisabledGamers #PainManagement
January 21, 2026 at 4:08 AM
I hate it when my blood sugar crashes after I’ve gone to bed. The last thing I want to do after being woken from a dead sleep is eat some damned Smarties. 🤮
#spoonie #chronicpain #chronicillness
#spoonie #chronicpain #chronicillness
January 21, 2026 at 4:04 AM
I hate it when my blood sugar crashes after I’ve gone to bed. The last thing I want to do after being woken from a dead sleep is eat some damned Smarties. 🤮
#spoonie #chronicpain #chronicillness
#spoonie #chronicpain #chronicillness
New to the #chronicpain slash #disability community. How do you deal with it?
January 21, 2026 at 2:52 AM
New to the #chronicpain slash #disability community. How do you deal with it?