Sam
@counsellingsam.bsky.social
Person with #LongCovid for 4 and a half years.
Disability Campaigner and dog lover. Left-wing.
Hates Centrists for pandering to the Right.
Leveson 2 Now. Anti-Zionist. Anti-Racist pro-Trans
Disability Campaigner and dog lover. Left-wing.
Hates Centrists for pandering to the Right.
Leveson 2 Now. Anti-Zionist. Anti-Racist pro-Trans
Reposted by Sam
POTS is a major way that long-COVID or PASC shows and in healthy athletic humans it makes them seem absolutely human
At this point why are we covering up long-COVID?
At this point why are we covering up long-COVID?
Hawks' Porzingis sidelined 2 weeks with illness
Hawks center Kristaps Porzingis will miss the next two weeks and undergo further evaluations while dealing with a recent illness.
www.espn.com
December 15, 2025 at 4:58 AM
POTS is a major way that long-COVID or PASC shows and in healthy athletic humans it makes them seem absolutely human
At this point why are we covering up long-COVID?
At this point why are we covering up long-COVID?
Reposted by Sam
“Due to the reinfection in 2024, I’m no longer able to sit out in the garden - a pleasure that took me two and a half years to build to, and only one reinfection took away from me again." Lydia Fischer Dooley, disabled by #LongCOVID triggered by a 2nd COVID in 2022.
www.instagram.com/p/DSP9ch5ES8...
www.instagram.com/p/DSP9ch5ES8...
December 14, 2025 at 6:23 PM
“Due to the reinfection in 2024, I’m no longer able to sit out in the garden - a pleasure that took me two and a half years to build to, and only one reinfection took away from me again." Lydia Fischer Dooley, disabled by #LongCOVID triggered by a 2nd COVID in 2022.
www.instagram.com/p/DSP9ch5ES8...
www.instagram.com/p/DSP9ch5ES8...
Reposted by Sam
@togetherwemask.bsky.social very kindly shared my story regarding Long Covid.
In the context of the current flu surge, don't be afraid to ventilate or mask. It could save a life and that life could be yours!
#cleanairstrategy #longcovid #flu #covid #masking #N95 #publichealth #mecfs #POTS
In the context of the current flu surge, don't be afraid to ventilate or mask. It could save a life and that life could be yours!
#cleanairstrategy #longcovid #flu #covid #masking #N95 #publichealth #mecfs #POTS
“Due to the reinfection in 2024, I’m no longer able to sit out in the garden - a pleasure that took me two and a half years to build to, and only one reinfection took away from me again." Lydia Fischer Dooley, disabled by #LongCOVID triggered by a 2nd COVID in 2022.
www.instagram.com/p/DSP9ch5ES8...
www.instagram.com/p/DSP9ch5ES8...
December 15, 2025 at 5:21 AM
@togetherwemask.bsky.social very kindly shared my story regarding Long Covid.
In the context of the current flu surge, don't be afraid to ventilate or mask. It could save a life and that life could be yours!
#cleanairstrategy #longcovid #flu #covid #masking #N95 #publichealth #mecfs #POTS
In the context of the current flu surge, don't be afraid to ventilate or mask. It could save a life and that life could be yours!
#cleanairstrategy #longcovid #flu #covid #masking #N95 #publichealth #mecfs #POTS
Reposted by Sam
Is your brain tired? Researchers are discovering the roots of mental fatigue
https://www.nature.com/articles/d41586-025-03974-w
Better ways to measure cognitive exhaustion could point to treatments for long COVID and other debilitating disorders.
https://www.nature.com/articles/d41586-025-03974-w
Better ways to measure cognitive exhaustion could point to treatments for long COVID and other debilitating disorders.
Is your brain tired? Researchers are discovering the roots of mental fatigue
Better ways to measure cognitive exhaustion could point to treatments for long COVID and other debilitating disorders.
www.nature.com
December 15, 2025 at 11:30 AM
Is your brain tired? Researchers are discovering the roots of mental fatigue
https://www.nature.com/articles/d41586-025-03974-w
Better ways to measure cognitive exhaustion could point to treatments for long COVID and other debilitating disorders.
https://www.nature.com/articles/d41586-025-03974-w
Better ways to measure cognitive exhaustion could point to treatments for long COVID and other debilitating disorders.
Reposted by Sam
Early research hints that women with endometriosis may face a higher chance of Long Covid but more evidence is needed.
Raising awareness can help guide better care.
Details: shh-uk.org/?p=35298&...
#LongCovid #longcovidawareness #Endometriosis #WomensHealth
Raising awareness can help guide better care.
Details: shh-uk.org/?p=35298&...
#LongCovid #longcovidawareness #Endometriosis #WomensHealth
December 15, 2025 at 12:15 PM
Early research hints that women with endometriosis may face a higher chance of Long Covid but more evidence is needed.
Raising awareness can help guide better care.
Details: shh-uk.org/?p=35298&...
#LongCovid #longcovidawareness #Endometriosis #WomensHealth
Raising awareness can help guide better care.
Details: shh-uk.org/?p=35298&...
#LongCovid #longcovidawareness #Endometriosis #WomensHealth
Reposted by Sam
Eating and drinking is essentially all I have left in my life that I enjoy. On good days, I cook more food so that I have decent leftovers I can just warm up on bad days. I only make food I love and I never force water down.
Not sure this answers your question though. 🤔
Not sure this answers your question though. 🤔
December 9, 2025 at 6:27 PM
Eating and drinking is essentially all I have left in my life that I enjoy. On good days, I cook more food so that I have decent leftovers I can just warm up on bad days. I only make food I love and I never force water down.
Not sure this answers your question though. 🤔
Not sure this answers your question though. 🤔
If you have Long Covid, how do you make sure that you're eating and drinking enough?
December 9, 2025 at 5:33 PM
If you have Long Covid, how do you make sure that you're eating and drinking enough?
Reposted by Sam
Two weeks with a bad back injury and almost 100% bed / sofa bound, combined with 5 years of Lyme, long COVID and severe ME, especially the social isolation, has been nudging at the boundaries of my mental health. Nothing too much, just the beginnings of depression. I've seen this road before. 🙏🏻
December 9, 2025 at 5:02 PM
Two weeks with a bad back injury and almost 100% bed / sofa bound, combined with 5 years of Lyme, long COVID and severe ME, especially the social isolation, has been nudging at the boundaries of my mental health. Nothing too much, just the beginnings of depression. I've seen this road before. 🙏🏻
Reposted by Sam
People around me describing brain fog, memory issues and "I just got into jogging again, why am I sick again?" (Spoiler: it's PEM) but when I ask them to consider that it could be LC and maybe try pacing, they get real defensive.
Because they are fine! THEY are not bedbound! Everything is fine!
Because they are fine! THEY are not bedbound! Everything is fine!
October 6, 2025 at 6:58 AM
People around me describing brain fog, memory issues and "I just got into jogging again, why am I sick again?" (Spoiler: it's PEM) but when I ask them to consider that it could be LC and maybe try pacing, they get real defensive.
Because they are fine! THEY are not bedbound! Everything is fine!
Because they are fine! THEY are not bedbound! Everything is fine!
Reposted by Sam
If you enjoy The Gauntlet and want to see more reporting on COVID & Long COVID, please become a paid supporter at the link! I never paywall public interest reporting but paid members do receive additional personal essays each month. TY!
www.thegauntlet.news/subscribe
www.thegauntlet.news/subscribe
Subscribe to The Gauntlet
COVID Information, Updates, and Commentary. Click to read The Gauntlet, by Julia Doubleday, a Substack publication with tens of thousands of subscribers.
www.thegauntlet.news
October 5, 2025 at 10:46 PM
If you enjoy The Gauntlet and want to see more reporting on COVID & Long COVID, please become a paid supporter at the link! I never paywall public interest reporting but paid members do receive additional personal essays each month. TY!
www.thegauntlet.news/subscribe
www.thegauntlet.news/subscribe
Reposted by Sam
Nobody has Long COVID, but everybody has brain fog, cognitive decline and memory loss. I talk about the overwhelming scientific evidence that COVID damages the brain, and the overwhelming social unwillingness to acknowledge it in my latest:
www.thegauntlet.news/p/when-will-...
www.thegauntlet.news/p/when-will-...
When Will the Lion Concern Himself
Joking memes make light of the uncomfortable reality: everyone's got a little of that post-COVID brain damage these days
www.thegauntlet.news
October 5, 2025 at 10:46 PM
Nobody has Long COVID, but everybody has brain fog, cognitive decline and memory loss. I talk about the overwhelming scientific evidence that COVID damages the brain, and the overwhelming social unwillingness to acknowledge it in my latest:
www.thegauntlet.news/p/when-will-...
www.thegauntlet.news/p/when-will-...
Reposted by Sam
"The evidence has been building for years and has been consistent; COVID causes brain damage.
Despite the clear evidence, we’ve continued to infect the population, not once, but repeatedly, with no plan to end the onslaught of reinfections."
#LongCovid
Despite the clear evidence, we’ve continued to infect the population, not once, but repeatedly, with no plan to end the onslaught of reinfections."
#LongCovid
Nobody has Long COVID, but everybody has brain fog, cognitive decline and memory loss. I talk about the overwhelming scientific evidence that COVID damages the brain, and the overwhelming social unwillingness to acknowledge it in my latest:
www.thegauntlet.news/p/when-will-...
www.thegauntlet.news/p/when-will-...
When Will the Lion Concern Himself
Joking memes make light of the uncomfortable reality: everyone's got a little of that post-COVID brain damage these days
www.thegauntlet.news
October 6, 2025 at 1:30 PM
"The evidence has been building for years and has been consistent; COVID causes brain damage.
Despite the clear evidence, we’ve continued to infect the population, not once, but repeatedly, with no plan to end the onslaught of reinfections."
#LongCovid
Despite the clear evidence, we’ve continued to infect the population, not once, but repeatedly, with no plan to end the onslaught of reinfections."
#LongCovid
Reposted by Sam
12 News Now: 'Austin-based nonprofit spreading awareness on the effects of long covid'
'The Long Covid Collective is a support group that formed last year to show those suffering that they are not alone'
www.12newsnow.com/video/news/l...
'The Long Covid Collective is a support group that formed last year to show those suffering that they are not alone'
www.12newsnow.com/video/news/l...
Austin-based nonprofit spreading awareness on the effects of long covid
The Long Covid Collective is a support group that formed last year to show those suffering that they are not alone
www.12newsnow.com
October 6, 2025 at 1:54 PM
12 News Now: 'Austin-based nonprofit spreading awareness on the effects of long covid'
'The Long Covid Collective is a support group that formed last year to show those suffering that they are not alone'
www.12newsnow.com/video/news/l...
'The Long Covid Collective is a support group that formed last year to show those suffering that they are not alone'
www.12newsnow.com/video/news/l...
Reposted by Sam
How do we create a culture clinicians feel safe recognizing complex symptoms - and believe their young Long COVID patients instead of dismissing them?
It's time to act.
Sign & share the CLCN Petition calling for safe evidence -based biomedical care: chng.it/7ZSzLXnp5n
It's time to act.
Sign & share the CLCN Petition calling for safe evidence -based biomedical care: chng.it/7ZSzLXnp5n
Sign the Petition
Demand Federal Action on Biomedical Care for Children Living with Long COVID
chng.it
October 6, 2025 at 2:50 PM
How do we create a culture clinicians feel safe recognizing complex symptoms - and believe their young Long COVID patients instead of dismissing them?
It's time to act.
Sign & share the CLCN Petition calling for safe evidence -based biomedical care: chng.it/7ZSzLXnp5n
It's time to act.
Sign & share the CLCN Petition calling for safe evidence -based biomedical care: chng.it/7ZSzLXnp5n
Reposted by Sam
I haven't seen one single study that shows it's harmless to keep getting Covid again & again. But there are thousands of peer-reviewed studies that document long-term harms
October 4, 2025 at 3:16 PM
I haven't seen one single study that shows it's harmless to keep getting Covid again & again. But there are thousands of peer-reviewed studies that document long-term harms
Reposted by Sam
CDC data show the US is in its second largest COVID-19 surge
Experts expect 100 million infections
At least 16 million Americans live with Long COVID, often facing lasting fatigue, pain, and organ issues
Yet only one-third get the updated vaccine
abcnews4.com/lowcountry-l...
Experts expect 100 million infections
At least 16 million Americans live with Long COVID, often facing lasting fatigue, pain, and organ issues
Yet only one-third get the updated vaccine
abcnews4.com/lowcountry-l...
Moderna
The US is in the midst of the second largest COVID-19 surge since the start of the COVID-19 pandemic, according to the CDC. During this surge, experts are predi
abcnews4.com
October 6, 2025 at 3:32 PM
CDC data show the US is in its second largest COVID-19 surge
Experts expect 100 million infections
At least 16 million Americans live with Long COVID, often facing lasting fatigue, pain, and organ issues
Yet only one-third get the updated vaccine
abcnews4.com/lowcountry-l...
Experts expect 100 million infections
At least 16 million Americans live with Long COVID, often facing lasting fatigue, pain, and organ issues
Yet only one-third get the updated vaccine
abcnews4.com/lowcountry-l...
Reposted by Sam
This study found that healthcare workers with #LongCOVID often experience higher stress & burnout at work; felt less connected to their jobs than those who hadn’t got Long Covid; & that those who cared for many Long COVID patients reported feeling emotionally drained -
🧠 New Research Summary
Healthcare worker stress when treating Long Covid patients.
📚Read Summary: shh-uk.org/?p=34787
📚 Full study: pubmed.ncbi.nlm.nih....
#LongCovid #LongCovidSupport #LongCovidRecovery #LongCovidAwareness #LongCovidCommunity #LongCovidResources
Healthcare worker stress when treating Long Covid patients.
📚Read Summary: shh-uk.org/?p=34787
📚 Full study: pubmed.ncbi.nlm.nih....
#LongCovid #LongCovidSupport #LongCovidRecovery #LongCovidAwareness #LongCovidCommunity #LongCovidResources
October 6, 2025 at 3:38 PM
This study found that healthcare workers with #LongCOVID often experience higher stress & burnout at work; felt less connected to their jobs than those who hadn’t got Long Covid; & that those who cared for many Long COVID patients reported feeling emotionally drained -
Reposted by Sam
Slept on it and 95% sure my ongoing issues with malaise, brain fog, and sleep issues are probably long covid
Wish i knew what to do about it but at least it's not just me being like that for no reason.
Wish i knew what to do about it but at least it's not just me being like that for no reason.
October 6, 2025 at 3:46 PM
Slept on it and 95% sure my ongoing issues with malaise, brain fog, and sleep issues are probably long covid
Wish i knew what to do about it but at least it's not just me being like that for no reason.
Wish i knew what to do about it but at least it's not just me being like that for no reason.
Reposted by Sam
In Scotland, the disabled pay TWICE
🏥 84% of Scots with #LongCovid pay for supplements.
59% for alternative therapies. 41% for private appointments.
...Because Scottish Government funding is only £9.70 per patient per year
#LongCovidScotland #ChronicIllness #Disability #Scotland
🏥 84% of Scots with #LongCovid pay for supplements.
59% for alternative therapies. 41% for private appointments.
...Because Scottish Government funding is only £9.70 per patient per year
#LongCovidScotland #ChronicIllness #Disability #Scotland
October 6, 2025 at 3:59 PM
In Scotland, the disabled pay TWICE
🏥 84% of Scots with #LongCovid pay for supplements.
59% for alternative therapies. 41% for private appointments.
...Because Scottish Government funding is only £9.70 per patient per year
#LongCovidScotland #ChronicIllness #Disability #Scotland
🏥 84% of Scots with #LongCovid pay for supplements.
59% for alternative therapies. 41% for private appointments.
...Because Scottish Government funding is only £9.70 per patient per year
#LongCovidScotland #ChronicIllness #Disability #Scotland
Reposted by Sam
People with mild ME/Long Covid & people who have recovered, please start advocating for the most severe instead of mildwashing the disease & using your story to sell your personal projects while feeding the media narrative of “individual overcoming” 🙏
September 27, 2025 at 8:23 PM
People with mild ME/Long Covid & people who have recovered, please start advocating for the most severe instead of mildwashing the disease & using your story to sell your personal projects while feeding the media narrative of “individual overcoming” 🙏
Reposted by Sam
I have fairly mild long COVID and what that means in practice is that I can work but have no ability to socialise, I can do 5000 steps but have to come home with crushing fatigue and sleep for hours to recover, I volunteer for two hours a fortnight when I used to do volunteer work every day.
People with mild ME/Long Covid & people who have recovered, please start advocating for the most severe instead of mildwashing the disease & using your story to sell your personal projects while feeding the media narrative of “individual overcoming” 🙏
September 28, 2025 at 7:32 AM
I have fairly mild long COVID and what that means in practice is that I can work but have no ability to socialise, I can do 5000 steps but have to come home with crushing fatigue and sleep for hours to recover, I volunteer for two hours a fortnight when I used to do volunteer work every day.
Reposted by Sam
The
@theguardian.com
today.
'Eventually, the NHS diagnosis came through: ME/CFS. This was frustrating. Milly had become unwell just after a global pandemic. Occam’s razor – the principle that the simplest explanation is probably the correct one – suggested she had Long Covid.
#LongCovidKids
@theguardian.com
today.
'Eventually, the NHS diagnosis came through: ME/CFS. This was frustrating. Milly had become unwell just after a global pandemic. Occam’s razor – the principle that the simplest explanation is probably the correct one – suggested she had Long Covid.
#LongCovidKids
September 28, 2025 at 9:43 AM
The
@theguardian.com
today.
'Eventually, the NHS diagnosis came through: ME/CFS. This was frustrating. Milly had become unwell just after a global pandemic. Occam’s razor – the principle that the simplest explanation is probably the correct one – suggested she had Long Covid.
#LongCovidKids
@theguardian.com
today.
'Eventually, the NHS diagnosis came through: ME/CFS. This was frustrating. Milly had become unwell just after a global pandemic. Occam’s razor – the principle that the simplest explanation is probably the correct one – suggested she had Long Covid.
#LongCovidKids
Reposted by Sam
Seems obvious that @greenparty.org.uk should be signing this global pledge for healthy indoor air. A natural extension of their work on #EllasLaw and their excellent #Covid19 & #LongCovid policy.
@nataliegreenpeer.bsky.social @sianberry.bsky.social @zackpolanski.bsky.social @bluelumin.bsky.social
@nataliegreenpeer.bsky.social @sianberry.bsky.social @zackpolanski.bsky.social @bluelumin.bsky.social
Hi @nataliegreenpeer.bsky.social - would you please consider signing this pledge arising out of the recent inaugural High-Level Side Event on Healthy Indoor Air, taking place on the margins of the UN General Assembly?
www.airclub.org
www.airclub.org
www.airclub.org
www.airclub.org
Air Club
A global coalition aspiring towards healthy indoor air.
www.airclub.org
September 28, 2025 at 9:51 AM
Seems obvious that @greenparty.org.uk should be signing this global pledge for healthy indoor air. A natural extension of their work on #EllasLaw and their excellent #Covid19 & #LongCovid policy.
@nataliegreenpeer.bsky.social @sianberry.bsky.social @zackpolanski.bsky.social @bluelumin.bsky.social
@nataliegreenpeer.bsky.social @sianberry.bsky.social @zackpolanski.bsky.social @bluelumin.bsky.social
@binitakane.bsky.social Hi Binita, what would be involved in coming to see you as a patient?
September 28, 2025 at 11:34 AM
@binitakane.bsky.social Hi Binita, what would be involved in coming to see you as a patient?