Brian Shuell
@bshuell.bsky.social
940 followers
400 following
180 posts
Living with myalgic encephalomyelitis, Living a limited life, missing from many places. Aspiring to be well again. Occasionally bipedal. Twitter/X refugee. #mecfs
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Reposted by Brian Shuell
Reposted by Brian Shuell
Essentially they say they didn’t find physiological evidence people with ME/CFS fatigue faster than controls, but instead that pwME quit on tasks sooner, and they argue that’s what should be studied about ME—the will to make an effort, not the effects effort has on us.
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IACC Long Covid Case Competition at UMich Ross school of business. Open to the public, in person or online. #Longcovid #mecfs #POTS
10/31/25: University of Michigan, '2025 IACC Long Covid Case Competition'
'A student-led initiative at the University of Michigan aiming to raise awareness and drive industry engagement around infection-associated chronic conditions (IACC) like Long Covid...'
www.bus.umich.edu/Conferences/...
'A student-led initiative at the University of Michigan aiming to raise awareness and drive industry engagement around infection-associated chronic conditions (IACC) like Long Covid...'
www.bus.umich.edu/Conferences/...
Of course everyone affected knows ME is the opposite—as you say, our loved ones have to beg us to do less to stay safe, when our instinct is always to do more (at our peril).
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Reposted by Brian Shuell
"ME/CFS isn’t about doing less by choice.
It’s about the body’s inability to recover.
It’s time to shift the narrative from motivation to biology."
Thank you @sunsopeningband.bsky.social et al for writing this new manuscript:
www.nature.com/articles/s41...
It’s about the body’s inability to recover.
It’s time to shift the narrative from motivation to biology."
Thank you @sunsopeningband.bsky.social et al for writing this new manuscript:
www.nature.com/articles/s41...
Altered effort and deconditioning are not valid explanations of myalgic encephalomyelitis/chronic fatigue syndrome
Nature Communications - Altered effort and deconditioning are not valid explanations of myalgic encephalomyelitis/chronic fatigue syndrome
www.nature.com
Reposted by Brian Shuell
#NEISvoid inside baseball—
The NIH team’s response to this (the Davenport et al comment) is awful.
It’s here: www.nature.com/articles/s41...
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The NIH team’s response to this (the Davenport et al comment) is awful.
It’s here: www.nature.com/articles/s41...
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"ME/CFS isn’t about doing less by choice.
It’s about the body’s inability to recover.
It’s time to shift the narrative from motivation to biology."
Thank you @sunsopeningband.bsky.social et al for writing this new manuscript:
www.nature.com/articles/s41...
It’s about the body’s inability to recover.
It’s time to shift the narrative from motivation to biology."
Thank you @sunsopeningband.bsky.social et al for writing this new manuscript:
www.nature.com/articles/s41...
Reposted by Brian Shuell
Reposted by Brian Shuell
Reposted by Brian Shuell
Reposted by Brian Shuell
Reposted by Brian Shuell
Reposted by Brian Shuell
Brian Shuell
@bshuell.bsky.social
· Oct 4
What to know about RFK Jr.’s efforts to address long COVID research and treatments
More than two years after the pandemic ended, millions of Americans are still living with long COVID. Symptoms vary from person to person, but range from mild to severe to physically debilitating. Rec...
www.pbs.org
Reposted by Brian Shuell
Just announced: HHS Secretary RFK Jr. is hosting two "roundtable discussions" about Long COVID tomorrow at 2 p.m. ET. @thesicktimes.org will be covering the event and reactions from the Long COVID community. (Reach out if you'd like to send us comments during or after!)
Reposted by Brian Shuell
