MonzaMayhem
@monzamayhem.bsky.social
Mother of child with ME/CFS; trying to create a life for him while waiting for answers from medical research. My oldest is a wildland firefighter. I post primarily about public health, ME/CFS, Long Covid, and wildland firefighting.
Pinned
MonzaMayhem
@monzamayhem.bsky.social
· May 11
batemanhornecenter.org
Excellent new Clinical Care Guide for managing ME/CFS and Long Covid from Bateman Horne Center.
@batemanhornecenter.bsky.social
#ME/CFS #pwME #LongCovid
batemanhornecenter.org/wp-content/u...
@batemanhornecenter.bsky.social
#ME/CFS #pwME #LongCovid
batemanhornecenter.org/wp-content/u...
Very sad what’s happening in Thailand. Thankful Happy Doggo @niallharbison.bsky.social can help.
youtu.be/MCP7BwKIvnA?...
youtu.be/MCP7BwKIvnA?...
Emergency Response: Delivering Lifesaving Aid to Flood Stranded Dogs in Thailand
YouTube video by Happy Doggo
youtu.be
November 26, 2025 at 9:51 PM
Very sad what’s happening in Thailand. Thankful Happy Doggo @niallharbison.bsky.social can help.
youtu.be/MCP7BwKIvnA?...
youtu.be/MCP7BwKIvnA?...
Reposted by MonzaMayhem
5 years ago I started a team competition on Twitter to raise $ to fight hunger.
@tmprowell.bsky.social gave us a hashtag & much needed organization
Our team of teen volunteers work wonders in the background & we’ve raised >$3.1 million!
Competition starts tomorrow, join us?
HCWvsHunger.org
@tmprowell.bsky.social gave us a hashtag & much needed organization
Our team of teen volunteers work wonders in the background & we’ve raised >$3.1 million!
Competition starts tomorrow, join us?
HCWvsHunger.org
Healthcare Workers vs Hunger
Healthcare workers vs Hunger is an annual friendly competition between teams of healthcare workers to help relieve food insecurity.
HCWvsHunger.org
November 26, 2025 at 7:55 PM
5 years ago I started a team competition on Twitter to raise $ to fight hunger.
@tmprowell.bsky.social gave us a hashtag & much needed organization
Our team of teen volunteers work wonders in the background & we’ve raised >$3.1 million!
Competition starts tomorrow, join us?
HCWvsHunger.org
@tmprowell.bsky.social gave us a hashtag & much needed organization
Our team of teen volunteers work wonders in the background & we’ve raised >$3.1 million!
Competition starts tomorrow, join us?
HCWvsHunger.org
Reposted by MonzaMayhem
Data analyzed by the advocacy group Grassroots Wildland Firefighters shows that prescribed fires and other hazardous fuel reduction efforts have fallen by nearly 40% across the West this year.
Prescribed fire, other hazardous fuel projects declined significantly in 2025, advocates warn
Data analyzed by the advocacy group Grassroots Wildland Firefighters shows that prescribed fires and other hazardous fuel reduction efforts have fallen by nearly 40% across the West this year.
www.kjzz.org
November 19, 2025 at 4:05 PM
Data analyzed by the advocacy group Grassroots Wildland Firefighters shows that prescribed fires and other hazardous fuel reduction efforts have fallen by nearly 40% across the West this year.
Reposted by MonzaMayhem
We found that 11 of Trump’s DOT appointees disclosed between $12 million and $52 million in stock holdings and other financial interests in airlines, railroads, oil and gas corporations, transportation technology firms and other related businesses.
By @jessecoburn.bsky.social
By @jessecoburn.bsky.social
How Trump’s Transportation Department Is Loosening Safety Rules Meant to Protect the Public
ProPublica has identified dozens of instances in which the Trump administration’s DOT has moved to cut, soften or delay safety regulations for cars, trucks, planes, trains and even oil pipelines. Expe...
www.propublica.org
November 25, 2025 at 3:00 AM
We found that 11 of Trump’s DOT appointees disclosed between $12 million and $52 million in stock holdings and other financial interests in airlines, railroads, oil and gas corporations, transportation technology firms and other related businesses.
By @jessecoburn.bsky.social
By @jessecoburn.bsky.social
Early Signs Point to a Harsh Flu Season in the U.S. www.nytimes.com/2025/11/19/h...
Early Signs Point to a Harsh Flu Season in the U.S.
www.nytimes.com
November 25, 2025 at 3:52 AM
Early Signs Point to a Harsh Flu Season in the U.S. www.nytimes.com/2025/11/19/h...
Reposted by MonzaMayhem
This is an excellent piece on PEM by @darthfoo.bsky.social. Seriously considering sending to literally everyone I know.
substack.com/home/post/p-...
substack.com/home/post/p-...
Why I Can’t Just Meet You for Dinner
The Reality of Post-Exertional Malaise
substack.com
November 23, 2025 at 6:23 PM
This is an excellent piece on PEM by @darthfoo.bsky.social. Seriously considering sending to literally everyone I know.
substack.com/home/post/p-...
substack.com/home/post/p-...
If you’re on Medicare Advantage through United Healthcare, you may be dropped from your plan.
pennygem.ruckusfactory.com/unitedhealth...
pennygem.ruckusfactory.com/unitedhealth...
UnitedHealth Cuts 1 Million Seniors in Largest Medicare Purge in 20 Years - Ruckus Factory
A single email can upend a senior’s sense of security. For more than a million Medicare Advantage members, that moment arrived this fall when UnitedHealth Group, the nation’s largest health insurer, a...
pennygem.ruckusfactory.com
November 25, 2025 at 3:21 AM
If you’re on Medicare Advantage through United Healthcare, you may be dropped from your plan.
pennygem.ruckusfactory.com/unitedhealth...
pennygem.ruckusfactory.com/unitedhealth...
Reposted by MonzaMayhem
#pwME #LongCovidME please help Rob Wüst with establishing a clincial definition of #PEM.
"= Minimum age of 18 years
= Physician-confirmed diagnosis of ME/CFS
= Ability to read and answer the questionnaire in German or English
= Voluntary consent to participate"
www.soscisurvey.de/V-PEM-AQ_eng...
"= Minimum age of 18 years
= Physician-confirmed diagnosis of ME/CFS
= Ability to read and answer the questionnaire in German or English
= Voluntary consent to participate"
www.soscisurvey.de/V-PEM-AQ_eng...
Questionnaire | page 1
www.soscisurvey.de
November 22, 2025 at 8:36 AM
#pwME #LongCovidME please help Rob Wüst with establishing a clincial definition of #PEM.
"= Minimum age of 18 years
= Physician-confirmed diagnosis of ME/CFS
= Ability to read and answer the questionnaire in German or English
= Voluntary consent to participate"
www.soscisurvey.de/V-PEM-AQ_eng...
"= Minimum age of 18 years
= Physician-confirmed diagnosis of ME/CFS
= Ability to read and answer the questionnaire in German or English
= Voluntary consent to participate"
www.soscisurvey.de/V-PEM-AQ_eng...
Reposted by MonzaMayhem
To be clear, all MAHA has accomplished is putting cane sugar into Coke and removing red food dye.
They’ve also destroyed the CDC and public confidence in vaccines.
They claim to want “healthy living” yet we’re getting forever chemicals in our food.
It was never about health.
They’ve also destroyed the CDC and public confidence in vaccines.
They claim to want “healthy living” yet we’re getting forever chemicals in our food.
It was never about health.
EPA just approved new ‘forever chemical’ pesticides for use on food
Critics warn the EPA’s approvals of new PFAS pesticides could expose more Americans to “forever chemicals” through their food.
www.washingtonpost.com
November 24, 2025 at 9:49 PM
To be clear, all MAHA has accomplished is putting cane sugar into Coke and removing red food dye.
They’ve also destroyed the CDC and public confidence in vaccines.
They claim to want “healthy living” yet we’re getting forever chemicals in our food.
It was never about health.
They’ve also destroyed the CDC and public confidence in vaccines.
They claim to want “healthy living” yet we’re getting forever chemicals in our food.
It was never about health.
Reposted by MonzaMayhem
We are thrilled to now be on BlueSky!
We prioritize studies addressing critical health challenges—from major diseases to health equity—that bridge scientific rigor with real-world impact, connecting researchers, clinicians, and policymakers to advance global health 🧬🧪
#OpenScience #MedSky
We prioritize studies addressing critical health challenges—from major diseases to health equity—that bridge scientific rigor with real-world impact, connecting researchers, clinicians, and policymakers to advance global health 🧬🧪
#OpenScience #MedSky
November 20, 2025 at 2:31 PM
We are thrilled to now be on BlueSky!
We prioritize studies addressing critical health challenges—from major diseases to health equity—that bridge scientific rigor with real-world impact, connecting researchers, clinicians, and policymakers to advance global health 🧬🧪
#OpenScience #MedSky
We prioritize studies addressing critical health challenges—from major diseases to health equity—that bridge scientific rigor with real-world impact, connecting researchers, clinicians, and policymakers to advance global health 🧬🧪
#OpenScience #MedSky
Reposted by MonzaMayhem
We always see a surge of infectious disease, including COVID, RSV, etc etc around Thanksgiving and Christmas. Unless you want to gift your fam with a few weeks sick this year, mask up as you travel!
November 24, 2025 at 12:24 AM
We always see a surge of infectious disease, including COVID, RSV, etc etc around Thanksgiving and Christmas. Unless you want to gift your fam with a few weeks sick this year, mask up as you travel!
Reposted by MonzaMayhem
When NIH would decide not to fund a high-scoring grant, it used to have to explain why. The regime has now ordered it to stop providing reasoning for rejecting high-scoring proposals.
This is concerning.
NIH is changing their policy so that staff have to prepare justification for every application that is funded BUT NO DOCUMENTATION FOR APPLICATIONS THAT ARE SKIPPED (BASED ON PERCENTILES).
1/2
NIH is changing their policy so that staff have to prepare justification for every application that is funded BUT NO DOCUMENTATION FOR APPLICATIONS THAT ARE SKIPPED (BASED ON PERCENTILES).
1/2
November 24, 2025 at 12:46 AM
When NIH would decide not to fund a high-scoring grant, it used to have to explain why. The regime has now ordered it to stop providing reasoning for rejecting high-scoring proposals.
Reposted by MonzaMayhem
"Hi my name is Marcie, I am nearly 12 years old, I was diagnosed with Long Covid last year but I have been having symptoms since 2021"
www.youtube.com/watch?v=9817...
#ChildHealth #LongCovidKids #LongCovid
www.youtube.com/watch?v=9817...
#ChildHealth #LongCovidKids #LongCovid
Marcie's Story | Long Covid & Me | Understanding Long Covid In Children And Young People
YouTube video by Long Covid Kids
www.youtube.com
November 23, 2025 at 8:39 PM
"Hi my name is Marcie, I am nearly 12 years old, I was diagnosed with Long Covid last year but I have been having symptoms since 2021"
www.youtube.com/watch?v=9817...
#ChildHealth #LongCovidKids #LongCovid
www.youtube.com/watch?v=9817...
#ChildHealth #LongCovidKids #LongCovid
Reposted by MonzaMayhem
The rationale behind these studies, Seltzer contests, is [that] “it presumes that the patient had never heard of exercise until a doctor told them [it] exists.”
Thanks to Simon Spichak for putting this idea into print. I've said multiple times in interviews that it's the strangest part... 🧵
Thanks to Simon Spichak for putting this idea into print. I've said multiple times in interviews that it's the strangest part... 🧵
“People who are performing these studies are extraordinarily ignorant, and their ignorance is dangerous,” said @exceedhergrasp1.bsky.social. She and other experts agree these trials are a waste of $$ and will not advance our biological understanding of Long COVID. thesicktimes.org/2025/11/21/l...
Less than 20% of Long COVID trials involving exercise even mention post-exertional malaise - The Sick Times
An analysis by The Sick Times find that less than 15% of Long COVID clinical trials testing the benefits of exercise or cardiopulmonary rehabilitation measured post-exertional malaise, according to th...
thesicktimes.org
November 21, 2025 at 3:56 PM
The rationale behind these studies, Seltzer contests, is [that] “it presumes that the patient had never heard of exercise until a doctor told them [it] exists.”
Thanks to Simon Spichak for putting this idea into print. I've said multiple times in interviews that it's the strangest part... 🧵
Thanks to Simon Spichak for putting this idea into print. I've said multiple times in interviews that it's the strangest part... 🧵
Reposted by MonzaMayhem
So 7 Hlth Dept is involved with a new initiative called Grandparents for Vaccines to tout the benefits of vaccines to ease the concerns about them, mostly through misinformation.
Please share our message; it's more important than ever!
www.wsiu.org/community-up...
Please share our message; it's more important than ever!
www.wsiu.org/community-up...
Southern Seven Health Dept. joins an effort to boost vaccination numbers
Southern Seven Health Department is involved with a new initiative called Grandparents for Vaccines.
www.wsiu.org
November 22, 2025 at 8:57 PM
So 7 Hlth Dept is involved with a new initiative called Grandparents for Vaccines to tout the benefits of vaccines to ease the concerns about them, mostly through misinformation.
Please share our message; it's more important than ever!
www.wsiu.org/community-up...
Please share our message; it's more important than ever!
www.wsiu.org/community-up...
Best video I’ve seen on the farm crisis and the case for breaking up monopolies.
youtu.be/cl02K72QFS0?...
youtu.be/cl02K72QFS0?...
We Went to Arkansas. The Farm Crisis Will Shock You
YouTube video by More Perfect Union
youtu.be
November 23, 2025 at 2:44 AM
Best video I’ve seen on the farm crisis and the case for breaking up monopolies.
youtu.be/cl02K72QFS0?...
youtu.be/cl02K72QFS0?...
Reposted by MonzaMayhem
Pregnancy and Cøvid aren't good companions.
@atranscendedman.bsky.social 🙏🏻
www.nature.com/articles/s41...
@atranscendedman.bsky.social 🙏🏻
www.nature.com/articles/s41...
Presence of SARS-CoV-2 in fetal organs via intraamniotic infection - Nature Communications
Infection with SARS-CoV-2 during pregnancy may result in maternal and fetal complications. Here, the authors analyze 18 fetuses following maternal SARS-CoV-2 infection and identify distribution in fet...
www.nature.com
November 21, 2025 at 9:14 PM
Pregnancy and Cøvid aren't good companions.
@atranscendedman.bsky.social 🙏🏻
www.nature.com/articles/s41...
@atranscendedman.bsky.social 🙏🏻
www.nature.com/articles/s41...
Reposted by MonzaMayhem
This was the H5N5 patient.
"Public health officials are continuing to monitor anyone who was in contact with the patient — including more than 100 health care workers — for symptoms to ensure that human-to-human spread has not occurred."
www.washingtonpost.com/health/2025/...
"Public health officials are continuing to monitor anyone who was in contact with the patient — including more than 100 health care workers — for symptoms to ensure that human-to-human spread has not occurred."
www.washingtonpost.com/health/2025/...
Bird flu patient dies, marking second U.S. fatality in 2025
The Washington state resident, an older adult with underlying conditions, was infected with a strain that has previously been reported in animals but never before in humans.
www.washingtonpost.com
November 22, 2025 at 6:46 AM
This was the H5N5 patient.
"Public health officials are continuing to monitor anyone who was in contact with the patient — including more than 100 health care workers — for symptoms to ensure that human-to-human spread has not occurred."
www.washingtonpost.com/health/2025/...
"Public health officials are continuing to monitor anyone who was in contact with the patient — including more than 100 health care workers — for symptoms to ensure that human-to-human spread has not occurred."
www.washingtonpost.com/health/2025/...
Reposted by MonzaMayhem
Link to the BBC article.
www.bbc.co.uk/news/article...
www.bbc.co.uk/news/article...
Somerset family struggling as three members have ME
Julie Heath's husband and two children now all have the syndrome, which can cause chronic fatigue.
www.bbc.co.uk
November 22, 2025 at 8:07 AM
Link to the BBC article.
www.bbc.co.uk/news/article...
www.bbc.co.uk/news/article...
Reposted by MonzaMayhem
We are getting ever closer to the threat of another Pandemjc and with RFK in charge I dread to think what could happen. This is a very good time to be reconsidering wearing an ffp2/3. COVID can also vascular damage and even vaccinated you can still suffer long covid. We need layered mitigations. 🧵
This was the H5N5 patient.
"Public health officials are continuing to monitor anyone who was in contact with the patient — including more than 100 health care workers — for symptoms to ensure that human-to-human spread has not occurred."
www.washingtonpost.com/health/2025/...
"Public health officials are continuing to monitor anyone who was in contact with the patient — including more than 100 health care workers — for symptoms to ensure that human-to-human spread has not occurred."
www.washingtonpost.com/health/2025/...
Bird flu patient dies, marking second U.S. fatality in 2025
The Washington state resident, an older adult with underlying conditions, was infected with a strain that has previously been reported in animals but never before in humans.
www.washingtonpost.com
November 22, 2025 at 8:09 AM
We are getting ever closer to the threat of another Pandemjc and with RFK in charge I dread to think what could happen. This is a very good time to be reconsidering wearing an ffp2/3. COVID can also vascular damage and even vaccinated you can still suffer long covid. We need layered mitigations. 🧵
Reposted by MonzaMayhem
People with #MECFS, and many with #LongCOVID experience post-exertional malaise: a flare of symptoms after activity. The response is disproportionate to the activity and can lead to permanent drops in functional capacity.
www.mayoclinicproceedings.org/article/s0025-6196(23)00402-0/fulltext
www.mayoclinicproceedings.org/article/s0025-6196(23)00402-0/fulltext
Diagnosis and Management of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a chronic neurologic
disease often preceded by infection. There has been increased interest in ME/CFS recently
because of its significant...
www.mayoclinicproceedings.org
November 21, 2025 at 3:56 PM
People with #MECFS, and many with #LongCOVID experience post-exertional malaise: a flare of symptoms after activity. The response is disproportionate to the activity and can lead to permanent drops in functional capacity.
www.mayoclinicproceedings.org/article/s0025-6196(23)00402-0/fulltext
www.mayoclinicproceedings.org/article/s0025-6196(23)00402-0/fulltext