Steven Kapp
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drstevenkapp.bsky.social
Steven Kapp
@drstevenkapp.bsky.social
Autistic ADHDer autism, neurodiversity researcher. Disability rights advocate. Developmental psychologist; Senior Lecturer in Psychology at the University of Portsmouth.
He/him. Views my own.
This reminds me of how Catherine Lord, speaking for the workgroup for the revision of autism in the DSM-5, said autism includes strengths but they are irrelevant for diagnosis.

Yet holistic assessment would strengthen research, understanding, and practice.
onlinelibrary.wiley.com/doi/full/10....
February 2, 2026 at 11:44 AM
Reposted by Steven Kapp
Last month, Secretary Kennedy had a press conference where he claimed that the original intent of the ADA was to exclude trans people. So I asked a bunch of experts and someone who was actually there.
Disability groups are standing united for trans rights. That hasn't always been the case.
Forty years ago, disability advocates abandoned the LGBTQ+ community in exchange for legal protections. Decades later, they are fighting a Trump administration rule to roll-back more safeguards for tr...
19thnews.org
January 29, 2026 at 1:23 PM
Looking forward to my module (class) Neurodiversity Studies restarting tomorrow. I give students early access to research & we discuss current developments/news, in addition to planned structure. Links to news below:
sam.gov/workspace/co...
arstechnica.com/health/2026/...
www.hhs.gov/press-room/h...
January 28, 2026 at 10:08 PM
Reposted by Steven Kapp
Folks tend to assume that anyone who claims to be an autism advocate is working on behalf of autistic people's wellbeing. Unfortunately, that is often untrue—especially with parents who promote " #ProfoundAutism." Why? @ejwillingham.bsky.social explains in our latest, thread-worthy newsletter. 1/
January 27, 2026 at 3:38 AM
Reposted by Steven Kapp
“We already knew that self-identifying autistic adults often encountered barriers when seeking a diagnosis… We also did not know that most self-identifying adults want a diagnosis. This is the first study to report greater unemployment, worse mental well-being, and greater unmet support needs...”
January 25, 2026 at 9:30 AM
While UK is proposing to narrow diagnoses (!), our new study led by @isaacahuvia.bsky.social: adults w/ self-identified autism had more unmet needs & higher distress, & similar understanding of autism, than officially diagnosed peers. Most wanted formal diagnosis journals.sagepub.com/doi/10.1177/...
Identifying as Autistic Without a Formal Diagnosis: Who Self-Identifies as Autistic and Why? - Isaac L. Ahuvia, Emine Gurbuz, Josephine Cuda, Steven K. Kapp, Abigail Houck, Jacquelyn A. Gates, Jessica...
Background: Adults increasingly self-identify as autistic without a formal diagnosis, yet little research has systematically investigated (a) the unique charact...
journals.sagepub.com
January 24, 2026 at 8:32 PM
Quoted in CNN & Guardian “implication is that society needs to stop going down rabbit holes of seeking false prevention of developmental disabilities. Instead, we should focus on making the world a better place for disabled people.”
edition.cnn.com/2026/01/16/h...
www.theguardian.com/society/2026...
Study debunks Trump claim that paracetamol causes autism
Taking drug in pregnancy does not raise chances of autism, ADHD or intellectual disability, ‘gold standard’ review finds
www.theguardian.com
January 17, 2026 at 10:25 PM
Reposted by Steven Kapp
I don't think people who haven't gone through burnout understand what burnout is. And autistic burnout in particular. Higher education is perfectly designed to induce it and I'm trying very hard to reconcile my career with my ability to function day-to-day.
I dunno which industry he’s talking about but it applies to Higher Education.

The scale of redundancy plans & hiring freezes is clearly creating situations in which those who remain are at higher risk of burnout.

It’s a serious health & safety issue That most employers are not taking seriously
Burnout is genuinely life-destroying and I really can't say, on this website, what I think should happen to managers who not only let it happen to one individual worker but who systemically make it happen on large groups of workers.
January 17, 2026 at 10:31 AM
"assisted methods to teach typing, long dismissed, deserve new, careful study. Revisiting these teaching methods could expand access to effective communication and improve quality of life for more nonspeaking autistic people."
Milestone publication for INSAR.
onlinelibrary.wiley.com/doi/10.1002/...
Why We Need to Study Assisted Methods to Teach Typing to Nonspeaking Autistic People
At least one third of autistic people have limited or no speech. Most nonspeaking autistic people are never provided alternatives that would enable the full range of expression that speech allows, si...
onlinelibrary.wiley.com
January 13, 2026 at 7:19 PM
Reposted by Steven Kapp
Yes, JD. Let’s ask them if they think a stay at home mom, avowed Christian, and widow of a veteran deserved to be shot in the face and left to bleed out in her own car after dropping her 6-year-old off at school, for the crime of looking out for her neighbors. Let’s ask everyone running for office.
January 8, 2026 at 8:27 PM
Reposted by Steven Kapp
The Autism Intersectionality & Mental health outcomes (AIM) Lab at the UNC TEACCH Autism Program is recruiting participants for a new research study

paid!!!

to understand the experiences and opinions of autistic people about psychiatric medication for co-occurring mental health conditions.
January 7, 2026 at 8:28 PM
Reposted by Steven Kapp
- Helping a friend with recruitment -

If anyone here knows a queer and neurodivergent TikTok user aged 16-25 who would be up for an online interview (including silent scrolling time!), would you let them know about my study?

I would be so grateful 🎓🌈

linktr.ee/nqresearch.s...
January 5, 2026 at 11:40 AM
Congratulations to @kmunday.bsky.social and all you accomplished last year! Well done navigating "side quests" (you accepted nearly all the ones you brought to my attention). This is one perhaps most relevant to the PhD.
Your plainer language summary is again here: autisticltd.co.uk/2025/12/22/u...
January 2, 2026 at 11:26 PM
New paper (w/ accompanying video) below by @themiskaraminis.bsky.social shows trust in right-wing newspapers relates to harsher attitudes toward autistic ppl despite what ppl admit.
Ties in w/ @thinkingautism.com’s piece connecting grievance parents to MAGA:
thinkingautismguide.com/2022/11/grie...
December 15, 2025 at 6:24 PM
UK Government is trying to co-opt neurodiversity movement through claiming neurodivergents may simply be different & not disabled, when we advocate we are both (& disability is social-relational). We need more diagnoses - research: self-identified autistic ppl have more distress & higher unmet needs
December 6, 2025 at 3:07 PM
Reposted by Steven Kapp
We have a new paper out! We interviewed 8 autistic teachers to ask about their experiences in US schools. www.liebertpub.com/doi/epub/10....
December 3, 2025 at 4:20 PM
Beyond paper below I've contributed to many research outputs lately on reshaping research & practice for justice for neurodivergent ppl inc
Epistemic Justice, Safety, and Neurodiversity-Affirming Practice: A Lived Experience-Led Response to Wade and Waller (2025)
www.researchgate.net/publication/...
December 3, 2025 at 10:58 AM
This manuscript is the culmination of years of discussions and work on how projects that aspire to do participatory research with autistic people can truly be inclusive and neurodiversity-affirming, reflecting our experiences on two initiatives. Nothing About Us Without Us!
New preprint alert! Drawing from our experiences and observations on two initiatives with participatory aspirations, we have identified challenges, strategies, and recommendations for better and neurodiversity-affirming autism research. 10.13140/RG.2.2.27146.12481 1/
December 3, 2025 at 10:36 AM
Leading health+
www.apha.org/news-and-med...
and autism & disability organizations
autisticadvocacy.org/2025/11/lead... have released "big tent" statements calling out the CDC's lies about vaccines & autism.
We need to also call for RFK Jr.'s resignation - his agenda is a danger to public health.
Leading Autism and Disability Organizations Statement on CDC's Vaccines and Autism Page
As national organizations dedicated to advancing the well-being of autistic individuals and partners across the disability and public health sectors, we are deeply disappointed by the latest update to...
autisticadvocacy.org
November 26, 2025 at 9:20 PM
Reposted by Steven Kapp
Want to help with autism research? The Social Experiences of Loneliness of Autistic Adults (SELA) Project at the AJ Drexel Autism Institute is forming a Community Council of autistic adults (ages 18–35) to help guide a 5-year study on loneliness and social connection. Info in flyer and alt-text.
November 6, 2025 at 6:31 PM
Dozens of rigorous studies with millions of children show vaccines don’t cause autism, as health organizations around the world and the leading autism organizations recognize. RFK Jr. and Acting CDC Director Jim O’Neill are a danger to science and public health.
autisticadvocacy.org/2025/11/kenn...
Kennedy’s lies endanger public health and the disabled community
The science is clear. As the American Academy of Pediatrics stated, “Since 1998, independent researchers across seven countries have conducted more than 40 high-quality studies involving over 5.6 mill...
autisticadvocacy.org
November 21, 2025 at 1:10 AM
Reposted by Steven Kapp
A qualitative analysis by @kanabaletti.bsky.social et al found that autistic adults face a conflict between balancing their desire for social connection with their limited energy for engaging in social experiences.

FREE until 25th November

www.liebertpub.com/doi/10.1177/...
“Trapped in a No-Win Situation”: A Qualitative Exploration of Autistic Adults’ Experiences of Loneliness | Autism in Adulthood
Background: Loneliness is a major public health concern, affecting individuals’ mental and physical health. Autistic adults self-report higher levels of loneliness compared with non-autistic adults, y...
www.liebertpub.com
November 14, 2025 at 9:26 AM
Reposted by Steven Kapp
In an online survey by @tmburns08.bsky.social @drmbothapsych.bsky.social @durhampsych.bsky.social, autistic people had more distress and conflict around their identity and poorer mental health than non-autistic people.

FREE until November 25th

www.liebertpub.com/doi/10.1177/...
Who Am I: The Balance Between Masking and Identity | Autism in Adulthood
Background: Autistic people experience worse mental health outcomes than non-autistic people. Masking (concealing autistic traits) is found to relate to poor mental health. Research shows that autistic people indicate relationships between masking and difficulties creating or maintaining a sense of identity. Personal identity is rarely studied within autism research. This study aims to bridge this gap by exploring the connection between identity formation difficulties (both social and personal) and its impact on poor mental health in autistic people. It examines levels of identity conflict and distress in autistic and non-autistic people and whether identity distress mediates and identity conflict moderates the relationship between masking and psychological distress. Method: Data were collected for autistic (n = 139) and non-autistic people (n = 133) using an online survey. Results: Autistic people were found to experience higher levels of identity distress, conflict, and psychological distress. Identity distress represents a full mediation of the relationship between masking and psychological distress in the autistic cohort, but a partial mediation in the non-autistic cohort. Identity conflict did not moderate any relationships within the model for either cohort. However, it did have a significant direct relationship with masking identity distress and psychological distress. Conclusions: These findings suggest that autistic people may experience worse mental health outcomes due to difficulties with cohesive identity formation. Additional research into the role of autism in identity development may identify other areas in which identity difficulties negatively impact autistic people, such as long-term planning and suicidality.
www.liebertpub.com
November 12, 2025 at 10:17 PM
Reposted by Steven Kapp
"An essential listen for anyone interested in neurodivergence, gender and disability rights. Katie’s powerful voice, extensive knowledge, and commitment to their community provide a perspective that challenges assumptions and inspires action"
podcasts.apple.com/gb/podcast/i...
Interview with Katie Munday (on the topics of intersectionality, ableism, gender identity, research, activism, advocacy & more)
Podcast Episode · The Autism Podcast · 12/11/2025 · 1h 18m
podcasts.apple.com
November 12, 2025 at 1:45 PM