Nina Hatfield
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ninahatfield.bsky.social
Nina Hatfield
@ninahatfield.bsky.social
she/her, Writer, Learner, Mythologist, chronically ill with #MECFS

I host community peer groups www.co-resting.org

#PWME #Mythology #MyalgicEncephalomyelitis #ChronicFatigue #CFS #Resting #CoResting #Pacing #PEM #MCAS #NEISvoid
Pinned
In response to feeling isolated by chronic illness and appreciative of remote access to community, I host online Co-Resting Groups. They provide a way to gently socialize and rest in community.

Interested or know someone who might be? Please have a look and share!

www.co-resting.org
Co-Resting
virtual gatherings for community support
www.co-resting.org
This is a big part of why I gather with others for co-resting. We're practicing being together and being witnessed just as we are, not through what we're doing.
“We live in a culture that celebrates activity. We collapse our sense of who we are into what we do for a living. The public performance of busyness is how we demonstrate to one another that we are important.”
― Joan Halifax, Standing at the Edge
November 24, 2025 at 10:31 PM
Reposted by Nina Hatfield
Let This Radicalize You - a book I needed in this moment. I've just started but can't stop thinking about it

"When you feel trapped by an oppressive inevitability, you never stop trying to escape, because every jailbreak begins with a decision to reject the inevitable" - @mskellymhayes.bsky.social
November 23, 2025 at 4:08 PM
Reposted by Nina Hatfield
Economists define “good” VERY differently from the rest of life on earth
November 23, 2025 at 6:41 PM
Reposted by Nina Hatfield
When two chronically ill friends try to catch up it means constantly rescheduling your phone call because every day each one of you is feeling shitty for a new reason.
November 23, 2025 at 12:09 AM
Reposted by Nina Hatfield
Moody late autumn vibes in this small 8"x8" for today's #BlueSkyArtShow theme, #small

Tisha Mark ©2025, Quietly Darker, oil on gessobord

Available (includes maple frame):
tishamark.com/product/quie...

#art #painting #TraditionalArt #bsnm #SciArt
November 22, 2025 at 5:11 PM
Reposted by Nina Hatfield
With ICE and border patrol goons spreading out across the country, I put together a resource guide for buying, printing, and distributing whistles, based on my own experience. Now is the time to whistle up, hope this helps. dansinker.com/posts/202…
November 21, 2025 at 9:35 PM
Reposted by Nina Hatfield
People with #MECFS, and many with #LongCOVID experience post-exertional malaise: a flare of symptoms after activity. The response is disproportionate to the activity and can lead to permanent drops in functional capacity.

www.mayoclinicproceedings.org/article/s0025-6196(23)00402-0/fulltext
Diagnosis and Management of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a chronic neurologic disease often preceded by infection. There has been increased interest in ME/CFS recently because of its significant...
www.mayoclinicproceedings.org
November 21, 2025 at 3:56 PM
Reposted by Nina Hatfield
PEM is not a single symptom; it's a pathological state in which response to exertion is shock-like: drops in BP, drops in oxygenation, drops in HR, drops in temp, transient drops in cognitive ability.

And doing exercise more, or harder, or more often does not alter the nature of the response.
November 21, 2025 at 3:56 PM
Reposted by Nina Hatfield
It is one of my favorite things! I especially like the live cam of the bay.
November 20, 2025 at 11:58 PM
Reposted by Nina Hatfield
People in MN, NYC, NO, Philly etc.... should get on this too.
While we might be taking a breath in Chicago, our friends in Charlotte and beyond are suffering. Join us Monday 7p CST as we host a webinar to give a broad overview of our efforts to support street vendors these past few months. RSVP link below.

forms.gle/RxgCoarvNL1w...
November 20, 2025 at 3:57 PM
Reposted by Nina Hatfield
The code is not complicated. Short bursts indicate an ICE sighting. Long whistles indicate agents making arrests. If you hear the whistle and you’re undocumented, you hide. And if you’re somebody who’s not, you go to the street.
www.thecity.nyc/2025/11/17/i...
As ICE Street Raids Ramp Up, New Yorkers Stock Up On Whistles
Taking a cue from Chicago, community groups have distributed thousands of whistles in recent weeks — a grassroots system people in other cities have adopted to help neighbors sound the alarm.
www.thecity.nyc
November 17, 2025 at 10:39 PM
Reposted by Nina Hatfield
Putting the “eeww” in “eugenics.”
November 19, 2025 at 5:49 PM
Reposted by Nina Hatfield
How do you know if you should leave an organizing group or collaboration you are part of? Morgan Bassichis and I talk this through in this video, and you can watch the whole episode on youtube or listen wherever you get podcasts.
November 19, 2025 at 5:57 PM
Reposted by Nina Hatfield
Noem is mad about the whistles. Good job everyone.
November 18, 2025 at 10:50 PM
Reposted by Nina Hatfield
I will never forget having to edit Jamal’s final, posthumous piece for the Washington Post, after he was murdered.

He was calling for free expression in the Arab world. You can read it here :

www.washingtonpost.com/opinions/glo...
Opinion | Jamal Khashoggi: What the Arab world needs most is free expression
The Arab world needs a modern version of the old transnational media so citizens can be informed about global events.
www.washingtonpost.com
November 18, 2025 at 6:48 PM
Reposted by Nina Hatfield
Literature as equipment for living! Reading and writing as work on the self!
Increasingly when teaching I find myself dramatizing and sharing what my literary life is like: loving a book, finding out something new or shocking or unexpected about myself while reading a book, knowing or seeing writers in person, talking about books and teaching and writing with friends, etc.
November 18, 2025 at 3:52 PM
Reposted by Nina Hatfield
The good: I start my new W4 tomorrow.

The bad: My new gig pays *monthly* at the end of each month and I'm starting at the beginning of the period, so I wont get paid until New Years.

There's 12% or $8407 left to close out this ENTIRE campaign. I REALLY need a hand to hold onto the gig.
Oh Hai 👋🏿

If I can keep these gig contracts steady, the last 15% of this campaign (that I started in October 2022) will go to the bigger ticket items that I still need like neonate appropriate pulse oximeters, for ex., and my licensure exam fees.

This is what I came for.
November 16, 2025 at 9:27 PM
Reposted by Nina Hatfield
The AI bubble may be about to bust.

Peter Thiel has sold all of his Nvidia stock.

We all need to say this very clearly:

NO BAILOUTS FOR THEFT-TECH!

Expropriate their asses instead.

They stole from all of us and fully plan to burn the planet.

They owe us - not the other way around. 1/3
November 17, 2025 at 6:37 AM
Reposted by Nina Hatfield
I feel especially grateful for how warmly Alice welcomed chronically ill people into the broader disability community.

1/ #NEISvoid
Alice Wong reminded us that community space matters;

"Community is magic. Community is power. Community is resistance."

May Alice’s memory live on in our shared work, our collective flourishing, and our commitment to freedom and dignity for all.

www.thrivingautistic.org/solidarity/
November 16, 2025 at 9:03 PM
Reposted by Nina Hatfield
If no one in your timeline is grieving the loss of Alice Wong today then you’re not hearing from enough disabled people or even people who listen to disabled people.

That’s a massive segment of society to which you will likely belong some day. Might want to turn an ear toward them sooner than later
November 15, 2025 at 6:55 PM
Reposted by Nina Hatfield
🔥”Defend slowness when it serves a purpose, silence when it speaks and difference when evocative.”
Pope Leo absolutely cooking
November 17, 2025 at 3:29 AM
Reposted by Nina Hatfield
This was very popular a few months ago so I thought I would repost it

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
November 15, 2025 at 9:50 PM
Reposted by Nina Hatfield
It is positively dumbfounding to me that literally ANYONE still has Alexa in their homes, neverminded that they're lining up to buy literal surveillance sunglasses
Every new piece of technology seems designed to invade what little privacy I have left so my life can be sold to private businesses and the surveillance state while also demanding a monthly payment.
November 16, 2025 at 5:40 PM
Reposted by Nina Hatfield
Last night about a dozen of us at NWSA gathered in Alice’s memory & it was good to be in community—to remember her as the sassy perverted bad bitch she was. Seeing the many posts about her makes her death all too real, but seeing how loved, respected & valued she was by so many has helped my heart.
November 16, 2025 at 11:27 AM