Chessa 🐉🧡📚
@chessawrites.bsky.social
Reading and writing (but not publishing). ND. Spoonie. Married. Torn between wanting to talk about fiction and needing to talk about the real world. She/her.
#PwME #neurodivergent #romancelandia #writing #reading #MECFS #books #LongCovid #spoonie
#PwME #neurodivergent #romancelandia #writing #reading #MECFS #books #LongCovid #spoonie
Pinned
get to know your mutuals! list ten random things you like ೃ⁀➷
꩜ Tattoos
꩜ Romance Novels
꩜ Minecraft (Nerdcrafteria)
꩜ Public Transportation
꩜ Sunshine
꩜ Thunderstorms
꩜ Dogs
꩜ Photography
꩜ Architecture
꩜ White Monster
꩜ Tattoos
꩜ Romance Novels
꩜ Minecraft (Nerdcrafteria)
꩜ Public Transportation
꩜ Sunshine
꩜ Thunderstorms
꩜ Dogs
꩜ Photography
꩜ Architecture
꩜ White Monster
get to know your mutuals! list ten random things you like ೃ⁀➷
꩜ Halloween
꩜ Books
꩜ Horror movies
꩜ Gigs
꩜ Vinyl collection
꩜ Tattoos
꩜ Metalcore
꩜ Winter
꩜ Candles
꩜ Rainy days
꩜ Halloween
꩜ Books
꩜ Horror movies
꩜ Gigs
꩜ Vinyl collection
꩜ Tattoos
꩜ Metalcore
꩜ Winter
꩜ Candles
꩜ Rainy days
get to know your mutuals! list ten random things you like ೃ⁀➷
꩜ reading (romance, mystery, SF, or non-fiction)
꩜ writing (mystery, romance)
꩜ public libraries
꩜ dragons
꩜ theology
꩜ animals
꩜ vegan food
꩜ whales
꩜ crafts
꩜ weird people
꩜ reading (romance, mystery, SF, or non-fiction)
꩜ writing (mystery, romance)
꩜ public libraries
꩜ dragons
꩜ theology
꩜ animals
꩜ vegan food
꩜ whales
꩜ crafts
꩜ weird people
Reposted by Chessa 🐉🧡📚
Light Up A Lantern!
Everyone who gives $50+ to #MEAction fundraiser will have the ability to list a name on a lantern. You may light up a lantern in honor or in memory of someone else.
And, your donation will be DOUBLED thanks to a matching donation!
www.meaction.net/donate
Everyone who gives $50+ to #MEAction fundraiser will have the ability to list a name on a lantern. You may light up a lantern in honor or in memory of someone else.
And, your donation will be DOUBLED thanks to a matching donation!
www.meaction.net/donate
November 25, 2025 at 6:43 PM
Light Up A Lantern!
Everyone who gives $50+ to #MEAction fundraiser will have the ability to list a name on a lantern. You may light up a lantern in honor or in memory of someone else.
And, your donation will be DOUBLED thanks to a matching donation!
www.meaction.net/donate
Everyone who gives $50+ to #MEAction fundraiser will have the ability to list a name on a lantern. You may light up a lantern in honor or in memory of someone else.
And, your donation will be DOUBLED thanks to a matching donation!
www.meaction.net/donate
Can a plot structure be described as beautiful? If so, these intricately interweaving stories (which continue in the next book), are strikingly beautiful. This book evokes fairy tales at their best.
#booksky 💙📚 #BookishQOTD 📖🦋
#booksky 💙📚 #BookishQOTD 📖🦋
November 25, 2025 at 7:47 PM
Can a plot structure be described as beautiful? If so, these intricately interweaving stories (which continue in the next book), are strikingly beautiful. This book evokes fairy tales at their best.
#booksky 💙📚 #BookishQOTD 📖🦋
#booksky 💙📚 #BookishQOTD 📖🦋
Reposted by Chessa 🐉🧡📚
Every “we owe loyalty to our leaders” voter has it backwards. Our representatives should be representing us, not leading us. We should be leading them. We tell them what they need and they get it, or we replace them with someone who can.
November 25, 2025 at 4:13 PM
Every “we owe loyalty to our leaders” voter has it backwards. Our representatives should be representing us, not leading us. We should be leading them. We tell them what they need and they get it, or we replace them with someone who can.
Reposted by Chessa 🐉🧡📚
Took a detour on my way home from the city today to look for snowy owls and lucked into one just before sunset. They're such beautiful birds. #birds 🌿
November 25, 2025 at 1:59 AM
Took a detour on my way home from the city today to look for snowy owls and lucked into one just before sunset. They're such beautiful birds. #birds 🌿
Reposted by Chessa 🐉🧡📚
“The Trump administration is working toward treating autism as something to be prevented, rather than building a health-care system that helps people who are autistic. It’s part of a larger backlash, both in the United States and around the world, against the concept of neurodiversity.”
For the past decade, conversations around autism shifted from focusing around curing #ActuallyAutistic people to accommodating and accepting autistic people. We now live in the RFK Jr. backlash, which shifts discussions around autism toward prevention
www.ms.now/opinion/rfk-...
www.ms.now/opinion/rfk-...
Opinion | RFK Jr.'s latest anti-vaccine move will cause untold harm to autistic Americans
The Trump administration is working toward treating autism as something to be prevented, rather than building a health care system that helps people.
www.ms.now
November 25, 2025 at 3:12 AM
“The Trump administration is working toward treating autism as something to be prevented, rather than building a health-care system that helps people who are autistic. It’s part of a larger backlash, both in the United States and around the world, against the concept of neurodiversity.”
I deal with this every day, all day.
"When the people in your life don’t understand PEM, they’re not just failing to understand a symptom. They’re failing to understand the central mechanism that governs your entire existence."
#PwME #ME #MECFS #LongCovid #disability #spoonie #ChronicIllness
"When the people in your life don’t understand PEM, they’re not just failing to understand a symptom. They’re failing to understand the central mechanism that governs your entire existence."
#PwME #ME #MECFS #LongCovid #disability #spoonie #ChronicIllness
This is an excellent piece on PEM by @darthfoo.bsky.social. Seriously considering sending to literally everyone I know.
substack.com/home/post/p-...
substack.com/home/post/p-...
Why I Can’t Just Meet You for Dinner
The Reality of Post-Exertional Malaise
substack.com
November 25, 2025 at 1:43 PM
I deal with this every day, all day.
"When the people in your life don’t understand PEM, they’re not just failing to understand a symptom. They’re failing to understand the central mechanism that governs your entire existence."
#PwME #ME #MECFS #LongCovid #disability #spoonie #ChronicIllness
"When the people in your life don’t understand PEM, they’re not just failing to understand a symptom. They’re failing to understand the central mechanism that governs your entire existence."
#PwME #ME #MECFS #LongCovid #disability #spoonie #ChronicIllness
Accident. Ships. Vacation.
Guess I won't be going on any cruises.
Guess I won't be going on any cruises.
first three words you see describes your 2026
(➡️⬇️)
(➡️⬇️)
November 25, 2025 at 1:16 PM
Accident. Ships. Vacation.
Guess I won't be going on any cruises.
Guess I won't be going on any cruises.
Reposted by Chessa 🐉🧡📚
Gender-affirming care saves lives
1. A landmark study was just published in The Journal of Pediatrics.
It found a 68% reduction in suicidality for trans youth getting HRT.
It also found only 7 of more than 400 stopped taking HRT... and of those that did, 4 still identified as gender-diverse.
Transgender care saves lives.
It found a 68% reduction in suicidality for trans youth getting HRT.
It also found only 7 of more than 400 stopped taking HRT... and of those that did, 4 still identified as gender-diverse.
Transgender care saves lives.
Study In The Journal Of Pediatrics Finds Trans Youth Care Lowers Suicidality, Few Detransition
The groundbreaking study found that suicidality dropped for transgender youth receiving hormone therapy by nearly 70%, with only 7 patients of 432 discontinuing treatment.
www.erininthemorning.com
November 25, 2025 at 11:49 AM
Gender-affirming care saves lives
Post your getaway vehicle.
November 24, 2025 at 3:33 PM
Post your getaway vehicle.
Reposted by Chessa 🐉🧡📚
Its so exhausting to see the media talk about autism like this--why can't we talk about it with the complexity it deserves, instead of stigmatize the millions living with it?
What kind of journalist doesn't understand that the "shocking numbers" are simply because more people are diagnosed now??
What kind of journalist doesn't understand that the "shocking numbers" are simply because more people are diagnosed now??
November 24, 2025 at 3:16 PM
Its so exhausting to see the media talk about autism like this--why can't we talk about it with the complexity it deserves, instead of stigmatize the millions living with it?
What kind of journalist doesn't understand that the "shocking numbers" are simply because more people are diagnosed now??
What kind of journalist doesn't understand that the "shocking numbers" are simply because more people are diagnosed now??
Reposted by Chessa 🐉🧡📚
November 24, 2025 at 2:39 PM
Reposted by Chessa 🐉🧡📚
Can't seem to get backing for my film project "Noah: The Early Years". They all say the narrative lacks an ark.
November 24, 2025 at 9:43 AM
Can't seem to get backing for my film project "Noah: The Early Years". They all say the narrative lacks an ark.
Reposted by Chessa 🐉🧡📚
Please remember: When we remind people that “there is NO evidence linking vaccines to autism” without adding “and fear of autism hurts autistics,” then we’re actually contributing to negative stereotypes about autism & autistic people. At TPGA:
thinkingautismguide.com/2025/03/bust... #VaccinesWork
thinkingautismguide.com/2025/03/bust... #VaccinesWork
November 24, 2025 at 4:06 AM
Please remember: When we remind people that “there is NO evidence linking vaccines to autism” without adding “and fear of autism hurts autistics,” then we’re actually contributing to negative stereotypes about autism & autistic people. At TPGA:
thinkingautismguide.com/2025/03/bust... #VaccinesWork
thinkingautismguide.com/2025/03/bust... #VaccinesWork
🔍❤️ Romcozy -- cozy mysteries with strong romantic elements
👩❤️💋👨 Contemporary Romance -- happy-ending love stories in the modern world
🪄 either of the above with a touch of magic
#booksky 💙📚 #BookishQOTD 📖🦋
👩❤️💋👨 Contemporary Romance -- happy-ending love stories in the modern world
🪄 either of the above with a touch of magic
#booksky 💙📚 #BookishQOTD 📖🦋
— ★°•| November 23 |•°★ —
Introduce yourself via your top three favorite subgenres!!
☆ Don't forget to include our hashtag, and make sure to use alt-text with any images!! ☆
[Tags: #booksky 💙📚 #BookishQOTD 📖🦋]
Introduce yourself via your top three favorite subgenres!!
☆ Don't forget to include our hashtag, and make sure to use alt-text with any images!! ☆
[Tags: #booksky 💙📚 #BookishQOTD 📖🦋]
November 24, 2025 at 1:27 PM
🔍❤️ Romcozy -- cozy mysteries with strong romantic elements
👩❤️💋👨 Contemporary Romance -- happy-ending love stories in the modern world
🪄 either of the above with a touch of magic
#booksky 💙📚 #BookishQOTD 📖🦋
👩❤️💋👨 Contemporary Romance -- happy-ending love stories in the modern world
🪄 either of the above with a touch of magic
#booksky 💙📚 #BookishQOTD 📖🦋
Reposted by Chessa 🐉🧡📚
Maybe it was a mistake to base the American economy on everyone buying and throwing away stuff constantly
www.cnbc.com/2025/11/23/h... "please, buy new phone. the economy is dying" is an incredible gaslight
Americans are holding onto devices longer than ever and it's costing economy
Americans are holding onto devices longer than ever before, and while it may be consumer smart, it comes at a cost to work productivity and the U.S. economy.
www.cnbc.com
November 24, 2025 at 1:05 AM
Maybe it was a mistake to base the American economy on everyone buying and throwing away stuff constantly
Reposted by Chessa 🐉🧡📚
Good article. There really is not enough pushback on this kind of stuff. There are so many putatively “good faith” libs & even progressives who still frame these stories as tragic for the mother & remove all agency from the autistic child who is just some broken vessel for their parents dreams
What are "autism grievance parents"? Those who claim to represent a wider underserved autism community—while working against the interests of autistic people & families who lack grievance parents’ class advantages, or have trouble accessing public benefits:
thinkingautismguide.com/2022/11/grie...
thinkingautismguide.com/2022/11/grie...
Grievance Parents Are Autism's MAGA Movement — THINKING PERSON'S GUIDE TO AUTISM
Horrified by the misinformation peddled by MAGA truthers? You should be just as concerned about grievance-based autism parent orgs.
thinkingautismguide.com
November 22, 2025 at 9:53 PM
Good article. There really is not enough pushback on this kind of stuff. There are so many putatively “good faith” libs & even progressives who still frame these stories as tragic for the mother & remove all agency from the autistic child who is just some broken vessel for their parents dreams
I'm not normally into cowboy romance, but this is a friends-to-lovers story (a plus IMO) and I'm game to try something different. Has anyone read this series?
#romancelandia 💙📚 🌶️📚
#romancelandia 💙📚 🌶️📚
November 22, 2025 at 4:19 PM
I'm not normally into cowboy romance, but this is a friends-to-lovers story (a plus IMO) and I'm game to try something different. Has anyone read this series?
#romancelandia 💙📚 🌶️📚
#romancelandia 💙📚 🌶️📚
Reposted by Chessa 🐉🧡📚
In a staggering and totally unprecedented revelation, problems caused by not having money were solved by having money.
An Oregon pilot program giving cash to homeless youths sees a staggering reduction in homelessness. The program gave participants $1,000 cash payments each month for two years, and at the end of the project's first phase, 91% of participants reported being in stable housing.
Oregon pilot program giving cash to homeless youths sees staggering reduction in homelessness
The state program gave participants $1,000 cash payments each month for two years. At the end of the project's first phase, 91% of participants reported being in stable housing.
www.streetroots.org
November 21, 2025 at 3:40 PM
In a staggering and totally unprecedented revelation, problems caused by not having money were solved by having money.
I've been deconditioned, from extended pregnancy bed rest. But about two months post-partum, I was back to previous activity levels. My body recovered and I didn't need special therapy for it.
#ME is nothing like that. Deconditioning is a drop in the bucket, and exertion lowers my baseline.
#PwME
#ME is nothing like that. Deconditioning is a drop in the bucket, and exertion lowers my baseline.
#PwME
Yeah, I've had plenty of clinicians acknowledge this-- my first exercise test the physio told me it was impossible for me to have degraded this sharply from deconditioning. The issue is, a lot of people with less expertise/knowledge won't accept that if the patient says it!
November 22, 2025 at 2:01 PM
Reposted by Chessa 🐉🧡📚
The rationale behind these studies, Seltzer contests, is [that] “it presumes that the patient had never heard of exercise until a doctor told them [it] exists.”
Thanks to Simon Spichak for putting this idea into print. I've said multiple times in interviews that it's the strangest part... 🧵
Thanks to Simon Spichak for putting this idea into print. I've said multiple times in interviews that it's the strangest part... 🧵
“People who are performing these studies are extraordinarily ignorant, and their ignorance is dangerous,” said @exceedhergrasp1.bsky.social. She and other experts agree these trials are a waste of $$ and will not advance our biological understanding of Long COVID. thesicktimes.org/2025/11/21/l...
Less than 20% of Long COVID trials involving exercise even mention post-exertional malaise - The Sick Times
An analysis by The Sick Times find that less than 15% of Long COVID clinical trials testing the benefits of exercise or cardiopulmonary rehabilitation measured post-exertional malaise, according to th...
thesicktimes.org
November 21, 2025 at 3:56 PM
The rationale behind these studies, Seltzer contests, is [that] “it presumes that the patient had never heard of exercise until a doctor told them [it] exists.”
Thanks to Simon Spichak for putting this idea into print. I've said multiple times in interviews that it's the strangest part... 🧵
Thanks to Simon Spichak for putting this idea into print. I've said multiple times in interviews that it's the strangest part... 🧵
Reposted by Chessa 🐉🧡📚
I really appreciate this article, but one thing I’ll add:
ALL #MECFS and #LongCovid studies need to account for post-exertional malaise. Not just exercise trials.
Because ALL exertion can trigger PEM.
I’m writing this while in PEM due to a poorly phrased questionnaire 🫠
ALL #MECFS and #LongCovid studies need to account for post-exertional malaise. Not just exercise trials.
Because ALL exertion can trigger PEM.
I’m writing this while in PEM due to a poorly phrased questionnaire 🫠
Today @thesicktimes.org: big story from @spichaksimon.bsky.social examining exercise trials for Long COVID. His analysis found that, among LC exercise trials registered on clinicaltrials.gov, less than 20% even *mention* PEM in their trial registration. thesicktimes.org/2025/11/21/l...
Less than 20% of Long COVID trials involving exercise even mention post-exertional malaise - The Sick Times
An analysis by The Sick Times find that less than 15% of Long COVID clinical trials testing the benefits of exercise or cardiopulmonary rehabilitation measured post-exertional malaise, according to th...
thesicktimes.org
November 21, 2025 at 10:33 PM
I really appreciate this article, but one thing I’ll add:
ALL #MECFS and #LongCovid studies need to account for post-exertional malaise. Not just exercise trials.
Because ALL exertion can trigger PEM.
I’m writing this while in PEM due to a poorly phrased questionnaire 🫠
ALL #MECFS and #LongCovid studies need to account for post-exertional malaise. Not just exercise trials.
Because ALL exertion can trigger PEM.
I’m writing this while in PEM due to a poorly phrased questionnaire 🫠
I keep thinking about this. It's the reason I tried to take out the recycling and had chest pains for the next two weeks. And the few doctors who know anything about it are overwhelmed with the influx of new patients and have wait lists you can measure in years.
#PwME
#PwME
There should be infinitely more interest in this medical mystery.
How many doctors can even name the phenomenon described below?
I’ll give a hint: it’s the hallmark of a disease that affects 1.3% of US adults, per CDC. (So docs should know about it!)
#MedSky
How many doctors can even name the phenomenon described below?
I’ll give a hint: it’s the hallmark of a disease that affects 1.3% of US adults, per CDC. (So docs should know about it!)
#MedSky
November 22, 2025 at 1:26 PM
I keep thinking about this. It's the reason I tried to take out the recycling and had chest pains for the next two weeks. And the few doctors who know anything about it are overwhelmed with the influx of new patients and have wait lists you can measure in years.
#PwME
#PwME
Reposted by Chessa 🐉🧡📚
Thanks to his new Tesla pay package, Elon Musk could stand to make $3 billion more per year than all 1.4 million elementary school teachers in the U.S. combined. Still wondering if inequality is out of control?
November 21, 2025 at 4:30 PM
Thanks to his new Tesla pay package, Elon Musk could stand to make $3 billion more per year than all 1.4 million elementary school teachers in the U.S. combined. Still wondering if inequality is out of control?
Reposted by Chessa 🐉🧡📚
Socialism is what they called public power.
Socialism is what they called social security.
Socialism is what they called the growth of free and independent labor organizations.
Socialism is their name for almost anything that helps all the people.
—Harry Truman, 1952
Socialism is what they called social security.
Socialism is what they called the growth of free and independent labor organizations.
Socialism is their name for almost anything that helps all the people.
—Harry Truman, 1952
November 21, 2025 at 5:15 PM
Socialism is what they called public power.
Socialism is what they called social security.
Socialism is what they called the growth of free and independent labor organizations.
Socialism is their name for almost anything that helps all the people.
—Harry Truman, 1952
Socialism is what they called social security.
Socialism is what they called the growth of free and independent labor organizations.
Socialism is their name for almost anything that helps all the people.
—Harry Truman, 1952
Reposted by Chessa 🐉🧡📚
Was bringing up all the things needed for the Advent Wreath in the church and I got thinking about that first candle we light every year, symbolizing Hope.
Every year gives me more and more reason to find hope near impossible.
And I light the candle anyway. In defiance.
Every year gives me more and more reason to find hope near impossible.
And I light the candle anyway. In defiance.
November 21, 2025 at 5:52 PM
Was bringing up all the things needed for the Advent Wreath in the church and I got thinking about that first candle we light every year, symbolizing Hope.
Every year gives me more and more reason to find hope near impossible.
And I light the candle anyway. In defiance.
Every year gives me more and more reason to find hope near impossible.
And I light the candle anyway. In defiance.