Happy Birthday,Billy!!! 🥳🥳🥳

Happy birthday to @bhanlon15.bsky.social and to us all—everyone with ME, LC and IACCs of all kinds are so lucky to be in community with him!

Tonight a neighbor was walking past my home with his family and stopped in his tracks when he saw me. He seemed genuinely happy to see me outside. He asked about Long Covid and promised me he would keep up with the research to share with others. We need more people like him 💛

I was a (paid) test user for this trial and am thrilled w/the accommodations it makes to include people as severely ill as I am!

If you’re in the US and have Long Covid, check it out and share w/friends!

Also: if you don’t see your state yet, you can sign up to be alerted when yours is added!

New followers here’s an intro on me and what I post about:

I have #SevereMECFS and am housebound. (It sucks)

I have an MD, but don’t practice medicine. Other health problems took me out during residency. (Seriously, my life follows Murphy’s Law)

Great news for the Long Covid community!

Debbie @GeneticLifeHack created a 20% off code (longcovid) just for us. Her site explains gene variants in plain language, super helpful for inflammation, detox & methylation.

www.geneticlifehacks.com

Over 71 million Americans are paid less than a living wage, and are forced into social safety nets like SNAP.

If you think too many people are receiving SNAP benefits, don’t shame them.

Shame their employers paying them poverty wages and forcing taxpayers to subsidize the rest.

A mother of 8 was deported within 24 hours of reporting sexual harassment by an ICE contracto

She was following the rules & going through the process to get her green card

Someone working on behalf of ICE abused her.

She spoke out and was kicked out of the country.

It’s retaliation & it’s wrong

Things are so mean-spirited right now, this made me tear up. In the gratuitously cruel age of Donald Trump, Ted Cruz, and Mike Johnson, it's comforting to be reminded that there still are decent human beings that walk amongst us. Thank you, Heretic Coffee in Portland.

Everyday I see a headline telling me how important it is to exercise. And it feels like “Good News: Your Inability to Exercise Is Super Bad for You!” #ME/CFS

Tyla: 'Long Covid' symptoms people are still experiencing to this day have changed an 'entire generation'

'..for some children who are suffering from Long Covid, the painful nightmare is still in full swing'

By Madison Burgess

www.tyla.com/news/long-co...

Researchers reviewed 69 studies across 45 countries and found long COVID was more common in women, middle-aged and older adults.

Obesity, lung disease, anxiety, depression, and no vaccination raised risk, while Omicron infection lowered it.

www.researchsquare.com/article/rs-7...

Check the white house ballroom project

Shouldn't we all be able to commiserate in a safe environment while trying to make sense of Long Covid? You are always welcome to come hang out. You choose to lurk and then go to your space and spread patent lies about me? Would you be okay with your children acting like this? Does honesty matter?

@calbeargirl.bsky.social, we've never had an interaction, yet you disparage my name publicly in Twitter Spaces. I'm a mom who lost everything & is trying to survive every day. People like you and your friends create a hostile environment & make surviving more difficult. My offer to talk is open.

The reason for this and the "oxygen blast" products is because tens of millions of people have vascular damage from repeated COVID infections. They have shortness of breath, POTS, and get winded at lower exercise thresholds. Everything on this list can be caused by COVID and are Sxs of long COVID.

I'm here; DMs are open. I did forget we had a 1-minute ( yes, I'm struggling like everybody else) Exchange about Long Covid ME, and we agreed that Long Covid is not ME. ME is a subset

It's shocking how people interpret reality.

Shouldn't we all be able to commiserate in a safe environment while trying to make sense of Long Covid? You are always welcome to come hang out. You choose to lurk and then go to your space and spread patent lies about me? Would you be okay with your children acting like this? Does honesty matter?

@calbeargirl.bsky.social, we've never had an interaction, yet you disparage my name publicly in Twitter Spaces. I'm a mom who lost everything & is trying to survive every day. People like you and your friends create a hostile environment & make surviving more difficult. My offer to talk is open.

I am just seeing this post!! Going to look up montelukast, thanks!