Post-Polio Health International
@post-poliohealth.bsky.social
PHI’s mission is to collect, preserve and make available research and knowledge to promote the well-being and independence of polio survivors, home ventilator users, their caregivers and families, and to support the health professionals who treat them.
Ed Roberts was a polio survivor and disability rights hero. Author Scot Danforth spoke with Mother Jones about his new book on Roberts' extraordinary life.
At 14, Ed Roberts was disabled by polio. He later became known as the father of the independent living movement.
At @motherjones.com, I interviewed Scot Danforth about his new book on Ed Roberts' life. @ucpress.bsky.social
www.motherjones.com/politics/202...
At @motherjones.com, I interviewed Scot Danforth about his new book on Ed Roberts' life. @ucpress.bsky.social
www.motherjones.com/politics/202...
The radical life of the father of independent living
A new book explores disabled activist Ed Roberts' revolutionary career.
www.motherjones.com
October 14, 2025 at 8:16 PM
Ed Roberts was a polio survivor and disability rights hero. Author Scot Danforth spoke with Mother Jones about his new book on Roberts' extraordinary life.
Reposted by Post-Polio Health International
9 CDC Directors going back to 1977 speak out. What RFK Jr has done to our nation’s public health system "should alarm every American."
It "is unlike anything we have ever seen at the agency, and unlike anything our country has ever experienced." www.nytimes.com/2025/09/01/o...
It "is unlike anything we have ever seen at the agency, and unlike anything our country has ever experienced." www.nytimes.com/2025/09/01/o...
Opinion | We Ran the C.D.C.: Kennedy Is Endangering Every American’s Health
www.nytimes.com
September 1, 2025 at 11:23 AM
9 CDC Directors going back to 1977 speak out. What RFK Jr has done to our nation’s public health system "should alarm every American."
It "is unlike anything we have ever seen at the agency, and unlike anything our country has ever experienced." www.nytimes.com/2025/09/01/o...
It "is unlike anything we have ever seen at the agency, and unlike anything our country has ever experienced." www.nytimes.com/2025/09/01/o...
Reposted by Post-Polio Health International
However bad you think things are at the CDC they are worse.
That's the takeaway from this well-reported story from Daniel Payne w/back-up from an all-star STAT team.
Must-read.
www.statnews.com/2025/08/28/c...
That's the takeaway from this well-reported story from Daniel Payne w/back-up from an all-star STAT team.
Must-read.
www.statnews.com/2025/08/28/c...
Inside the CDC director's ouster: Kennedy demanded acceptance of new vaccine policies; Susan Monarez refused
Susan Monarez’s resistance to Robert F. Kennedy Jr.’s moves to assert control over vaccine guidance is at the center of her dismissal as CDC director
www.statnews.com
August 28, 2025 at 4:41 PM
However bad you think things are at the CDC they are worse.
That's the takeaway from this well-reported story from Daniel Payne w/back-up from an all-star STAT team.
Must-read.
www.statnews.com/2025/08/28/c...
That's the takeaway from this well-reported story from Daniel Payne w/back-up from an all-star STAT team.
Must-read.
www.statnews.com/2025/08/28/c...
Reposted by Post-Polio Health International
4/8/22, WNYC: "Why We Should Have Seen Long COVID Coming"
'..tens of millions of people have experienced Long COVID...Brooke talks to Laura Spinney about Long influenza, post-polio syndrome, and why long term illnesses escape a neat pandemic narrative.'
www.wnycstudios.org/podcasts/otm...
'..tens of millions of people have experienced Long COVID...Brooke talks to Laura Spinney about Long influenza, post-polio syndrome, and why long term illnesses escape a neat pandemic narrative.'
www.wnycstudios.org/podcasts/otm...
Why We Should Have Seen 'Long COVID' Coming | On the Media | WNYC Studios
Long influenza, post-polio syndrome, and other history lessons.
www.wnycstudios.org
August 6, 2025 at 1:46 PM
4/8/22, WNYC: "Why We Should Have Seen Long COVID Coming"
'..tens of millions of people have experienced Long COVID...Brooke talks to Laura Spinney about Long influenza, post-polio syndrome, and why long term illnesses escape a neat pandemic narrative.'
www.wnycstudios.org/podcasts/otm...
'..tens of millions of people have experienced Long COVID...Brooke talks to Laura Spinney about Long influenza, post-polio syndrome, and why long term illnesses escape a neat pandemic narrative.'
www.wnycstudios.org/podcasts/otm...
Spasticity, chronic pain, sleep apnea, bladder issues, and temperature swings can all stand in the way of a restful night.
In the article, "How to Sleep Better as a Wheelchair User,” New Mobility explores the hidden reasons sleep is disrupted and shares practical strategies from wheelchair users.
In the article, "How to Sleep Better as a Wheelchair User,” New Mobility explores the hidden reasons sleep is disrupted and shares practical strategies from wheelchair users.
How to Sleep Better as a Wheelchair User
I used to sleep great. Even post-SCI I could sleep 9-10 hours a night, no problem. But recently, as I’m pushing into middle age, I find getting a solid night’s sleep a lot harder than it used to be.
newmobility.com
August 25, 2025 at 7:41 PM
Spasticity, chronic pain, sleep apnea, bladder issues, and temperature swings can all stand in the way of a restful night.
In the article, "How to Sleep Better as a Wheelchair User,” New Mobility explores the hidden reasons sleep is disrupted and shares practical strategies from wheelchair users.
In the article, "How to Sleep Better as a Wheelchair User,” New Mobility explores the hidden reasons sleep is disrupted and shares practical strategies from wheelchair users.
Reposted by Post-Polio Health International
Afghanistan and Pakistan are the world’s toughest holdouts for the polio virus, even as most countries have stopped its spread. An AP investigation reveals how mistrust, mismanagement and even some falsified vaccine records are hindering efforts to wipe out the virus.
The world nearly beat polio. But fake records, an imperfect vaccine and missteps aided its comeback
The World Health Organization has closed in on its bold goal of eradicating polio several times, but the paralytic virus is entrenched in parts of Afghanistan and Pakistan.
bit.ly
August 5, 2025 at 12:00 PM
Afghanistan and Pakistan are the world’s toughest holdouts for the polio virus, even as most countries have stopped its spread. An AP investigation reveals how mistrust, mismanagement and even some falsified vaccine records are hindering efforts to wipe out the virus.
Reposted by Post-Polio Health International
It’s mind boggling how many additional people this administration is killing.
“I have been in this business for over 50 years on the front lines of public health…And I can say unequivocally that this was the most dangerous public health decision I have ever seen made by a government body.”
“I have been in this business for over 50 years on the front lines of public health…And I can say unequivocally that this was the most dangerous public health decision I have ever seen made by a government body.”
Federal mRNA funding cut is 'most dangerous public health decision' ever, expert says
Many public health experts and scientists say they are stunned by Health Secretary Robert F. Kennedy Jr’s decision to cancel nearly half a billion dollars in federal funding for future vaccine develop...
www.pbs.org
August 7, 2025 at 4:36 AM
It’s mind boggling how many additional people this administration is killing.
“I have been in this business for over 50 years on the front lines of public health…And I can say unequivocally that this was the most dangerous public health decision I have ever seen made by a government body.”
“I have been in this business for over 50 years on the front lines of public health…And I can say unequivocally that this was the most dangerous public health decision I have ever seen made by a government body.”
Reposted by Post-Polio Health International
As I wrote for MSNBC earlier this year, the bipartisan consensus on disability rights (always partial, always contested, always insufficient, yes yes I know!) is dead. I don't know what comes next, but the ADA era of bipartisanship is dead.
July 17, 2025 at 1:52 PM
As I wrote for MSNBC earlier this year, the bipartisan consensus on disability rights (always partial, always contested, always insufficient, yes yes I know!) is dead. I don't know what comes next, but the ADA era of bipartisanship is dead.
Thread
July 17, 2025 at 2:18 PM
Thread
Reposted by Post-Polio Health International
A veteran WWII correspondent’s hidden battle with polio surfaced when family photos and stories refused to acknowledge her illness, revealing how stigma and silence erased a pivotal chapter of her life and the resilience she carried into her career.
slate.com/life/2025/...
slate.com/life/2025/...
Lots of Us Forget How Bad Life Was Before Vaccines. I Have a Theory About That.
In our family, and many others, polio was an open secret.
slate.com
July 6, 2025 at 3:12 PM
A veteran WWII correspondent’s hidden battle with polio surfaced when family photos and stories refused to acknowledge her illness, revealing how stigma and silence erased a pivotal chapter of her life and the resilience she carried into her career.
slate.com/life/2025/...
slate.com/life/2025/...
July is Disability Pride Month!
Learn more about polio survivors and the contributions they’ve made to science, medicine, human rights, the arts and many other fields at www.polioplace.org
#polio #disabilityrights #disabilitypride
Learn more about polio survivors and the contributions they’ve made to science, medicine, human rights, the arts and many other fields at www.polioplace.org
#polio #disabilityrights #disabilitypride
July 1, 2025 at 7:36 PM
July is Disability Pride Month!
Learn more about polio survivors and the contributions they’ve made to science, medicine, human rights, the arts and many other fields at www.polioplace.org
#polio #disabilityrights #disabilitypride
Learn more about polio survivors and the contributions they’ve made to science, medicine, human rights, the arts and many other fields at www.polioplace.org
#polio #disabilityrights #disabilitypride
Reposted by Post-Polio Health International
Polio is in the news, with vaccination under threat and recent outbreaks. This makes Alan Marshall’s classic disability memoir more relevant than ever.
‘My greatest handicap was the attitude of normal people.’ Alan Marshall’s artful polio memoir, I Can Jump Puddles, turns 70
theconversation.com
June 30, 2025 at 8:44 PM
Polio is in the news, with vaccination under threat and recent outbreaks. This makes Alan Marshall’s classic disability memoir more relevant than ever.
Reposted by Post-Polio Health International
A personal reminiscence from 2018 about getting polio, 1948: thetyee.ca/Opinion/2018...
June 29, 2025 at 11:03 PM
A personal reminiscence from 2018 about getting polio, 1948: thetyee.ca/Opinion/2018...
This is why it’s important for polio survivors to tell their story. There are millions of us worldwide, each with a unique story to tell. Learn more at www.post-polio.org
June 28, 2025 at 4:08 PM
This is why it’s important for polio survivors to tell their story. There are millions of us worldwide, each with a unique story to tell. Learn more at www.post-polio.org
Reposted by Post-Polio Health International
Reposted by Post-Polio Health International
"Change, Not Charity: The Americans with Disabilities Act" has premiered! Stream the powerful documentary about the fight for #disability rights and the landmark #ADA today on #PBS: buff.ly/BhRS7Nu
April 29, 2025 at 11:40 PM
"Change, Not Charity: The Americans with Disabilities Act" has premiered! Stream the powerful documentary about the fight for #disability rights and the landmark #ADA today on #PBS: buff.ly/BhRS7Nu
Reposted by Post-Polio Health International
Make sure you tune in to Radio Decorum on Friday 27 June 3:00pm to 5:00pm. DJ and #polio survivor Moz Copestake will be interviewing British Polio Fellowship CEO Kripen Dhrona. To listen go to radiodacorum.org.uk and select the ‘Listen Live’ button
June 22, 2025 at 7:40 PM
Make sure you tune in to Radio Decorum on Friday 27 June 3:00pm to 5:00pm. DJ and #polio survivor Moz Copestake will be interviewing British Polio Fellowship CEO Kripen Dhrona. To listen go to radiodacorum.org.uk and select the ‘Listen Live’ button
Reposted by Post-Polio Health International
These incredible and heartbreaking images from the height of polio in the United States is exactly why we remain committed to #EndPolio for good. Without vaccines and routine immunizations, the images of the past will soon become the image of the present. #VaccinesWork
15 Photos From the Peak of Polio
Before vaccines and public health triumphs, polio was the thing that kept parents up at night. During its peak from 1948 to 1955, the disease swept through towns across America, hitting children the h...
www.aol.com
June 18, 2025 at 1:22 PM
These incredible and heartbreaking images from the height of polio in the United States is exactly why we remain committed to #EndPolio for good. Without vaccines and routine immunizations, the images of the past will soon become the image of the present. #VaccinesWork
Reposted by Post-Polio Health International
Reposted by Post-Polio Health International
Thanks to the commitment of health workers, volunteers and local communities — and decades of support from Rotary members around the world — we’re closer than ever to ending polio for good. #EndPolio @endpolionow.bsky.social
Learn more about this lifesaving work:
Learn more about this lifesaving work:
Trekking Far and Wide to End Polio in Pakistan
With support from UNICEF and Rotary International, health workers in Pakistan deliver the polio vaccine to millions of children. [video]
www.unicefusa.org
June 24, 2025 at 7:10 PM
Thanks to the commitment of health workers, volunteers and local communities — and decades of support from Rotary members around the world — we’re closer than ever to ending polio for good. #EndPolio @endpolionow.bsky.social
Learn more about this lifesaving work:
Learn more about this lifesaving work:
Reposted by Post-Polio Health International
Since 1988, Rotary International and @unicef.org have worked side by side as founding members of the Global Polio Eradication Initiative, helping reduce polio cases by more than 99% and vaccinate hundreds of millions of children worldwide. @endpolionow.bsky.social
June 24, 2025 at 7:10 PM
Since 1988, Rotary International and @unicef.org have worked side by side as founding members of the Global Polio Eradication Initiative, helping reduce polio cases by more than 99% and vaccinate hundreds of millions of children worldwide. @endpolionow.bsky.social
Reposted by Post-Polio Health International
"Every day of my life I see legs paralyzed from the effects of childhood polio."
Polio survivor, Rotary member, and Team #EndPolio athlete Ferris said it best during #Rotary25 General Session on Tuesday: "When it comes to ending polio, failure is not an option." #VaccinesSaveLives #PublicHealth
Polio survivor, Rotary member, and Team #EndPolio athlete Ferris said it best during #Rotary25 General Session on Tuesday: "When it comes to ending polio, failure is not an option." #VaccinesSaveLives #PublicHealth
June 25, 2025 at 4:35 PM
"Every day of my life I see legs paralyzed from the effects of childhood polio."
Polio survivor, Rotary member, and Team #EndPolio athlete Ferris said it best during #Rotary25 General Session on Tuesday: "When it comes to ending polio, failure is not an option." #VaccinesSaveLives #PublicHealth
Polio survivor, Rotary member, and Team #EndPolio athlete Ferris said it best during #Rotary25 General Session on Tuesday: "When it comes to ending polio, failure is not an option." #VaccinesSaveLives #PublicHealth
Reposted by Post-Polio Health International
This is the study RFK Jr. relied on to withdraw funding from GAVI, the global vaccines program for children. It examines vaccinated and unvaccinated infants born in an urban community in Guinea-Bissau between 1978 and 1983.
pmc.ncbi.nlm.nih.gov/articles/PMC...
pmc.ncbi.nlm.nih.gov/articles/PMC...
The Introduction of Diphtheria-Tetanus-Pertussis and Oral Polio Vaccine Among Young Infants in an Urban African Community: A Natural Experiment
We examined the introduction of diphtheria-tetanus-pertussis (DTP) and oral polio vaccine (OPV) in an urban community in Guinea-Bissau in the early 1980s. The child population had been followed with 3...
pmc.ncbi.nlm.nih.gov
June 25, 2025 at 7:15 PM
This is the study RFK Jr. relied on to withdraw funding from GAVI, the global vaccines program for children. It examines vaccinated and unvaccinated infants born in an urban community in Guinea-Bissau between 1978 and 1983.
pmc.ncbi.nlm.nih.gov/articles/PMC...
pmc.ncbi.nlm.nih.gov/articles/PMC...
Reposted by Post-Polio Health International
Thimerosal sent RFK Jr down the path of vaccine hesitancy two decades ago. It was his “passion.” Here’s the story of how it landed on the ACIP agenda — and what it says about the way Kennedy is using his power. www.nytimes.com/2025/06/27/u...
With Flu Shot Vote, Kennedy’s Vaccine Skepticism Comes Full Circle
www.nytimes.com
June 27, 2025 at 12:45 PM
Thimerosal sent RFK Jr down the path of vaccine hesitancy two decades ago. It was his “passion.” Here’s the story of how it landed on the ACIP agenda — and what it says about the way Kennedy is using his power. www.nytimes.com/2025/06/27/u...
Reposted by Post-Polio Health International
Feels like a good day to remind people that polio still exists, diseases don't care about geopolitical borders, and just one child impacted by a vaccine-preventable disease is one child too many. #EndPolio #VaccinesSaveLives #VaccinesWork #HumanlyPossible
Why Should You Care About Polio?
YouTube video by Rotary
www.youtube.com
May 14, 2025 at 7:56 PM
Feels like a good day to remind people that polio still exists, diseases don't care about geopolitical borders, and just one child impacted by a vaccine-preventable disease is one child too many. #EndPolio #VaccinesSaveLives #VaccinesWork #HumanlyPossible