@siennaterre.bsky.social
Pinned
It's been great to see the influx of people from the ME/CFS and long Covid community in the last week.
Here's a starter pack by @chromatowski.bsky.social that's worth checking out:
bsky.app/starter-pack...
It lists interesting people to follow and also has a feed
#MEcfs #CFS #PwME #LongCovid
1/
Here's a starter pack by @chromatowski.bsky.social that's worth checking out:
bsky.app/starter-pack...
It lists interesting people to follow and also has a feed
#MEcfs #CFS #PwME #LongCovid
1/
Reposted
🧪Sharing this important paper for hEDS, as many people with #LongCovid & #ME are hypermobile.
📐EDS is often part of a trifecta with MCAS & POTS - also common in LC.
The immune dysfunction shown in this groundbreaking paper could show a way forward 🤞
academic.oup.com/immunohorizo...
📐EDS is often part of a trifecta with MCAS & POTS - also common in LC.
The immune dysfunction shown in this groundbreaking paper could show a way forward 🤞
academic.oup.com/immunohorizo...
September 18, 2025 at 9:31 AM
🧪Sharing this important paper for hEDS, as many people with #LongCovid & #ME are hypermobile.
📐EDS is often part of a trifecta with MCAS & POTS - also common in LC.
The immune dysfunction shown in this groundbreaking paper could show a way forward 🤞
academic.oup.com/immunohorizo...
📐EDS is often part of a trifecta with MCAS & POTS - also common in LC.
The immune dysfunction shown in this groundbreaking paper could show a way forward 🤞
academic.oup.com/immunohorizo...
Reposted
“All of these precautions have kept me safe. In contrast, almost all my colleagues have had COVID at least once—some multiple times. Some even have Long COVID.”
Mitigations work! Repeat infections are not inevitable.
Grateful to the HCWs still masking & protecting themselves and their patients
Mitigations work! Repeat infections are not inevitable.
Grateful to the HCWs still masking & protecting themselves and their patients
Why I Still Wear an N95: A Doctor’s Perspective - WHN
By Nancy Malek@N95Anaesthetist Dr Nancy Malek is a Senior Visiting Medical Officer Anaesthetist at Nepean Public Hospital in Sydney, Australia. She is currently leading a research project exploring Au...
whn.global
May 12, 2025 at 5:06 AM
“All of these precautions have kept me safe. In contrast, almost all my colleagues have had COVID at least once—some multiple times. Some even have Long COVID.”
Mitigations work! Repeat infections are not inevitable.
Grateful to the HCWs still masking & protecting themselves and their patients
Mitigations work! Repeat infections are not inevitable.
Grateful to the HCWs still masking & protecting themselves and their patients
Reposted
"The Trump administration has moved to take down #COVID_19 signage from federal agencies & replace websites that had previously offered health information & access to tests & treatment for the virus, swapping them out with a page titled "Lab Leak..."
#Covid2025 😷
www.cbsnews.com/news/trump-a...
#Covid2025 😷
www.cbsnews.com/news/trump-a...
Trump administration replaces COVID websites, takes down COVID signage
The Trump administration has moved to replace websites that previously offered health information and access to COVID tests and treatment.
www.cbsnews.com
April 18, 2025 at 9:24 PM
"The Trump administration has moved to take down #COVID_19 signage from federal agencies & replace websites that had previously offered health information & access to tests & treatment for the virus, swapping them out with a page titled "Lab Leak..."
#Covid2025 😷
www.cbsnews.com/news/trump-a...
#Covid2025 😷
www.cbsnews.com/news/trump-a...
Reposted
🚨Here’s a list of just a few of the major pieces of misinformation Kennedy shared about autism🚨
RFK Jr. knows amazingly little about autism
For someone who's been talking about it for so long, the HHS secretary got many basic facts wrong.
www.motherjones.com
April 18, 2025 at 8:22 PM
🚨Here’s a list of just a few of the major pieces of misinformation Kennedy shared about autism🚨
Reposted
We are watching our flawed system be traded in for an objectively dangerous one— one that prioritizes profit over safety, conspiracy over evidence, and pseudoscience over public health.
Read more: news.immunologic.org/p/the-trump-...
Read more: news.immunologic.org/p/the-trump-...
The Trump Administration Could Become The Wellness Industry’s Dangerous Ally
Trump's nominees for science leadership roles pose a serious threat to evidence-based public health
news.immunologic.org
April 1, 2025 at 4:51 PM
We are watching our flawed system be traded in for an objectively dangerous one— one that prioritizes profit over safety, conspiracy over evidence, and pseudoscience over public health.
Read more: news.immunologic.org/p/the-trump-...
Read more: news.immunologic.org/p/the-trump-...
Reposted
The CDC has literally been gutted today.
There’s no need for “April Fools” when reality is a nightmare for every human on this planet.
Thousand of scientists fired.
Entire departments erased.
1/
There’s no need for “April Fools” when reality is a nightmare for every human on this planet.
Thousand of scientists fired.
Entire departments erased.
1/
April 1, 2025 at 4:10 PM
The CDC has literally been gutted today.
There’s no need for “April Fools” when reality is a nightmare for every human on this planet.
Thousand of scientists fired.
Entire departments erased.
1/
There’s no need for “April Fools” when reality is a nightmare for every human on this planet.
Thousand of scientists fired.
Entire departments erased.
1/
Reposted
Everyone who works for PRAMS (the Pregnancy Risk Assessment Monitoring System) at CDC was terminated today. That appears to be the end of a critical program which monitored infant and maternal health nationwide across pregnancy, childbirth & postpartum. talkingpointsmemo.com/edblog/prams...
PRAMS Shuttered for Good
In the first weeks of the administration I wrote a number of...
talkingpointsmemo.com
April 1, 2025 at 10:11 PM
Everyone who works for PRAMS (the Pregnancy Risk Assessment Monitoring System) at CDC was terminated today. That appears to be the end of a critical program which monitored infant and maternal health nationwide across pregnancy, childbirth & postpartum. talkingpointsmemo.com/edblog/prams...
Reposted
chronically ill & trying to get a diagnosis
#chronicillnessmemes #chronicillnesshumor #chronicillness
#chronicillnessmemes #chronicillnesshumor #chronicillness
![maybe if i write out all of my symptoms [guy putting white makeup on his face]
and voice how life-altering the symptoms have been to my life, [guy putting mouth and eye clown makeup on]
and bring in a friend to vouch for me. [putting clown wig on]
the doctor will believe me and run some tests [he is now a clown]](https://cdn.bsky.app/img/feed_thumbnail/plain/did:plc:dbzmdmsaz6lkhb4tv3culzme/bafkreidur7uuj3fgum3h7xeea26xkh4fqeiovuczfpedph3cm2neii7fiu@jpeg)
December 12, 2024 at 2:51 PM
chronically ill & trying to get a diagnosis
#chronicillnessmemes #chronicillnesshumor #chronicillness
#chronicillnessmemes #chronicillnesshumor #chronicillness
Reposted
Hey.
Famous people with a bad chest infection.
You know why you were vulnerable to a chest infection?
BECAUSE THE COVID INFECTIONS YOU'VE HAD HAVE MADE YOU VULNERABLE TO CHEST INFECTIONS.
This is precisely what we tried to warn you about, and that you ignored.
#ItsCovid
Famous people with a bad chest infection.
You know why you were vulnerable to a chest infection?
BECAUSE THE COVID INFECTIONS YOU'VE HAD HAVE MADE YOU VULNERABLE TO CHEST INFECTIONS.
This is precisely what we tried to warn you about, and that you ignored.
#ItsCovid
December 12, 2024 at 12:53 PM
Hey.
Famous people with a bad chest infection.
You know why you were vulnerable to a chest infection?
BECAUSE THE COVID INFECTIONS YOU'VE HAD HAVE MADE YOU VULNERABLE TO CHEST INFECTIONS.
This is precisely what we tried to warn you about, and that you ignored.
#ItsCovid
Famous people with a bad chest infection.
You know why you were vulnerable to a chest infection?
BECAUSE THE COVID INFECTIONS YOU'VE HAD HAVE MADE YOU VULNERABLE TO CHEST INFECTIONS.
This is precisely what we tried to warn you about, and that you ignored.
#ItsCovid
Reposted
Source: @throughlupus (maybe twitter, don't know)
chronic illness
#chronicillness #chronicallyill #autoimmune
chronic illness
#chronicillness #chronicallyill #autoimmune
December 5, 2024 at 12:06 AM
Source: @throughlupus (maybe twitter, don't know)
chronic illness
#chronicillness #chronicallyill #autoimmune
chronic illness
#chronicillness #chronicallyill #autoimmune
Reposted
Winter sunset in Norway
December 3, 2024 at 9:43 AM
Winter sunset in Norway
Reposted
US: Long COVID may be far more common than previously known.
"Almost 1 in 4 Americans may be suffering from long COVID, a rate more than 3 times higher than the most common number cited by federal officials"
Study: www.sciencedirect.com/science/arti...
Source: archive.md/VsBcm
"Almost 1 in 4 Americans may be suffering from long COVID, a rate more than 3 times higher than the most common number cited by federal officials"
Study: www.sciencedirect.com/science/arti...
Source: archive.md/VsBcm
November 18, 2024 at 11:05 PM
US: Long COVID may be far more common than previously known.
"Almost 1 in 4 Americans may be suffering from long COVID, a rate more than 3 times higher than the most common number cited by federal officials"
Study: www.sciencedirect.com/science/arti...
Source: archive.md/VsBcm
"Almost 1 in 4 Americans may be suffering from long COVID, a rate more than 3 times higher than the most common number cited by federal officials"
Study: www.sciencedirect.com/science/arti...
Source: archive.md/VsBcm
Reposted
With all due respect to Jack for having the vision to invest in decentralized protocols, we’ve carried out the work in a way I don’t think he fully understands. Bluesky is structurally open in a way Twitter has never been, but the design of atproto allows it to feel familiar and easy to use.
May 10, 2024 at 12:32 AM
With all due respect to Jack for having the vision to invest in decentralized protocols, we’ve carried out the work in a way I don’t think he fully understands. Bluesky is structurally open in a way Twitter has never been, but the design of atproto allows it to feel familiar and easy to use.
Reposted
November 11, 2024 at 2:36 AM
Reposted
in fact, starter pack usage has more than 18x'ed since last week! 🤯 thank you for creating and sharing them!!!
here's a directory of starter packs, browse this to find some more: blueskydirectory.com/starter-packs/all
thanks to @mubashariqbal.com for creating this directory!🙏
here's a directory of starter packs, browse this to find some more: blueskydirectory.com/starter-packs/all
thanks to @mubashariqbal.com for creating this directory!🙏
All - Bluesky Directory
A curated collection of all things relating to the Blue Sky social media platform.
blueskydirectory.com
November 13, 2024 at 7:09 AM
in fact, starter pack usage has more than 18x'ed since last week! 🤯 thank you for creating and sharing them!!!
here's a directory of starter packs, browse this to find some more: blueskydirectory.com/starter-packs/all
thanks to @mubashariqbal.com for creating this directory!🙏
here's a directory of starter packs, browse this to find some more: blueskydirectory.com/starter-packs/all
thanks to @mubashariqbal.com for creating this directory!🙏
It's been great to see the influx of people from the ME/CFS and long Covid community in the last week.
Here's a starter pack by @chromatowski.bsky.social that's worth checking out:
bsky.app/starter-pack...
It lists interesting people to follow and also has a feed
#MEcfs #CFS #PwME #LongCovid
1/
Here's a starter pack by @chromatowski.bsky.social that's worth checking out:
bsky.app/starter-pack...
It lists interesting people to follow and also has a feed
#MEcfs #CFS #PwME #LongCovid
1/
November 15, 2024 at 12:53 AM
Reposted
If you're new and feeling a bit dazed, this is a great intro and explainer from @longcovidadvoc.bsky.social with some great top tips and hints ❤️❤️
www.longcovidadvoc.com/post/navigat...
www.longcovidadvoc.com/post/navigat...
Navigating the Bluesky 101
Discover the ins and outs of navigating the vibrant community of Bluesky. From accessibility to finding your tribe, this guide has got you covered!
www.longcovidadvoc.com
November 13, 2024 at 4:42 PM
If you're new and feeling a bit dazed, this is a great intro and explainer from @longcovidadvoc.bsky.social with some great top tips and hints ❤️❤️
www.longcovidadvoc.com/post/navigat...
www.longcovidadvoc.com/post/navigat...
Reposted
There’s a lot of great Covid related starter packs out there - but here’s one more!
We’re seeing unprecedented growth here at the friendly skies - and I want to help connect as many people as possible.
Looking for clean air, covid cautious mask advocates to join the pack!
go.bsky.app/ALai9U
We’re seeing unprecedented growth here at the friendly skies - and I want to help connect as many people as possible.
Looking for clean air, covid cautious mask advocates to join the pack!
go.bsky.app/ALai9U
November 12, 2024 at 3:18 AM
There’s a lot of great Covid related starter packs out there - but here’s one more!
We’re seeing unprecedented growth here at the friendly skies - and I want to help connect as many people as possible.
Looking for clean air, covid cautious mask advocates to join the pack!
go.bsky.app/ALai9U
We’re seeing unprecedented growth here at the friendly skies - and I want to help connect as many people as possible.
Looking for clean air, covid cautious mask advocates to join the pack!
go.bsky.app/ALai9U
Reposted
I've made a Covid conscious starter pack called "Salting the Vibes" - voices on advocacy and/or science 🧬
go.bsky.app/5871Mhv
go.bsky.app/5871Mhv
November 11, 2024 at 4:41 PM
I've made a Covid conscious starter pack called "Salting the Vibes" - voices on advocacy and/or science 🧬
go.bsky.app/5871Mhv
go.bsky.app/5871Mhv
Reposted
November 14, 2024 at 11:33 PM
Reposted
November 14, 2024 at 5:54 PM
Reposted
One of fascism's main tactics is to physically and mentally exhaust you. To flood the zone with outrageous bullshit, to make you bite on a dozen pump-fakes — so that when the real shot comes, you're too worn out to react.
We need to pace ourselves. It's only been a week. Alert fatigue is dangerous
We need to pace ourselves. It's only been a week. Alert fatigue is dangerous
November 14, 2024 at 1:59 AM
One of fascism's main tactics is to physically and mentally exhaust you. To flood the zone with outrageous bullshit, to make you bite on a dozen pump-fakes — so that when the real shot comes, you're too worn out to react.
We need to pace ourselves. It's only been a week. Alert fatigue is dangerous
We need to pace ourselves. It's only been a week. Alert fatigue is dangerous
Reposted
✨This petition will close TOMORROW, Nov 15!✨ We're over 7k-- next stop 10k!
In this political climate, it's more important than ever to tell NIH that we need to fund infection-associated chronic illnesses.
Sign & share widely!
US signers: lnkd.in/e99rsvdT
International signers: lnkd.in/e3TpjnTE
In this political climate, it's more important than ever to tell NIH that we need to fund infection-associated chronic illnesses.
Sign & share widely!
US signers: lnkd.in/e99rsvdT
International signers: lnkd.in/e3TpjnTE
November 14, 2024 at 2:54 PM
✨This petition will close TOMORROW, Nov 15!✨ We're over 7k-- next stop 10k!
In this political climate, it's more important than ever to tell NIH that we need to fund infection-associated chronic illnesses.
Sign & share widely!
US signers: lnkd.in/e99rsvdT
International signers: lnkd.in/e3TpjnTE
In this political climate, it's more important than ever to tell NIH that we need to fund infection-associated chronic illnesses.
Sign & share widely!
US signers: lnkd.in/e99rsvdT
International signers: lnkd.in/e3TpjnTE