@hopesaxons.bsky.social
Reposted
#PansPandasHour
For something that some medics call "controversial" there are far too many of the same "controversial" stories all over the world. We know our own children, when we say they have changed, medics need to start listening. #Pans #Pandas #CYP
www.fox26houston.com/video/1543734
For something that some medics call "controversial" there are far too many of the same "controversial" stories all over the world. We know our own children, when we say they have changed, medics need to start listening. #Pans #Pandas #CYP
www.fox26houston.com/video/1543734
Family shares story of misdiagnosed PANS disease
We're sharing the story of the Wilkerson family whose son got misdiagnosed, which happens often with the autoimmune disorders, PANS and PANDAS.
www.fox26houston.com
November 7, 2024 at 10:10 AM
#PansPandasHour
For something that some medics call "controversial" there are far too many of the same "controversial" stories all over the world. We know our own children, when we say they have changed, medics need to start listening. #Pans #Pandas #CYP
www.fox26houston.com/video/1543734
For something that some medics call "controversial" there are far too many of the same "controversial" stories all over the world. We know our own children, when we say they have changed, medics need to start listening. #Pans #Pandas #CYP
www.fox26houston.com/video/1543734
Reposted
Open letter from PANS PANDAS UK to new Health Minister Wes Streeting. Families suffering #Pans #Pandas have long advocated for change. Needs to be an end to the prolonged suffering that currently occurs due 2 lack of recognition, education, diagnosis, treatment & support. Not rare, rarely diagnosed!
September 12, 2024 at 10:23 AM
Open letter from PANS PANDAS UK to new Health Minister Wes Streeting. Families suffering #Pans #Pandas have long advocated for change. Needs to be an end to the prolonged suffering that currently occurs due 2 lack of recognition, education, diagnosis, treatment & support. Not rare, rarely diagnosed!
Reposted
Once again for the people in the back:
The dichotomy between "mental health" and physical health is false. Mental illness *is* physical health.
The dichotomy between "mental health" and physical health is false. Mental illness *is* physical health.
September 25, 2023 at 4:52 PM
Once again for the people in the back:
The dichotomy between "mental health" and physical health is false. Mental illness *is* physical health.
The dichotomy between "mental health" and physical health is false. Mental illness *is* physical health.
Reposted
#Edusky Free CPD accreddited #PANS #PANDAS training available tonight run by SEND specialists. Sign up using the following link. t.co/k59PvCuI2j
November 11, 2024 at 1:39 PM
#Edusky Free CPD accreddited #PANS #PANDAS training available tonight run by SEND specialists. Sign up using the following link. t.co/k59PvCuI2j
Reposted
Gillian from PANS PANDAS UK shares a little more about what she'll cover at our CPD event on December 2nd.
Discounts available for trainees, students and group bookings.
More information and booking link here: bit.ly/edpsy-pans-p...
#edpsychs #edusky #PANS #PANDAS
Discounts available for trainees, students and group bookings.
More information and booking link here: bit.ly/edpsy-pans-p...
#edpsychs #edusky #PANS #PANDAS
October 28, 2024 at 4:17 PM
Gillian from PANS PANDAS UK shares a little more about what she'll cover at our CPD event on December 2nd.
Discounts available for trainees, students and group bookings.
More information and booking link here: bit.ly/edpsy-pans-p...
#edpsychs #edusky #PANS #PANDAS
Discounts available for trainees, students and group bookings.
More information and booking link here: bit.ly/edpsy-pans-p...
#edpsychs #edusky #PANS #PANDAS
Reposted
yeah I was gonna say, rates of diagnosis are probably very unrelated to prevalence right now. Only one clinic I even know of to send kids to with PANS/PANDAS
August 1, 2024 at 7:25 PM
yeah I was gonna say, rates of diagnosis are probably very unrelated to prevalence right now. Only one clinic I even know of to send kids to with PANS/PANDAS
Reposted
Followed all hoping to see the PANDAS/PANS subgroup getting started here
November 12, 2024 at 9:42 PM
Followed all hoping to see the PANDAS/PANS subgroup getting started here
Reposted
Research from Univ of Oklahoma have found that children with PANDAS/PANS with tics/OCD have autoantibodies targeting dopamine receptor 1 (D1R).
Also that those with Sydenham chorea (whiplash-like movements) have autoantibodies targeting dopamine receptor 2 (D2R).
insight.jci.org/articles/vie...
Also that those with Sydenham chorea (whiplash-like movements) have autoantibodies targeting dopamine receptor 2 (D2R).
insight.jci.org/articles/vie...
JCI Insight -
Dopamine receptor autoantibody signaling in infectious sequelae differentiates movement versus neuropsychiatric disorders
insight.jci.org
November 15, 2024 at 2:01 PM
Research from Univ of Oklahoma have found that children with PANDAS/PANS with tics/OCD have autoantibodies targeting dopamine receptor 1 (D1R).
Also that those with Sydenham chorea (whiplash-like movements) have autoantibodies targeting dopamine receptor 2 (D2R).
insight.jci.org/articles/vie...
Also that those with Sydenham chorea (whiplash-like movements) have autoantibodies targeting dopamine receptor 2 (D2R).
insight.jci.org/articles/vie...
Reposted
From mountain hiking, OCR, open water swimming, gym, getting up at 5am to get into the office for 7am on a Sunday (the day after returning home from holiday) because I loved my work so much to … barely functioning. Don’t ever think it can’t happen to you 😷
November 10, 2024 at 8:23 AM
From mountain hiking, OCR, open water swimming, gym, getting up at 5am to get into the office for 7am on a Sunday (the day after returning home from holiday) because I loved my work so much to … barely functioning. Don’t ever think it can’t happen to you 😷
Reposted
It's actually broken my heart what has happened to Twitter. When I got reinfected with Covid in March 2022, coming on Twitter became the only thing I could manage to do.
It's the only place I have ever felt remotely seen or understood as either an autistic person or someone with #LongCovid.
It's the only place I have ever felt remotely seen or understood as either an autistic person or someone with #LongCovid.
November 15, 2024 at 9:47 AM
It's actually broken my heart what has happened to Twitter. When I got reinfected with Covid in March 2022, coming on Twitter became the only thing I could manage to do.
It's the only place I have ever felt remotely seen or understood as either an autistic person or someone with #LongCovid.
It's the only place I have ever felt remotely seen or understood as either an autistic person or someone with #LongCovid.
Reposted
When I was about 20 years into my CFS journey, I went to an infectious disease specialist to check for tick-borne infections. The tests came back negative, and he told me that I should see a psychiatrist.
November 14, 2024 at 12:28 PM
When I was about 20 years into my CFS journey, I went to an infectious disease specialist to check for tick-borne infections. The tests came back negative, and he told me that I should see a psychiatrist.
Reposted
…
This story is also part of a growing body of evidence that suggests auto-immunity drives some psychiatric conditions in adults including covid psychosis and some schizophrenia. Also worth reading this incredible recent story in @washingtonpost for context
www.washingtonpost.com/wellness/202...
This story is also part of a growing body of evidence that suggests auto-immunity drives some psychiatric conditions in adults including covid psychosis and some schizophrenia. Also worth reading this incredible recent story in @washingtonpost for context
www.washingtonpost.com/wellness/202...
A catatonic woman awakened after 20 years. Her story may change psychiatry.
New research suggests that a subset of patients with psychiatric conditions like schizophrenia may actually have autoimmune disease that attacks the brain.
www.washingtonpost.com
September 21, 2023 at 10:08 PM
…
This story is also part of a growing body of evidence that suggests auto-immunity drives some psychiatric conditions in adults including covid psychosis and some schizophrenia. Also worth reading this incredible recent story in @washingtonpost for context
www.washingtonpost.com/wellness/202...
This story is also part of a growing body of evidence that suggests auto-immunity drives some psychiatric conditions in adults including covid psychosis and some schizophrenia. Also worth reading this incredible recent story in @washingtonpost for context
www.washingtonpost.com/wellness/202...
Reposted
There is no cure for Long Covid.
Repeat infections raise your risk of developing Long Covid.
If you have Long Covid, repeat infections put you at risk of worsened Long Covid.
Repeat infections raise your risk of developing Long Covid.
If you have Long Covid, repeat infections put you at risk of worsened Long Covid.
November 14, 2024 at 5:07 PM
There is no cure for Long Covid.
Repeat infections raise your risk of developing Long Covid.
If you have Long Covid, repeat infections put you at risk of worsened Long Covid.
Repeat infections raise your risk of developing Long Covid.
If you have Long Covid, repeat infections put you at risk of worsened Long Covid.
Reposted
First Long COVID paper accepted for publication!
November 14, 2024 at 8:26 AM
First Long COVID paper accepted for publication!
Reposted
#PansPandasHour on Thursdays 8pm join us to raise awareness of the devastation #pans #pandas can bring to children. Awareness & early treatment can prevent this devastation. Untreated can lead to children being misdiagnosed with various disorders as brain inflammation spirals. 🧠🦠
September 6, 2024 at 9:46 AM
#PansPandasHour on Thursdays 8pm join us to raise awareness of the devastation #pans #pandas can bring to children. Awareness & early treatment can prevent this devastation. Untreated can lead to children being misdiagnosed with various disorders as brain inflammation spirals. 🧠🦠
Reposted
In January 2022, Fleur, contracted Covid-19, leading to serious neuro-psychiatric problems such as hallucinations.
Fleur, now 16, hasn't been able to return to school full-time since.
Please see PANS PANDAS U.K. for more info
#LongCovidKids #PANS #LongCovid
www.dailymail.co.uk/health/artic...
Fleur, now 16, hasn't been able to return to school full-time since.
Please see PANS PANDAS U.K. for more info
#LongCovidKids #PANS #LongCovid
www.dailymail.co.uk/health/artic...
How common viruses can make the body attack the brain
Two years ago Fleur Senior, then 14, was considered by her teachers to be on course to read maths at Oxford University.
www.dailymail.co.uk
November 21, 2023 at 7:36 AM
In January 2022, Fleur, contracted Covid-19, leading to serious neuro-psychiatric problems such as hallucinations.
Fleur, now 16, hasn't been able to return to school full-time since.
Please see PANS PANDAS U.K. for more info
#LongCovidKids #PANS #LongCovid
www.dailymail.co.uk/health/artic...
Fleur, now 16, hasn't been able to return to school full-time since.
Please see PANS PANDAS U.K. for more info
#LongCovidKids #PANS #LongCovid
www.dailymail.co.uk/health/artic...
Reposted
Natascha Loder:
Lack of recognition of PANDAS/PANS is a problem internationaly.
A new piece by me describes the growing consensus that the condition seems to be driven by an autoimmune reaction that targets regions of the brain
www.economist.com/science-and-...
Lack of recognition of PANDAS/PANS is a problem internationaly.
A new piece by me describes the growing consensus that the condition seems to be driven by an autoimmune reaction that targets regions of the brain
www.economist.com/science-and-...
How common infections can spark psychiatric illnesses in children
And why many doctors do not realise it
www.economist.com
September 21, 2023 at 10:02 PM
Natascha Loder:
Lack of recognition of PANDAS/PANS is a problem internationaly.
A new piece by me describes the growing consensus that the condition seems to be driven by an autoimmune reaction that targets regions of the brain
www.economist.com/science-and-...
Lack of recognition of PANDAS/PANS is a problem internationaly.
A new piece by me describes the growing consensus that the condition seems to be driven by an autoimmune reaction that targets regions of the brain
www.economist.com/science-and-...
Reposted
PANS and PANDAS exist. And #SARS2 can cause PANS. If you don't know what that is, look it up. And think about that happening to your child. Protect your kids. Please.
December 6, 2023 at 9:00 PM
PANS and PANDAS exist. And #SARS2 can cause PANS. If you don't know what that is, look it up. And think about that happening to your child. Protect your kids. Please.
Reposted
Reposted
www.rcemlearning.co.uk/foamed/tonsi... #RCEM #EmergencyMedicine #Tonsillitis #Tics #Pans #Pandas #PansPandasHour
Tonsillitis? With you in a tic… Neuropsychiatric Sequelae of Group A Streptococcal Infection - RCEMLearning
With potential to wreak systemic havoc for years following initial infection, Group A beta-haemolytic Streptococcus pyogenes (or, far more conveniently, ‘GAS’) are organisms truly worthy of our inner ...
www.rcemlearning.co.uk
September 6, 2024 at 11:06 AM
Reposted
Ever wonder how a child could get misdiagnosed? Far too many familiar stories. Read up on #pans #pandas #camhs #paediatrics #NHS #HSE
www.devonlive.com/news/devon-n...
www.devonlive.com/news/devon-n...
Devon schoolgirl misdiagnosed after shocking personality change
A nine-year-old Devon girl went from being normal and happy to experiencing extreme anxiety, panic attacks, phobias and psychosis
www.devonlive.com
August 11, 2024 at 7:09 PM
Ever wonder how a child could get misdiagnosed? Far too many familiar stories. Read up on #pans #pandas #camhs #paediatrics #NHS #HSE
www.devonlive.com/news/devon-n...
www.devonlive.com/news/devon-n...
Reposted
Article in The Times on #pandas #pans devastating sudden onset symptoms triggered by virus or infection. Our children are too important to misdiagnose. #strep #covid #ebv
archive.ph/2024.05.05-0...
archive.ph/2024.05.05-0...
archive.ph
August 11, 2024 at 7:06 PM