#Sjogrensdisease
“it’s easy to see why #Lupus ( #SLE ) is known as ‘the great imitator’ (tho #SjogrensDisease does have close overlaps as well for me). Just about any generic symptom could be caused by Lupus, ranging from something simpler..to more severe such as #HemolyticAnaemia.”: buff.ly/HC8r5u0
February 10, 2026 at 9:30 PM
What episode was your favorite in 2025? Let us know in the comments! In 2025, we hosted 12 episodes on topics that matter most to the AiArthritis disease community. To listen, visit zurl.co/cevIr

#AiArthritis #UndifferentiatedDisease #Lupus #SjogrensDisease #EULAR2025 #ChronicIllness #HealthPodcast
January 30, 2026 at 7:36 PM
"I suffer from a number of #ChronicIllnesses whose names sound like tongue twisters. #AntiphospholipidSyndrome. Systemic #Lupus Erythomatosus. #SjögrensDisease. Paroxysmal Supraventricular Tachycardia... #epilepsy is the easiest, except that it isn’t.": buff.ly/yw0HHFX
January 17, 2026 at 9:30 PM
Are we speaking the same language when assessing Sjögren’s disease? This new qualitative study, co-authored by members of the YHEC team, draws on international expert opinion to examine how clinicians define and apply core concepts.

Read more: link.springer.com/article/10.1...

#SjögrensDisease
January 14, 2026 at 12:00 PM
"The most significant challenge that comes with #Sjögrens is #dryness, which can significantly affect the mouth, eyes, nose, and vagina. This isn’t just uncomfortable; it can lead to reduced #EmotionalHealth.": buff.ly/FP4ECwt

via @healthcentral.bsky.social
#ChronicIllness #SjogrensDisease
Why Your Daily Habits With Sjögren’s Syndrome Matter
buff.ly
January 8, 2026 at 8:30 PM
Hope on the horizon for Sjögren’s disease
New Phase 3 trial data shows a promising treatment that significantly reduced disease activity. This breakthrough could change how Sjögren’s—and severe dry eye—are managed in the future.
#SjögrensDisease #DryEye #EyeHealth
December 19, 2025 at 1:43 PM
“When #dryness is a prob, the person’s life is..disrupted due to lack of #lubrication of these highly impactful system..may hurt to blink, or speech could be affected..The person is constantly reminded of the disorder.": buff.ly/FP4ECwt

via @healthcentral.bsky.social
#SjogrensDisease #ChronicPain
Why Your Daily Habits With Sjögren’s Syndrome Matter
buff.ly
December 6, 2025 at 12:30 PM
Brand new!!! Just accepted!!!

Clinical Practice Guideline for Evaluation and Management of Peripheral Nervous System Manifestations in Sjögren's Disease

#Sjogrens #SjogrensDisease #AutoimmuneDiseases #Healthcare #Research

acrjournals.onlinelibrary.wiley.com/doi/10.1002/...
Clinical Practice Guideline for Evaluation and Management of Peripheral Nervous System Manifestations in Sjögren's Disease
Objectives Sjögren's disease is an autoimmune disorder that can impact multiple organ systems, including the peripheral nervous system (PNS). PNS manifestations, which can exist concurrently, includ...
acrjournals.onlinelibrary.wiley.com
December 4, 2025 at 12:45 AM
Learn how @arvoinfo.bsky.social member Esen Akpek, MD, is advancing early detection/diagnosis of #SjögrensDisease—an autoimmune disorder impacting millions and eye health nationwide—and why continued federal funding is vital for this groundbreaking work: https://bit.ly/43gP4EI
#SeeWhatMatters
November 7, 2025 at 7:10 PM
"An investigational #biologic against B-cell activating factor (BAFF) appeared effective in treating #SjögrensDisease in twin phase III trials..tho salivation wasn't enhanced significantly in #patients with low baseline flow.": buff.ly/m6rM5xE

via @medpagetoday.com
#medicine #autoimmune
Novel Biologic for Sjogren's Clears Penultimate Hurdle
B cell-targeting drug could treat numerous other autoimmune diseases
buff.ly
November 1, 2025 at 7:30 AM
"In summary, #SLE-associated #autoantibodies are present in patients with other immunological diseases, especially [ #SjogrensSyndrome ] patients, and have a major impact on diagnostic efficiency.": buff.ly/1HtFAz4

#SjogrensDisease #lupus #MedSky
via @nature.com
Analytical and clinical comparison of four SLE-associated autoantibodies in different autoimmune diseases - Scientific Reports
Scientific Reports - Analytical and clinical comparison of four SLE-associated autoantibodies in different autoimmune diseases
buff.ly
October 26, 2025 at 6:30 PM
RPV needs YOU!
@rarepatientvoice.bsky.social is looking for patients for a paid opportunity:

🗣 Male patients with #SjogrensSyndrome
⌚ 60-minute in-person interview
💵 $120 compensation

Visit rarepatientvoice.com/Buttahfly to sign up!
~🦋
#ChronicIllness #Sjogrens #SjogrensDisease #SpoonieSky
October 4, 2025 at 2:57 PM
I was honored to be interviewed for The Table Talk on Health podcast w/Caroline Pardo (last episode on bottom) and shared my journey & patient experience with #sjogrensdisease #sjogrens #tabletalkonhealth Pls share w/other patients & physicians who would benefit! www.tabletalkonhealth.com/tabletalks
Classes — Table Talk on Health
www.tabletalkonhealth.com
August 19, 2025 at 4:40 PM
Novartis announces both ianalumab Phase III clinical trials met primary endpoint in patients with Sjögren’s disease

#Sjogrens #SjogrensDisease #AutoimmuneDiseases #Research

www.novartis.com/news/media-r...
Novartis announces both ianalumab Phase III clinical trials met primary endpoint in patients with Sjögren’s disease
www.novartis.com
August 11, 2025 at 4:05 PM
Did you know that Sjögren’s disease can cause dry mouth, dry eyes, or arthritis, painful and weak muscles, neuropathy, and fatigue?

Check out Sjögren’s Society of Canada to learn more.

#Sjögrens #SjögrensDisease #SjögrensAwareness #SjögrensAwarenessMonth #WorldSjögrensAwarenessDay
July 24, 2025 at 10:00 PM
💙 Raise awareness. Share strength. Today is #SjogrensAwarenessDay—let’s stand with those facing this invisible autoimmune disease.

#SjogrensDisease #AiArthritis
July 23, 2025 at 4:10 PM
Are you celebrating any of these? Learn more about AiArthritis Disease awareness dates on a Global Awareness Page: www.aiarthritis.org/awareness-days

#SjogrensAwareness #SjogrensDisease #AiArthritis #JIA #KidsGetArthritisToo #ChronicDisease #ChronicDiseaseAwarenessDay
July 1, 2025 at 5:50 PM
I, too, live with #Sjogren's and, until two or three years ago, had never heard of it.

This short video, which includes a transcript for accessibility, is a good primer for those unfamiliar with this #autoimmune #disease.

#ChronicIllness #SjogrensSyndrome
#SjogrensDisease
April is Sjögren’s Awareness month. I experience all the symptoms listed in the graphic below. It is a serious and often disabling disease. To learn more go to: dysautonomiainternational.org/blog/wordpre...
April 18, 2025 at 3:59 AM
📢I'll be a speaker (Chat session with live Q &A) at the 2025 National Patient Conference with the Sjogren's Foundation on April 11th & 12th! Join us! Lots of great topics from the experts: polyautoimmunity, genetics, nerve problems, practical care advice bit.ly/4iqXSwO #Sjögrens #SjögrensDisease
2025 Sjögren’s Foundation Virtual National Patient Conference, Fri, Apr 11th, 2025 @ 12:30 PM Accelevents
The National Patient Conference is the Sjögren’s Foundation’s largest educational event, bringing together patients and talented medical experts to provide the latest information on Sjögren's disease. This is a virtual event, participate from the comfort of your home while still benefiting from live expert sessions, Q&As, and patient community connections. This year’s event will cover: -Our foundational program, An Overview of Sjögren’s -Oral and ocular management -Management of overlapping autoimmune diseases -How Sjögren’s disease affects your ears, nose & throat and nervous system -What’s happening in childhood Sjögren’s -Latest Sjögren’s research and what we are learning about different patient profiles and genetics A popular cornerstone of the Sjögren’s Foundation conference experience is the chance to have your questions answered by experts. At the end of our clinical sessions, you will have the opportunity to ask our speakers questions about their presentation topics. We are also excited to announce that we will be bringing back the popular “Chat with a Doc” session with Dr. Donald Thomas for one hour on both Friday and Saturday! To learn more about our conference speakers and agenda, click on the tabs above this section. We look forward to you joining us where you can connect with other Sjögren’s patients, learn from experts and gain the knowledge to thrive with your Sjögren’s disease! Registration cost is $80 for members (please be sure to use discount code emailed to all members) and $100 for non-members. Non-members also have the ability to purchase a membership at the time of registration for $116 (which automatically includes the $20 member discount). Note: For those unable to attend the virtual event live, in real time, or would like to re-watch presenters from the event, the conference will be recorded and you will have access to view the presentations at your convenience for 6 months after the live event has concluded.
bit.ly
March 14, 2025 at 11:26 PM
No change in the 10 months I’ve been participating in a study for pacing for people with invisible illnesses, but it shows my truths and gives me data to show providers. Thanks Visible. #longcovid #fibromyalgia
#chronicfatigue/ME/PEM
#Sjogrensdisease
March 2, 2025 at 5:56 PM
New #Feed: #Sjogrens #Sjogren's #Sjögren's #SjD #SjS #pSS #SjogrensDisease #SjogrensSyndrome #SjogrensFoundation

Exploring the latest research on #Sjogrens and emerging treatments, patient experiences, advocacy updates, and insights to improve understanding and care.

bsky.app/profile/did:...
March 2, 2025 at 12:12 PM