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Mirandaaaaa 👻

@crookedneighbor.bsky.social

160 followers 340 following 590 posts

Long Covid patient and caregiver writing about homelessness, poverty, and administrative burden in ME/CFS. (she/her) LongCovidSafety.net

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Mirandaaaaa 👻 @crookedneighbor.bsky.social · Jul 10

I've spent the past year trying to help my friends get housing and keep them out of nursing homes. @longcovidsafetynet.bsky.social is the labor of love and frustration that has come out of this struggle.

truthout.org/articles/esc...

Escalating Anti-Homeless Policies Fall Hardest on Disabled People in the US

As legislative attacks on unhoused people ramp up, disabled people are on the front lines.

truthout.org

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Mirandaaaaa 👻 @crookedneighbor.bsky.social · 1d

Hello, internet! My friend K is *so* close to getting a (really great) accessible apartment, but needs $500 for the deposit basically asap. Please help out if you can!

(The deposit should get reimbursed if the funding source gets approved, but there's a chance it won't because bureaucracy sucks.)

Mirandaaaaa 👻 @crookedneighbor.bsky.social · Aug 22

A dear friend, who has repeatedly gone above and beyond to support me and other chronically ill people, is facing homelessness for the second (at least?) time. They have until 8/27 to pull together the funds to get their stuff into storage. Can you help?

[PLS DO NOT POST ON META FOR SAFETY REASONS]

Purple flyer with a headline that reads: "Help Our Trans Indigenous Friend Survive Medical Homelessness." Mostly covered by the text, there is a photo of a person wearing an oxygen cannula being aggressively cuddled by a very round cat.

The body of the flyer reads: "Our friend 'K' is a trauma survivor with numerous very serious medical conditions, who is being evicted from their home. Because of their immune deficiency, they have no choice but to live in the hospital until permanent housing can be secured. We are fundraising to help cover movers, storage, cat care, and other survival needs. K is beloved in the chronic illness community and constantly helping others despite being incredibly sick. Please help us make sure they are safe and cared for during this time! ko-fi/venmo: whangspangle"

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Reposted by Mirandaaaaa 👻

Eric Reinhart @eric-reinhart.com · 2d

Psychiatrists/NPs/therapists who could provide off-the-books, no-fee, Zoom-based care for individuals in crisis in ICE-targeted Chicago communities, please email me: [email protected]. Include whether you can prescribe, speak Spanish (or other languages), and available hours per week/month.

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Mirandaaaaa 👻 @crookedneighbor.bsky.social · 3d

I’d really love to see @autisticadvocacy.org or another org do a “how to write an op ed” / “how to speak to the media” clinic for autistic adults, to counter this

Julia Métraux @juliametraux.bsky.social · 3d

The media has also published far too many essays by these "autism parents" who hate their autistic kids. This has increased the vilification of autism IMO.

Amytiville Hoyrror @amyhoy.bsky.social · 3d

it's bc so many "autism parents" hate their children for being disabled.

it's never driven by autistic adults. autistic adults grow to be, at best, wary of "autism parents"

Reposted by Mirandaaaaa 👻

Mia Ives-Rublee @seemiaroll.bsky.social · 3d

Let me explain: States currently receive a percentage for each medical expense they pay from the federal government (called FMAP). That means they will receive more money if more people are on Medicaid or they utilize more Medicaid covered services. Block grants are pots of money that don't change.

Mia Ives-Rublee @seemiaroll.bsky.social · 3d

Any block grant is a cut to Medicaid. Don't believe their messaging. Block grants are cuts. #HandsOffMedicaid

@cr_possess 👻 @christianrincon.com · 3d

we're 9 years into waiting for Trump's "affordable healthcare" plan

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Mirandaaaaa 👻 @crookedneighbor.bsky.social · 4d

Are there any ethical transcription programs out there or is it all basically predatory AI? Trying to figure out what to do with some call recordings...

Mirandaaaaa 👻 @crookedneighbor.bsky.social · 4d

🇮🇪🇵🇸🇮🇪🇵🇸

Irish Literary Times @irishlittimes.bsky.social · 4d

TD and author Naoise Dolan among five held after Gaza flotilla intercepted www.rte.ie/news/middle-...

TD among five held after Gaza flotilla intercepted

Independent TD Barry Heneghan and author Naoise Dolan are among five Irish citizens detained by the Israel Defence Forces, after a number of flotilla vessels heading to Gaza were intercepted overnight...

www.rte.ie

Mirandaaaaa 👻 @crookedneighbor.bsky.social · 4d

On this note--where are we looking for up-to-date prevalence stats at this stage?

Long Covid Safety Net @longcovidsafetynet.bsky.social · 4d

Deeply frustrated to see that this guide from @dysautonomia.bsky.social on how to speak to the press doesn't include any mention of Long Covid or the fact that Covid has drastically increased the percentage of children and adults with POTS.

www.dysautonomiainternational.org/pdf/MediaGui...

www.dysautonomiainternational.org

Mirandaaaaa 👻 @crookedneighbor.bsky.social · 4d

W h a t

Mirandaaaaa 👻 @crookedneighbor.bsky.social · 4d

It's a Spotify ad and I...don't understand it

Mirandaaaaa 👻 @crookedneighbor.bsky.social · 4d

It's so truly absurd that it just sort of resets my brain

Mirandaaaaa 👻 @crookedneighbor.bsky.social · 4d

Have you gotten the GoodRx ad with the horse 🐴

Reposted by Mirandaaaaa 👻

Eddie Gorry, MPH (they/them) @eddiegorry.bsky.social · 5d

An infectious disease class that can’t teach about *checks notes* recent polio outbreak. JFC!

Harms Committed @harmscommitted.com · 6d

Tulane "terminated an academic director this summer after the syllabus she'd helped create for an infectious disease class was rejected by a newly hired instructor because it included an academic article about a polio outbreak in Gaza."
#Louisiana #USA #Gaza #Palestine #Israel #Healthcare #Genocide

Tulane changes syllabus, fires academic director over Gaza article • Louisiana Illuminator

Some say that the incident is yet another glimpse of the tense climate experienced on local and national campuses by people who support Palestine.

lailluminator.com

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Mirandaaaaa 👻 @crookedneighbor.bsky.social · 5d

More on the current (2025) approach to addiction treatment, as dictated by the Trump administration filtermag.org/samhsa-state...

SAMHSA Awards Opioid Response Grants Amid New "Strategic Priorities"

SAMHSA's anti-harm reduction “strategic priorities" arrive at a time of immense change and uncertainty about the agency's future under Trump.

filtermag.org

Reposted by Mirandaaaaa 👻

Cranky Queer Guide to Chronic Illness @crankyqueer.bsky.social · 5d

Two years of hell. Give all you can. Crips for eSims for Gaza chuffed.org/project/crip...

Crips for eSims for Gaza

Crips for eSims for Gaza is a collaboration between Jane Shi, Leah Lakshmi Piepzna-Samarasinha, and Alice Wong.

chuffed.org

Mirandaaaaa 👻 @crookedneighbor.bsky.social · 5d

This is not helping me fight the deep-seated urge to get distribute masks from an electric trike btw

Mirandaaaaa 👻 @crookedneighbor.bsky.social · 5d

It's Christmas for Lesbians

Heather Hogan @heatherhogan.bsky.social · 5d

You fundraiser perks are coming @thesicktimes.org readers! I dropped off four bike crates full of packages at the post office today! (And now I’m gonna take a nap 😅)

Don’t forget to post pics of yourself in your new TST dad hats and tag us!

A blue e-bike with a crate attached to the back. The crate is full of manilla envelopes.

A middle age lesbian wearing a khaki hat that reads “THE SICK TIMES” in stitched purple letters.

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Mirandaaaaa 👻 @crookedneighbor.bsky.social · 5d

Very glad to see this finally generating some press and outrage...but also kind of mystified that it took two months?

Katie (she/her) @librariankqm.bsky.social · 5d

"The Trump Administration abruptly ended federal support for a highly effective intervention that helps disabled people experiencing or at risk of homelessness access benefits to help them stabilize their lives."

www.cbpp.org/blog/trump-a...

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Mirandaaaaa 👻 @crookedneighbor.bsky.social · 5d

The fact that this "homeless jail" is being built in Utah feels like more than a coincidence, and I can't help but wonder how much the "treatments" will borrow from the techniques of the troubled teen industry--abuse and control.

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Mirandaaaaa 👻 @crookedneighbor.bsky.social · 5d

As this article details, the twelve-step movement, especially as adopted by insurance, has close ties to both Evangelicalism and the troubled teen industry, which has flourished in the Mountain States (Utah, Montana, Wyoming, Colorado) over the course of several decades.

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Mirandaaaaa 👻 @crookedneighbor.bsky.social · 5d

This is a decade-old article and the introduction of fentanyl has drastically changed the landscape since 2015, but I'm linking it here because it's a really good deep dive on the logic of twelve-step programs and why they fundamentally don't work. projects.huffingtonpost.com/dying-to-be-...

There’s A Treatment For Heroin Addiction That Actually Works. Why Aren’t We Using It?

A yearlong HuffPost investigation into the heroin treatment industry.

projects.huffingtonpost.com

Mirandaaaaa 👻 @crookedneighbor.bsky.social · 5d

I would bet good amounts of money that it is abstinence-based twelve-step style treatment ONLY, which experts agree simply does not work. What works is medication-assisted treatment with buprenorphine or methadone (combined with counseling and support). We know this.

Mirandaaaaa 👻 @crookedneighbor.bsky.social · 5d

This is alarming for a whole host of reasons, not least the involuntary commitment element (the article literally includes the phrase "homeless jail"). But I really wish journalists would also dig into what kind of addiction "treatment" is even being offered here utahnewsdispatch.com/2025/09/18/u...

Utah’s new homeless campus should have 300-plus beds for civil commitment, board chair says • Utah News Dispatch

After President Donald Trump's executive order on homelessness, Utah is looking to build 300 civil commitment beds in a new homeless campus.

utahnewsdispatch.com

Mirandaaaaa 👻 @crookedneighbor.bsky.social · 5d

Oh shit

Maris Kreizman @maris.bsky.social · 5d

seems very bad www.publishersweekly.com/pw/by-topic/...

Baker & Taylor Prepares Plan to Shut Down

At a town hall yesterday, B&T owner and CEO Aman Kochar announced that following the termination of the ReaderLink acquisition deal, he does not see a path to keep the library wholesaler in business.

www.publishersweekly.com

Reposted by Mirandaaaaa 👻

Sara Luterman @slooterman.bsky.social · 5d

Are rising prices and inflation eating into your or a loved one’s Social Security payments? Want to talk about it with a reporter for a news article? DM or email sluterman at 19thnews dot org.

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Reposted by Mirandaaaaa 👻

O. Rose Broderick @rosebroderick.bsky.social · 5d

The Supreme Court is hearing oral arguments for Chiles v Salazar today.

If you want to get caught up on what this Supreme Court case means for conversion therapy), STAT's very own @theresagaff.bsky.social has you covered.

www.statnews.com/2025/10/06/s...

How this week’s Supreme Court case on conversion therapy could impact the regulation of medicine

The Supreme Court will hear arguments Tuesday in a challenge to a Colorado law banning mental health practitioners from performing conversion therapy

www.statnews.com

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