Limberation - Limber Up To Live Life
@limberation.com
Otherwise known as @KoparaFallsKid.bsky.social
Movement As Medicine advocate. Follow my writing on Limberation.com
Rheumatoid Arthritis patient. Previously diagnosed Psoriatic Arthritis patient. Probably both. Two titantium knees.
Movement As Medicine advocate. Follow my writing on Limberation.com
Rheumatoid Arthritis patient. Previously diagnosed Psoriatic Arthritis patient. Probably both. Two titantium knees.
Pinned
🧵 1
Was just talking to a friend who is immunocompromised.
Thought I'd share my tip to friend here for those who are immunosuppressed/immunocompromised.
It is allowable and was recommended to me by a docter to have 2 flu vax a year, so I do. March & September.
#ChronicIllness
Was just talking to a friend who is immunocompromised.
Thought I'd share my tip to friend here for those who are immunosuppressed/immunocompromised.
It is allowable and was recommended to me by a docter to have 2 flu vax a year, so I do. March & September.
#ChronicIllness
Reposted by Limberation - Limber Up To Live Life
At #MauiDerm2026, Linda Stein Gold, MD, shared key insights on emerging psoriasis therapies—and why early recognition of psoriatic arthritis matters. From PsA red flags to navigating IL-23s, IL-17s & TYK2s, watch the full interview:
Emerging Psoriasis, PsA Drugs and Future Developments in Dermatology, With Linda Stein Gold, MD | HCPLive
This interview with Stein Gold continues her discussion of new and emerging psoriasis therapies in 2026.
www.hcplive.com
February 6, 2026 at 4:00 AM
At #MauiDerm2026, Linda Stein Gold, MD, shared key insights on emerging psoriasis therapies—and why early recognition of psoriatic arthritis matters. From PsA red flags to navigating IL-23s, IL-17s & TYK2s, watch the full interview:
Reposted by Limberation - Limber Up To Live Life
Most doctors’ knowledge of Long COVID vs The published Long COVID science.
February 7, 2026 at 4:51 AM
Most doctors’ knowledge of Long COVID vs The published Long COVID science.
Reposted by Limberation - Limber Up To Live Life
#Medsky🧪 #IDsky #Neurosky #publichealth @nature.com This study has redefined #ParkinsonsDisease (PD) as a disorder of the Somato-Cognitive Action Network (SCAN), a brain system that integrates whole-body movement, cognition, and internal physiological states
www.nature.com/articles/s41...
www.nature.com/articles/s41...
Parkinson’s disease as a somato-cognitive action network disorder - Nature
The substantia nigra and all Parkinson’s disease deep-brain stimulation targets are selectively connected to the somato-cognitive action network rather than to effector-specific motor regions.
www.nature.com
February 7, 2026 at 5:42 AM
#Medsky🧪 #IDsky #Neurosky #publichealth @nature.com This study has redefined #ParkinsonsDisease (PD) as a disorder of the Somato-Cognitive Action Network (SCAN), a brain system that integrates whole-body movement, cognition, and internal physiological states
www.nature.com/articles/s41...
www.nature.com/articles/s41...
#ChronicIllness First up, let me say I do love my myotherapist - as in love his work.
BUT he has this habit of asking "And what are your plans for the weekend?"
Always a stark reminder I'm doing NOTHING exciting, I have no social circle and no family here. Life can be boring!
(1/2)
BUT he has this habit of asking "And what are your plans for the weekend?"
Always a stark reminder I'm doing NOTHING exciting, I have no social circle and no family here. Life can be boring!
(1/2)
February 6, 2026 at 10:01 PM
#ChronicIllness First up, let me say I do love my myotherapist - as in love his work.
BUT he has this habit of asking "And what are your plans for the weekend?"
Always a stark reminder I'm doing NOTHING exciting, I have no social circle and no family here. Life can be boring!
(1/2)
BUT he has this habit of asking "And what are your plans for the weekend?"
Always a stark reminder I'm doing NOTHING exciting, I have no social circle and no family here. Life can be boring!
(1/2)
Not all my days a great, even if I give that impression.
I woke up at 1:56 am, cld not get back to sleep. Got awful stomach pain at 3:30 am (yes, I know a heart attack can feel like indigestion) it only lasted 8 minutes, but OUCH! A 2nd episode around 5:30 am. OK since.
#ChronicIllness
I woke up at 1:56 am, cld not get back to sleep. Got awful stomach pain at 3:30 am (yes, I know a heart attack can feel like indigestion) it only lasted 8 minutes, but OUCH! A 2nd episode around 5:30 am. OK since.
#ChronicIllness
February 5, 2026 at 10:19 PM
Not all my days a great, even if I give that impression.
I woke up at 1:56 am, cld not get back to sleep. Got awful stomach pain at 3:30 am (yes, I know a heart attack can feel like indigestion) it only lasted 8 minutes, but OUCH! A 2nd episode around 5:30 am. OK since.
#ChronicIllness
I woke up at 1:56 am, cld not get back to sleep. Got awful stomach pain at 3:30 am (yes, I know a heart attack can feel like indigestion) it only lasted 8 minutes, but OUCH! A 2nd episode around 5:30 am. OK since.
#ChronicIllness
Told my GP today:
"I don't have the patience to be a patient."
"I don't have the patience to be a patient."
February 5, 2026 at 9:56 AM
Told my GP today:
"I don't have the patience to be a patient."
"I don't have the patience to be a patient."
Batch cooking day today.
I hope I haven't bitten off more than I can chew (no pun intended) given I'll be standing doing food prep in this stupid moon boot (5 days to go of THAT).
It occurs to me perhaps I should buy a stool of some sort for working at the kitchen bench.
#surgery #ChronicIllness
I hope I haven't bitten off more than I can chew (no pun intended) given I'll be standing doing food prep in this stupid moon boot (5 days to go of THAT).
It occurs to me perhaps I should buy a stool of some sort for working at the kitchen bench.
#surgery #ChronicIllness
February 4, 2026 at 10:35 PM
Batch cooking day today.
I hope I haven't bitten off more than I can chew (no pun intended) given I'll be standing doing food prep in this stupid moon boot (5 days to go of THAT).
It occurs to me perhaps I should buy a stool of some sort for working at the kitchen bench.
#surgery #ChronicIllness
I hope I haven't bitten off more than I can chew (no pun intended) given I'll be standing doing food prep in this stupid moon boot (5 days to go of THAT).
It occurs to me perhaps I should buy a stool of some sort for working at the kitchen bench.
#surgery #ChronicIllness
Reposted by Limberation - Limber Up To Live Life
"We invite u to attend this symposium, featuring leading #Hemostasis experts—Dr. Steven Pipe & Prof Katrien Devreese, along with 2 patient #advocates." — I am excited to be a speaker for #Werfen! Sign up to watch 🙂 buff.ly/vtjPjQI
#AntiphospholipidSyndrome #MedSky #ChronicIllness #rheumatology
#AntiphospholipidSyndrome #MedSky #ChronicIllness #rheumatology
Webinar: Shared Journeys in Hemostasis: Connecting Patient Voices with Hot Topics in the Hemostasis Laboratory | Werfen North America
LOG IN
buff.ly
February 2, 2026 at 8:30 PM
"We invite u to attend this symposium, featuring leading #Hemostasis experts—Dr. Steven Pipe & Prof Katrien Devreese, along with 2 patient #advocates." — I am excited to be a speaker for #Werfen! Sign up to watch 🙂 buff.ly/vtjPjQI
#AntiphospholipidSyndrome #MedSky #ChronicIllness #rheumatology
#AntiphospholipidSyndrome #MedSky #ChronicIllness #rheumatology
Very good idea! Fits with pacing of activity etc too. I restarted my exercise regime in 2015 (after I became a #ChronicIllness patient in 2014) walking 5 minutes, 4 times a day. Built up from there.
Not a fan of the gym? Why you should try 'exercise snacking'
#exercise #health
Not a fan of the gym? Why you should try 'exercise snacking'
#exercise #health
Not a fan of the gym? Why you should try 'exercise snacking'
How you can make a big difference to your health and fitness without signing up for a marathon or joining a gym.
www.bbc.com
February 2, 2026 at 8:21 PM
Very good idea! Fits with pacing of activity etc too. I restarted my exercise regime in 2015 (after I became a #ChronicIllness patient in 2014) walking 5 minutes, 4 times a day. Built up from there.
Not a fan of the gym? Why you should try 'exercise snacking'
#exercise #health
Not a fan of the gym? Why you should try 'exercise snacking'
#exercise #health
Reposted by Limberation - Limber Up To Live Life
“That voice telling you to do more, be less of a burden, prove yourself constantly? That’s not your intuition. That’s conditioning. And you’re not #broken for believing it.”: buff.ly/7HtOE7e
by @thethrivingspoonie.com
#ableism #ChronicPain #ChronicIllness #disability
by @thethrivingspoonie.com
#ableism #ChronicPain #ChronicIllness #disability
Unlearning Internalized Ableism: The Lies We Tell Ourselves and How to Break Free
Discover the impact of internalized ableism and how it influences our beliefs about ourselves and our abilities.
buff.ly
February 1, 2026 at 2:30 AM
“That voice telling you to do more, be less of a burden, prove yourself constantly? That’s not your intuition. That’s conditioning. And you’re not #broken for believing it.”: buff.ly/7HtOE7e
by @thethrivingspoonie.com
#ableism #ChronicPain #ChronicIllness #disability
by @thethrivingspoonie.com
#ableism #ChronicPain #ChronicIllness #disability
I'm going to have ice cream. Stuff it.
#ChronicIllness adventures. My BP's gone weird again so back on BP med. 🤬 This has only happened post surgery, no idea, what's going on. Looks like I'll be doing a 24 hour BP monitor gig. 🙄
Then I have a weird bruise that's appeared out of nowhere, but have been off anti-clot med for 2 weeks now.🤷🏻♀️
Then I have a weird bruise that's appeared out of nowhere, but have been off anti-clot med for 2 weeks now.🤷🏻♀️
January 31, 2026 at 7:47 AM
I'm going to have ice cream. Stuff it.
Reposted by Limberation - Limber Up To Live Life
"We joke, darkly. We vent, shamelessly..we say the things we can’t say outside this circle..Because the #truth is, it’s not about being #negative. It’s about being real. & most people can’t handle real. But we can. We do. Every damn day.": buff.ly/uAxe986
by @unremarkableme.bsky.social
#ChronicPain
by @unremarkableme.bsky.social
#ChronicPain
The Things We Only Say to Each Other
Chronic Illness, Emotional Teaspoons, and the Art of Not Throat-Punching Your Loved Ones.Living with a chronic illness is a bit like being stuck in a never-ending escape room. Except you don’t get…
buff.ly
January 31, 2026 at 3:30 AM
"We joke, darkly. We vent, shamelessly..we say the things we can’t say outside this circle..Because the #truth is, it’s not about being #negative. It’s about being real. & most people can’t handle real. But we can. We do. Every damn day.": buff.ly/uAxe986
by @unremarkableme.bsky.social
#ChronicPain
by @unremarkableme.bsky.social
#ChronicPain
Reposted by Limberation - Limber Up To Live Life
"the #blessing & scourge of the 21st century is #convenience – fast food & deliveries, speedy transportation, immediate online purchases, etc. It has never been easier to obtain our material end #goals simply by sitting on our bums.": buff.ly/HnNNiMd
#society #grateful #ChronicIllness #disability
#society #grateful #ChronicIllness #disability
10 Very Normal Things I am Grateful I Can Do
Here are 10 very normal and healthy things that I'm grateful I can do, despite struggling with chronic illness and disability.
buff.ly
January 31, 2026 at 4:30 AM
"the #blessing & scourge of the 21st century is #convenience – fast food & deliveries, speedy transportation, immediate online purchases, etc. It has never been easier to obtain our material end #goals simply by sitting on our bums.": buff.ly/HnNNiMd
#society #grateful #ChronicIllness #disability
#society #grateful #ChronicIllness #disability
Reposted by Limberation - Limber Up To Live Life
There is a storyline in Season 2 of #ThePitt about a patient with #diabetes rationing their #insulin because they don’t have health insurance, and it really hit home for me. A friend of mine died for this very same reason. My child has #T1D and even with good insurance it isn’t cheap.
1/2
1/2
January 31, 2026 at 4:45 AM
#ChronicIllness adventures. My BP's gone weird again so back on BP med. 🤬 This has only happened post surgery, no idea, what's going on. Looks like I'll be doing a 24 hour BP monitor gig. 🙄
Then I have a weird bruise that's appeared out of nowhere, but have been off anti-clot med for 2 weeks now.🤷🏻♀️
Then I have a weird bruise that's appeared out of nowhere, but have been off anti-clot med for 2 weeks now.🤷🏻♀️
January 31, 2026 at 5:33 AM
#ChronicIllness adventures. My BP's gone weird again so back on BP med. 🤬 This has only happened post surgery, no idea, what's going on. Looks like I'll be doing a 24 hour BP monitor gig. 🙄
Then I have a weird bruise that's appeared out of nowhere, but have been off anti-clot med for 2 weeks now.🤷🏻♀️
Then I have a weird bruise that's appeared out of nowhere, but have been off anti-clot med for 2 weeks now.🤷🏻♀️
Reposted by Limberation - Limber Up To Live Life
In the last few years in #raredisease, we've gone from "Cure" being almost a forbidden word to hearing it every day. Rare disease patient families don't use the word "cure" lightly, & we are realistic in our optimism. @ingohelbig.bsky.social explores this in Cure vs. treat
bit.ly/3Z7HpGo
bit.ly/3Z7HpGo
Cure vs. treat: the Babel problem in rare disease language
Language. There are a few words in medicine that seem simple until you say them out loud in front of the wrong audience. In rare disease clinics, two of them are cure and treat. We use them consta…
epilepsygenetics.blog
January 30, 2026 at 12:26 AM
In the last few years in #raredisease, we've gone from "Cure" being almost a forbidden word to hearing it every day. Rare disease patient families don't use the word "cure" lightly, & we are realistic in our optimism. @ingohelbig.bsky.social explores this in Cure vs. treat
bit.ly/3Z7HpGo
bit.ly/3Z7HpGo
Reposted by Limberation - Limber Up To Live Life
MS symptoms aren’t always visible.
Fatigue, brain fog, pain, and emotional changes often go unseen — but they are real.
Understanding starts with listening.
Learn more at livewithms.com.
#MultipleSclerosis #MSInMen #InvisibleIllness #ChronicIllnessAwareness #MSCommunity #LiveWithMS
Fatigue, brain fog, pain, and emotional changes often go unseen — but they are real.
Understanding starts with listening.
Learn more at livewithms.com.
#MultipleSclerosis #MSInMen #InvisibleIllness #ChronicIllnessAwareness #MSCommunity #LiveWithMS
January 30, 2026 at 12:31 AM
MS symptoms aren’t always visible.
Fatigue, brain fog, pain, and emotional changes often go unseen — but they are real.
Understanding starts with listening.
Learn more at livewithms.com.
#MultipleSclerosis #MSInMen #InvisibleIllness #ChronicIllnessAwareness #MSCommunity #LiveWithMS
Fatigue, brain fog, pain, and emotional changes often go unseen — but they are real.
Understanding starts with listening.
Learn more at livewithms.com.
#MultipleSclerosis #MSInMen #InvisibleIllness #ChronicIllnessAwareness #MSCommunity #LiveWithMS
Reposted by Limberation - Limber Up To Live Life
Long COVID isn’t just a health issue it’s a workforce & economic crisis. Millions affected, billions lost in productivity across the UK & Europe.
Full analysis → longcovidjourney.com/2025/11/24/t...
#LongCOVID #PublicHealth #HealthEconomics #WorkforceImpact #Epidemiology #HealthPolicy
Full analysis → longcovidjourney.com/2025/11/24/t...
#LongCOVID #PublicHealth #HealthEconomics #WorkforceImpact #Epidemiology #HealthPolicy
The True Cost of Long COVID: The Economic and Workforce Impact in the UK and Europe
Long COVID significantly impacts individuals, health systems, and economies, particularly in the UK and Europe. It results in billions of economic costs annually due to reduced workforce participat…
longcovidjourney.com
January 29, 2026 at 9:56 PM
Long COVID isn’t just a health issue it’s a workforce & economic crisis. Millions affected, billions lost in productivity across the UK & Europe.
Full analysis → longcovidjourney.com/2025/11/24/t...
#LongCOVID #PublicHealth #HealthEconomics #WorkforceImpact #Epidemiology #HealthPolicy
Full analysis → longcovidjourney.com/2025/11/24/t...
#LongCOVID #PublicHealth #HealthEconomics #WorkforceImpact #Epidemiology #HealthPolicy
Reposted by Limberation - Limber Up To Live Life
It's Factsheet Friday!
Dizziness & balance issues - these can be signs of Vestibular Migraine. Our updated factsheet explains this subtype, what it looks like, and what treatment options are available. https://www.migraine.org.au/factsheets
more in comments 👇
#migraine #invisibleillness
Dizziness & balance issues - these can be signs of Vestibular Migraine. Our updated factsheet explains this subtype, what it looks like, and what treatment options are available. https://www.migraine.org.au/factsheets
more in comments 👇
#migraine #invisibleillness
January 29, 2026 at 10:06 PM
It's Factsheet Friday!
Dizziness & balance issues - these can be signs of Vestibular Migraine. Our updated factsheet explains this subtype, what it looks like, and what treatment options are available. https://www.migraine.org.au/factsheets
more in comments 👇
#migraine #invisibleillness
Dizziness & balance issues - these can be signs of Vestibular Migraine. Our updated factsheet explains this subtype, what it looks like, and what treatment options are available. https://www.migraine.org.au/factsheets
more in comments 👇
#migraine #invisibleillness
Reposted by Limberation - Limber Up To Live Life
💯 it's what I'd tell someone to include on their care team right from the beginning.
January 29, 2026 at 5:55 PM
💯 it's what I'd tell someone to include on their care team right from the beginning.
Reposted by Limberation - Limber Up To Live Life
"Dr. Manek emphasized the importance of #StressManagement for controlling #inflammation. “The #medications for inflammatory #arthritis & #ConnectiveTissue diseases do not address the stress pathways that are so fundamental..”": buff.ly/HgqQo3C
via ACRheum
#ChronicIllness #AutoimmuneDisease #MedSky
via ACRheum
#ChronicIllness #AutoimmuneDisease #MedSky
Complementary Medicine Meets Rheumatology: New Ways to Reduce Inflammation - The Rheumatologist
At this ACR Convergence 2025 session, the speaker highlighted ways complementary and alternative medicine can be used alongside traditional medical treatments.
buff.ly
January 29, 2026 at 4:30 AM
"Dr. Manek emphasized the importance of #StressManagement for controlling #inflammation. “The #medications for inflammatory #arthritis & #ConnectiveTissue diseases do not address the stress pathways that are so fundamental..”": buff.ly/HgqQo3C
via ACRheum
#ChronicIllness #AutoimmuneDisease #MedSky
via ACRheum
#ChronicIllness #AutoimmuneDisease #MedSky
Reposted by Limberation - Limber Up To Live Life
“Millions of Canadian homes have high levels of cancer-causing radon. Is yours one of them?” www.cbc.ca/news/health/... - CBC News
#Canada #Cancer #Health #Radon
#Canada #Cancer #Health #Radon
Millions of Canadian homes have high levels of cancer-causing radon. Is yours one of them? | CBC News
A long-awaited update to Canada's national building code requires newly built homes to include a type of radon mitigation system. But what about the millions of existing homes that are at risk of havi...
www.cbc.ca
January 29, 2026 at 6:04 AM
“Millions of Canadian homes have high levels of cancer-causing radon. Is yours one of them?” www.cbc.ca/news/health/... - CBC News
#Canada #Cancer #Health #Radon
#Canada #Cancer #Health #Radon
Reposted by Limberation - Limber Up To Live Life
Non-specific symptoms such as #fatigue, #pain or #weightloss can be caused by #cancer, another serious condition or something completely harmless. Researchers from 🇸🇪 @ki.se have developed a simple 🩸 blood test that can help provide relevant clinical information.
Blood test spots cancer in patients with unspecific symptoms
Proteins in the blood can provide early clues
healthcare-in-europe.com
January 29, 2026 at 7:31 AM
Non-specific symptoms such as #fatigue, #pain or #weightloss can be caused by #cancer, another serious condition or something completely harmless. Researchers from 🇸🇪 @ki.se have developed a simple 🩸 blood test that can help provide relevant clinical information.