Marrok Sedgwick
@ms-pats-anmls.bsky.social
Learning scientist/ethnographic filmmaker. Rather be outside. I will pat any animal that likes pats. Wildlife rehab and HQHVSN volunteer. WFR. Creative writing on the side! Opinions my own.
Reposted by Marrok Sedgwick
Please avoid the label #ProfoundAutism, as "There is a clear risk that 'Profound Autism' will lead to clinical and research confusion." Instead, we need to describe autistic people's support needs individually, to ensure they get the right accommodations.
thinkingautismguide.com/2023/09/grav...
thinkingautismguide.com/2023/09/grav...
December 8, 2025 at 5:30 PM
Please avoid the label #ProfoundAutism, as "There is a clear risk that 'Profound Autism' will lead to clinical and research confusion." Instead, we need to describe autistic people's support needs individually, to ensure they get the right accommodations.
thinkingautismguide.com/2023/09/grav...
thinkingautismguide.com/2023/09/grav...
Reposted by Marrok Sedgwick
We're half a decade into studies finding that improving airflow in classrooms will reduce disease transmission enormously, and that bleaching surfaces etc. does very little. And yet nothing changes. Waves of flu and colds wash over schools, and the schools pretend it's an act of God.
The relative contribution of close-proximity contacts, shared classroom exposure and indoor air quality to respiratory virus transmission in schools - Nature Communications
The relative importance of close-proximity interactions, shared space and air quality to the transmission of respiratory viruses is not well understood. Here, the authors investigate this question by ...
www.nature.com
December 8, 2025 at 4:23 AM
We're half a decade into studies finding that improving airflow in classrooms will reduce disease transmission enormously, and that bleaching surfaces etc. does very little. And yet nothing changes. Waves of flu and colds wash over schools, and the schools pretend it's an act of God.
Reposted by Marrok Sedgwick
What I always hear: “We can’t afford to pay our workers more than $15 an hour.”
What I never hear: “We can’t afford to pay our CEO millions of dollars a year.”
Funny how that works.
What I never hear: “We can’t afford to pay our CEO millions of dollars a year.”
Funny how that works.
December 7, 2025 at 10:01 PM
What I always hear: “We can’t afford to pay our workers more than $15 an hour.”
What I never hear: “We can’t afford to pay our CEO millions of dollars a year.”
Funny how that works.
What I never hear: “We can’t afford to pay our CEO millions of dollars a year.”
Funny how that works.
Reposted by Marrok Sedgwick
Our Board Member Toby Latham successfully advocated with the Virginia legislature to require educators to be trained to support each individual student’s unique #AAC-related needs before the school year starts! The VDOE released this 2-pager to explain the new law: lnk.to/vdoe.
[Image: A…
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[Image: A…
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![[Image: A selfie of Toby Latham, his wife Lindsay, and their young son who is an AAC user. With the U.S. Capitol and clear blue skies in the background, the three of them smile widely.]](https://cdn.bsky.app/img/feed_thumbnail/plain/did:plc:rttsf4zrtbea47kiv56ec4vb/bafkreid4y4ldsctn2rahbh5gxrza4ydcojiykzt3fvafjri4rdqownxdoi@jpeg)
December 7, 2025 at 11:53 PM
Our Board Member Toby Latham successfully advocated with the Virginia legislature to require educators to be trained to support each individual student’s unique #AAC-related needs before the school year starts! The VDOE released this 2-pager to explain the new law: lnk.to/vdoe.
[Image: A…
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[Image: A…
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Reposted by Marrok Sedgwick
Somebody somewhere
Needs flowers tonight
Needs flowers tonight
November 28, 2025 at 5:28 AM
Somebody somewhere
Needs flowers tonight
Needs flowers tonight
Vaccines do not cause autism.
Acetaminophen doesn’t cause autism.
Autism is a natural part of human diversity determined by genetics.
Autism also is not the boogie man. Autistic people are people not monsters.
Acetaminophen doesn’t cause autism.
Autism is a natural part of human diversity determined by genetics.
Autism also is not the boogie man. Autistic people are people not monsters.
November 27, 2025 at 3:56 PM
Vaccines do not cause autism.
Acetaminophen doesn’t cause autism.
Autism is a natural part of human diversity determined by genetics.
Autism also is not the boogie man. Autistic people are people not monsters.
Acetaminophen doesn’t cause autism.
Autism is a natural part of human diversity determined by genetics.
Autism also is not the boogie man. Autistic people are people not monsters.
Finally got to reading my copy of #TheSerpentCalledMercy by @roannelau.bsky.social and OMFG most lovely monsters I’ve read/seen in a long time.
November 27, 2025 at 5:04 AM
Finally got to reading my copy of #TheSerpentCalledMercy by @roannelau.bsky.social and OMFG most lovely monsters I’ve read/seen in a long time.
Reposted by Marrok Sedgwick
Though the CDC website now states: “‘vaccines do not cause autism. This is not an evidence-based claim,” This is false. Nearly 3 decades of scientific research has repeatedly confirmed there is no causal link between vaccines & autism.” By @autisticadvocacy.org:
autisticadvocacy.org/2025/11/lead...
autisticadvocacy.org/2025/11/lead...
Leading Autism and Disability Organizations Statement on CDC's Vaccines and Autism Page
As national organizations dedicated to advancing the well-being of autistic individuals and partners across the disability and public health sectors, we are deeply disappointed by the latest update to...
autisticadvocacy.org
November 26, 2025 at 4:06 AM
Though the CDC website now states: “‘vaccines do not cause autism. This is not an evidence-based claim,” This is false. Nearly 3 decades of scientific research has repeatedly confirmed there is no causal link between vaccines & autism.” By @autisticadvocacy.org:
autisticadvocacy.org/2025/11/lead...
autisticadvocacy.org/2025/11/lead...
Reposted by Marrok Sedgwick
Remember: "Don't let the bastards grind you down!"
November 15, 2025 at 9:25 AM
Remember: "Don't let the bastards grind you down!"
Reposted by Marrok Sedgwick
I don’t want to formulate words yet, but my friend Alice Wong, @sfdirewolf.bsky.social of the Disability Visibility Project, has passed.
Here are the words she left behind:
www.instagram.com/p/DREMDNBjnq...
Here are the words she left behind:
www.instagram.com/p/DREMDNBjnq...
Alice Wong on Instagram: "ID: Yellow background with black text "This is Alice's friend Sandy Ho, posting. Per Alice's wishes, this message is being shared at the time of her passing. Hi everyone, it ...
423 likes, 73 comments - alicatsamurai on November 14, 2025: "ID: Yellow background with black text "This is Alice's friend Sandy Ho, posting. Per Alice's wishes, this message is being shared at the t...
www.instagram.com
November 15, 2025 at 5:57 AM
I don’t want to formulate words yet, but my friend Alice Wong, @sfdirewolf.bsky.social of the Disability Visibility Project, has passed.
Here are the words she left behind:
www.instagram.com/p/DREMDNBjnq...
Here are the words she left behind:
www.instagram.com/p/DREMDNBjnq...
Reposted by Marrok Sedgwick
Welcome our new Director of Policy & Legal Advocacy, Sam Crane! Sam is a Harvard-trained lawyer with particular legal & policy experience in #CommunicationRights, long-term supports & services, & supported decision-making as an alternative to guardianship. lnk.to/crane
@samanticka.bsky.social
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@samanticka.bsky.social
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![[Image: A fair-skinned person with light brown, shoulder-length hair, and dark brown eyes sits looking at the camera with a slight smile. She is wearing glasses and a knitted shawl fastened by a clasp.]](https://cdn.bsky.app/img/feed_thumbnail/plain/did:plc:rttsf4zrtbea47kiv56ec4vb/bafkreiar35nve7emy5dc3rgqio67t4g5enf25kjib7mazr77yla7i2zefe@jpeg)
November 14, 2025 at 8:10 PM
Welcome our new Director of Policy & Legal Advocacy, Sam Crane! Sam is a Harvard-trained lawyer with particular legal & policy experience in #CommunicationRights, long-term supports & services, & supported decision-making as an alternative to guardianship. lnk.to/crane
@samanticka.bsky.social
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@samanticka.bsky.social
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Reposted by Marrok Sedgwick
me: *taps the sign*
the sign: When you are upset that your needs are not being met, it is not the fault of other marginalized or disenfranchised groups that are **also** not having their needs met, and if you decide to take it out on other people with needs, you are a jerk.
the sign: When you are upset that your needs are not being met, it is not the fault of other marginalized or disenfranchised groups that are **also** not having their needs met, and if you decide to take it out on other people with needs, you are a jerk.
November 14, 2025 at 12:51 AM
me: *taps the sign*
the sign: When you are upset that your needs are not being met, it is not the fault of other marginalized or disenfranchised groups that are **also** not having their needs met, and if you decide to take it out on other people with needs, you are a jerk.
the sign: When you are upset that your needs are not being met, it is not the fault of other marginalized or disenfranchised groups that are **also** not having their needs met, and if you decide to take it out on other people with needs, you are a jerk.
Reposted by Marrok Sedgwick
Alright, look, ideally Guillermo del Toro will make another aquatic monster romance. Personally, I feel we're overdue for one of those, but if he must remake classics, can we get that guy on Beauty and the Beast? I bet he could give us the ending we all deserve for that one.
November 9, 2025 at 10:04 PM
Alright, look, ideally Guillermo del Toro will make another aquatic monster romance. Personally, I feel we're overdue for one of those, but if he must remake classics, can we get that guy on Beauty and the Beast? I bet he could give us the ending we all deserve for that one.
Reposted by Marrok Sedgwick
So it turns out... the US air travel system was incredibly, deeply dependent on federal funding to just run day-to-day all this time, to the benefit of private airline shareholders, when everyone thinks that state-run trains are leeching off the government. Weird!
November 9, 2025 at 12:10 AM
So it turns out... the US air travel system was incredibly, deeply dependent on federal funding to just run day-to-day all this time, to the benefit of private airline shareholders, when everyone thinks that state-run trains are leeching off the government. Weird!
Started my day off with a kayak rescue/self rescue lesson and ended it with an afternoon volunteering at the weekend spay and neuter clinic and it was a great day. Thinking back at the many years I spent working 6-7 days a week to be a student/grad student like eww why lol
November 9, 2025 at 2:58 AM
Started my day off with a kayak rescue/self rescue lesson and ended it with an afternoon volunteering at the weekend spay and neuter clinic and it was a great day. Thinking back at the many years I spent working 6-7 days a week to be a student/grad student like eww why lol
Reposted by Marrok Sedgwick
As Americans go hungry, Trump’s out golfing on your dime using your tax dollars. Don’t worry, it’s only about $3–4 million per trip.
November 8, 2025 at 6:02 PM
As Americans go hungry, Trump’s out golfing on your dime using your tax dollars. Don’t worry, it’s only about $3–4 million per trip.
Reposted by Marrok Sedgwick
An “ally” is something you let *other* people label you.
November 6, 2025 at 12:43 AM
An “ally” is something you let *other* people label you.
Still utterly in awe of the killer whales I saw a couple weekends ago.
November 6, 2025 at 5:25 AM
Still utterly in awe of the killer whales I saw a couple weekends ago.
Reposted by Marrok Sedgwick
Our Board Chair Jordyn Zimmerman advocates that people who need & use AAC must be leaders & co-designers of AAC technologies. She writes about this in Impact, a journal from the Institute on Community Integration. She's featured in its 40 Big Ideas issue! lnk.to/bigidea @jordynbzim.bsky.social
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![[Image: A smiling Jordyn Zimmerman takes her place at a conference table. On the table in front of Jordyn is her AAC device, an iPad.]](https://cdn.bsky.app/img/feed_thumbnail/plain/did:plc:rttsf4zrtbea47kiv56ec4vb/bafkreied7pno5d2hzcinkryphfsfv2k3ujhwkfvyhzwia6gswrh5cnh53m@jpeg)
October 27, 2025 at 10:27 PM
Our Board Chair Jordyn Zimmerman advocates that people who need & use AAC must be leaders & co-designers of AAC technologies. She writes about this in Impact, a journal from the Institute on Community Integration. She's featured in its 40 Big Ideas issue! lnk.to/bigidea @jordynbzim.bsky.social
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Reposted by Marrok Sedgwick
It’s been 100 years since DC’s #ForestHaven institution for people with I/DD opened. Watch our webinar on its closure, featuring two former residents & our own Bob Williams, an advocate for #CommunityLiving & the #Medicaid programs that make it possible. lnk.to/fhyt
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[Video: Webinar…
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October 31, 2025 at 6:00 PM
It’s been 100 years since DC’s #ForestHaven institution for people with I/DD opened. Watch our webinar on its closure, featuring two former residents & our own Bob Williams, an advocate for #CommunityLiving & the #Medicaid programs that make it possible. lnk.to/fhyt
[Video: Webinar…
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[Video: Webinar…
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Reposted by Marrok Sedgwick
Reposted by Marrok Sedgwick
Those "Covid in pregnancy causes autism!!" headlines are misleading AF plus use autistic people as a jump scare—instead of emphasizing that Covid vaccines protect pregnant people AND babies from actual bad outcomes. @ejwillingham.bsky.social, in our latest newsletter:
buttondown.com/TPGA/archive...
buttondown.com/TPGA/archive...
Autism and Covid infection during pregnancy: Guess what??
The risks of Covid infection in pregnancy unrelated to autism are sufficient to reinforce public health measures and messaging to prevent Covid infection during pregnancy – including vaccination.
buttondown.com
November 3, 2025 at 7:24 PM
Those "Covid in pregnancy causes autism!!" headlines are misleading AF plus use autistic people as a jump scare—instead of emphasizing that Covid vaccines protect pregnant people AND babies from actual bad outcomes. @ejwillingham.bsky.social, in our latest newsletter:
buttondown.com/TPGA/archive...
buttondown.com/TPGA/archive...
Amazing the things neurotypical ppl think are acceptable ways to express displeasure with a coworker. /sarcasm
Note: Bullying
"Starting in the childhood, autistic people are more likely to be bullied both at home and at school. This continues in the workplace. [this is] unlikely to be broken without significant structural intervention."
us.specialisterne.com/workplace-bu... #autism #neurodiversity
"Starting in the childhood, autistic people are more likely to be bullied both at home and at school. This continues in the workplace. [this is] unlikely to be broken without significant structural intervention."
us.specialisterne.com/workplace-bu... #autism #neurodiversity
Workplace bullying of autistic people: a Vicious cycle. | Specialisterne USA
us.specialisterne.com
November 3, 2025 at 6:19 AM
Amazing the things neurotypical ppl think are acceptable ways to express displeasure with a coworker. /sarcasm
Reposted by Marrok Sedgwick
"Egg thief"
Today's #birdoftheday set by @alan678.bsky.social is #underrated.
What could be more #underrated than the thieving herring gull? 🤭
Here, stealing a guillemot egg from Stack Rock, Pembrokeshire.🏴
#WeekRforRocks
#AlphabetChallenge
#birds
#EastCoastKin
#Stunday
#birdphotography
Today's #birdoftheday set by @alan678.bsky.social is #underrated.
What could be more #underrated than the thieving herring gull? 🤭
Here, stealing a guillemot egg from Stack Rock, Pembrokeshire.🏴
#WeekRforRocks
#AlphabetChallenge
#birds
#EastCoastKin
#Stunday
#birdphotography
November 2, 2025 at 9:41 AM
"Egg thief"
Today's #birdoftheday set by @alan678.bsky.social is #underrated.
What could be more #underrated than the thieving herring gull? 🤭
Here, stealing a guillemot egg from Stack Rock, Pembrokeshire.🏴
#WeekRforRocks
#AlphabetChallenge
#birds
#EastCoastKin
#Stunday
#birdphotography
Today's #birdoftheday set by @alan678.bsky.social is #underrated.
What could be more #underrated than the thieving herring gull? 🤭
Here, stealing a guillemot egg from Stack Rock, Pembrokeshire.🏴
#WeekRforRocks
#AlphabetChallenge
#birds
#EastCoastKin
#Stunday
#birdphotography
Reposted by Marrok Sedgwick
More nope on #ProfoundAutism: An Autistic person’s ALS was only diagnosed a couple of months before they died, as their symptoms of progressive muscle weakness & associated disability were assumed to be 'challenging behavior' due to being 'severely Autistic.'
thinkingautismguide.com/2023/09/grav...
thinkingautismguide.com/2023/09/grav...
Grave Concerns About Profound Autism
The label "Profound autism" bungles the support needs of autistic people with complex disabilities, and will endanger autistic lives.
thinkingautismguide.com
November 2, 2025 at 7:21 PM
More nope on #ProfoundAutism: An Autistic person’s ALS was only diagnosed a couple of months before they died, as their symptoms of progressive muscle weakness & associated disability were assumed to be 'challenging behavior' due to being 'severely Autistic.'
thinkingautismguide.com/2023/09/grav...
thinkingautismguide.com/2023/09/grav...