@wheelieoutthere.bsky.social
MS support. Writer/reporter on disability issues. All things go, all things go.
To manage #MultipleSclerosis, country star Clay Walker feels improvement using a small muscle-relaxant implant. Dxed w RRMS in 1996, Walker uses the baclofen pump to fight spasticity that causes fatigue, pain & tightness.
The 56yo said, “Am I walking perfect? No. Am I walking better? Absolutely."
The 56yo said, “Am I walking perfect? No. Am I walking better? Absolutely."
November 19, 2025 at 12:30 AM
To manage #MultipleSclerosis, country star Clay Walker feels improvement using a small muscle-relaxant implant. Dxed w RRMS in 1996, Walker uses the baclofen pump to fight spasticity that causes fatigue, pain & tightness.
The 56yo said, “Am I walking perfect? No. Am I walking better? Absolutely."
The 56yo said, “Am I walking perfect? No. Am I walking better? Absolutely."
Reposted
Vital reporting from @raeoflion.bsky.social and @juliametraux.bsky.social.
Medicaid-funded services are their lifeline—and make their work possible. But the Trump cuts to the program could change it all.
Meet Audrey and Jeremy, who went viral for talking about how the GOP's Medicaid cuts could devastate their everyday.
Meet Audrey and Jeremy, who went viral for talking about how the GOP's Medicaid cuts could devastate their everyday.
What Trump's Medicaid cuts mean for two podcasters with Down syndrome
Medicaid-funded services are their lifeline—and make their work possible.
www.motherjones.com
November 18, 2025 at 4:19 PM
Vital reporting from @raeoflion.bsky.social and @juliametraux.bsky.social.
Reposted
Alice Wong was a champion for the disability community who devoted her life to building a more inclusive world for all of us.
America is better for her advocacy. Rest in power.
America is better for her advocacy. Rest in power.
November 17, 2025 at 5:31 PM
Alice Wong was a champion for the disability community who devoted her life to building a more inclusive world for all of us.
America is better for her advocacy. Rest in power.
America is better for her advocacy. Rest in power.
Hispanic/Latinx MS Experience Summit, Wed. 11/19, 1-3 PM EST
topics: Aging well w #MultipleSclerosis, financial planning, bilingual Q&A + meetup.
signup: nationalmssociety.org/resources/get-support/education-programs-and-library/hispanic-latinx-ms-experience
Takes place quarterly from MS Society :)
topics: Aging well w #MultipleSclerosis, financial planning, bilingual Q&A + meetup.
signup: nationalmssociety.org/resources/get-support/education-programs-and-library/hispanic-latinx-ms-experience
Takes place quarterly from MS Society :)
November 17, 2025 at 6:17 PM
Hispanic/Latinx MS Experience Summit, Wed. 11/19, 1-3 PM EST
topics: Aging well w #MultipleSclerosis, financial planning, bilingual Q&A + meetup.
signup: nationalmssociety.org/resources/get-support/education-programs-and-library/hispanic-latinx-ms-experience
Takes place quarterly from MS Society :)
topics: Aging well w #MultipleSclerosis, financial planning, bilingual Q&A + meetup.
signup: nationalmssociety.org/resources/get-support/education-programs-and-library/hispanic-latinx-ms-experience
Takes place quarterly from MS Society :)
Reposted
My #MultipleSclerosis manifests neurologically so it feels like I’m often waiting for more functional brain ‘days’ to be able to do tasks that used to be easy
Today is the 1st time in weeks that my 🧠 seems somewhat functional. Hoping it lasts long enough to get some of my to-do-list done🤞🏻
#ThisIsMS
Today is the 1st time in weeks that my 🧠 seems somewhat functional. Hoping it lasts long enough to get some of my to-do-list done🤞🏻
#ThisIsMS
November 17, 2025 at 4:35 PM
My #MultipleSclerosis manifests neurologically so it feels like I’m often waiting for more functional brain ‘days’ to be able to do tasks that used to be easy
Today is the 1st time in weeks that my 🧠 seems somewhat functional. Hoping it lasts long enough to get some of my to-do-list done🤞🏻
#ThisIsMS
Today is the 1st time in weeks that my 🧠 seems somewhat functional. Hoping it lasts long enough to get some of my to-do-list done🤞🏻
#ThisIsMS
Reposted
Reposted
‘Death remains my intimate shadow partner. It has been with me since birth, always hovering close by. I understand one day we will finally waltz together into the ether. I hope when that time comes, I die with the satisfaction of a life well-lived, unapologetic, joyful, & full of love.’
—Alice Wong
—Alice Wong
November 15, 2025 at 6:12 AM
‘Death remains my intimate shadow partner. It has been with me since birth, always hovering close by. I understand one day we will finally waltz together into the ether. I hope when that time comes, I die with the satisfaction of a life well-lived, unapologetic, joyful, & full of love.’
—Alice Wong
—Alice Wong
bringing this statement over from Alice’s Twitter. it appears the below was Alice’s last post before passing. I am heartbroken
November 15, 2025 at 4:32 PM
Alice Wong's is a strong, unapologetic #disability voice. Check out all of her work on her Disability Visibility podcast.
with the unfortunate passing of Alice Wong, I will be reading this book. I’ve already read some of it and it’s really good. I highly recommend looking her up because the things that she did for the disability community will never be forgotten.
November 15, 2025 at 4:27 PM
Alice Wong's is a strong, unapologetic #disability voice. Check out all of her work on her Disability Visibility podcast.
How many family caregivers do you know? It's National Family Caregivers Month
63 million family are caregivers in the U.S., and 5.4 million (8% of population) in the U.K.
Find care & support at www.nationalmssociety.org/managing-ms/for-carepartners
#caregiving #MultipleSclerosis #disability
63 million family are caregivers in the U.S., and 5.4 million (8% of population) in the U.K.
Find care & support at www.nationalmssociety.org/managing-ms/for-carepartners
#caregiving #MultipleSclerosis #disability
November 14, 2025 at 8:15 PM
How many family caregivers do you know? It's National Family Caregivers Month
63 million family are caregivers in the U.S., and 5.4 million (8% of population) in the U.K.
Find care & support at www.nationalmssociety.org/managing-ms/for-carepartners
#caregiving #MultipleSclerosis #disability
63 million family are caregivers in the U.S., and 5.4 million (8% of population) in the U.K.
Find care & support at www.nationalmssociety.org/managing-ms/for-carepartners
#caregiving #MultipleSclerosis #disability
I spoke with her once when she hadn't eaten in a month on a hunger strike. Even then, she had a joyful laugh when speaking. A woman of conviction.
How a Texas shrimper stalled Exxon’s $10bn plastics plant | Shilpi Chhotray
How a Texas shrimper stalled Exxon’s $10bn plastics plant | Shilpi Chhotray
Diane Wilson recognized Exxon’s playbook – and showed how local people can take on even the most entrenched industries
www.theguardian.com
November 14, 2025 at 8:11 PM
I spoke with her once when she hadn't eaten in a month on a hunger strike. Even then, she had a joyful laugh when speaking. A woman of conviction.
Reposted
"Please trust us now when we say that what is happening in the Chicago area is wrong *** It is not law enforcement; it is terror."
Letter from Chicago broadcast veterans: Federal immigration agents have traumatized us and eroded our rights
The fact that some federal immigration forces may be leaving soon is cold comfort given the damage they’ve done.
www.chicagotribune.com
November 13, 2025 at 7:05 PM
"Please trust us now when we say that what is happening in the Chicago area is wrong *** It is not law enforcement; it is terror."
#selfadvocacy win = My doctors are getting a new bone density scanner accessible to me & ALL patients.
Last yr=no scan. So I spoke up for 2 yrs & this yr, doctor backed me up & I followed up w phone calls & emails to admins.
Celebrating w a box of Peanut Butter Crunch. #MultipleSclerosis #disability
Last yr=no scan. So I spoke up for 2 yrs & this yr, doctor backed me up & I followed up w phone calls & emails to admins.
Celebrating w a box of Peanut Butter Crunch. #MultipleSclerosis #disability
November 12, 2025 at 8:19 PM
#selfadvocacy win = My doctors are getting a new bone density scanner accessible to me & ALL patients.
Last yr=no scan. So I spoke up for 2 yrs & this yr, doctor backed me up & I followed up w phone calls & emails to admins.
Celebrating w a box of Peanut Butter Crunch. #MultipleSclerosis #disability
Last yr=no scan. So I spoke up for 2 yrs & this yr, doctor backed me up & I followed up w phone calls & emails to admins.
Celebrating w a box of Peanut Butter Crunch. #MultipleSclerosis #disability
Reposted
#MultipleSclerosis treatment works! Good luck!
#Ocrevus round 13!
It's infusion day! I look forward to my treatment every 6 months. It's slowed the disease progress so much and allowed me to fight Multiple Sclerosis.
This past 6 months I have had less fatigue due to finding the right combination of vitamin supplements. Let's go! #mswarrior
It's infusion day! I look forward to my treatment every 6 months. It's slowed the disease progress so much and allowed me to fight Multiple Sclerosis.
This past 6 months I have had less fatigue due to finding the right combination of vitamin supplements. Let's go! #mswarrior
November 12, 2025 at 2:24 PM
#MultipleSclerosis treatment works! Good luck!
#Veterans & Active-Duty #MultipleSclerosis Support Group, Nov. 20, 5 PM CT
Incl. family, friends & carepartners.
On 3rd Thurs. every mo.
Contax: Deanna Deschenes, [email protected] Ashley Lee, [email protected]
Do you have any vets in your life to thank today? #disability #caregiving
Incl. family, friends & carepartners.
On 3rd Thurs. every mo.
Contax: Deanna Deschenes, [email protected] Ashley Lee, [email protected]
Do you have any vets in your life to thank today? #disability #caregiving
November 11, 2025 at 3:16 AM
#Veterans & Active-Duty #MultipleSclerosis Support Group, Nov. 20, 5 PM CT
Incl. family, friends & carepartners.
On 3rd Thurs. every mo.
Contax: Deanna Deschenes, [email protected] Ashley Lee, [email protected]
Do you have any vets in your life to thank today? #disability #caregiving
Incl. family, friends & carepartners.
On 3rd Thurs. every mo.
Contax: Deanna Deschenes, [email protected] Ashley Lee, [email protected]
Do you have any vets in your life to thank today? #disability #caregiving
Reposted
"[Wordgathering's] aim is to give voice to the emerging genre of #disability #literature. They seek work related to disability or by #writers with #disabilities ..also..interested in reviewing #books of poetry, fiction, memoir & drama.": buff.ly/18v3arK
via @ericaverrillo.bsky.social
via @ericaverrillo.bsky.social
21 Literary Markets for Disabled Writers
Helen Keller Updated 5/5/25 Though most literary journals are more than happy to accept submissions from disabled writers, there are o...
buff.ly
November 8, 2025 at 8:30 PM
"[Wordgathering's] aim is to give voice to the emerging genre of #disability #literature. They seek work related to disability or by #writers with #disabilities ..also..interested in reviewing #books of poetry, fiction, memoir & drama.": buff.ly/18v3arK
via @ericaverrillo.bsky.social
via @ericaverrillo.bsky.social
#BlackMSExperience Summit, Nov. 12 - Aging Well w MS: Financial Planning & Social Connections
1-4 p.m. ET –
feat. Anita McPherson, MS Society
Events.zoom.us/ev/AsDHTn9R21HoRK8BdoO1AAkL0eSwz6-8c5xdHLGGQNWx_lKL1onv~AhYd7fSdiJD3FSPPJH_tiDbLa4722YXdt21SPy3aksHve0q2jXV4ngHyjA
#MultipleSclerosis
1-4 p.m. ET –
feat. Anita McPherson, MS Society
Events.zoom.us/ev/AsDHTn9R21HoRK8BdoO1AAkL0eSwz6-8c5xdHLGGQNWx_lKL1onv~AhYd7fSdiJD3FSPPJH_tiDbLa4722YXdt21SPy3aksHve0q2jXV4ngHyjA
#MultipleSclerosis
Black MS Experience Summit
Events.zoom.us
November 8, 2025 at 9:47 PM
#BlackMSExperience Summit, Nov. 12 - Aging Well w MS: Financial Planning & Social Connections
1-4 p.m. ET –
feat. Anita McPherson, MS Society
Events.zoom.us/ev/AsDHTn9R21HoRK8BdoO1AAkL0eSwz6-8c5xdHLGGQNWx_lKL1onv~AhYd7fSdiJD3FSPPJH_tiDbLa4722YXdt21SPy3aksHve0q2jXV4ngHyjA
#MultipleSclerosis
1-4 p.m. ET –
feat. Anita McPherson, MS Society
Events.zoom.us/ev/AsDHTn9R21HoRK8BdoO1AAkL0eSwz6-8c5xdHLGGQNWx_lKL1onv~AhYd7fSdiJD3FSPPJH_tiDbLa4722YXdt21SPy3aksHve0q2jXV4ngHyjA
#MultipleSclerosis
#Veterans with #MultipleSclerosis - Afghanistan, Iraq, family caregiving, MS... Tracey has faced challenges.
With the right supports, she's now mentoring others.
#Veteran resources from the MS Society: www.nationalmssociety.org/resources/get-support/find-support-groups-and-programs/veterans-with-ms
With the right supports, she's now mentoring others.
#Veteran resources from the MS Society: www.nationalmssociety.org/resources/get-support/find-support-groups-and-programs/veterans-with-ms
November 6, 2025 at 5:44 PM
#Veterans with #MultipleSclerosis - Afghanistan, Iraq, family caregiving, MS... Tracey has faced challenges.
With the right supports, she's now mentoring others.
#Veteran resources from the MS Society: www.nationalmssociety.org/resources/get-support/find-support-groups-and-programs/veterans-with-ms
With the right supports, she's now mentoring others.
#Veteran resources from the MS Society: www.nationalmssociety.org/resources/get-support/find-support-groups-and-programs/veterans-with-ms
Last week I got a triple poke: flu, Covid and RSV — it went well, no side effects.
Got questions about MS & vaccines? On Thurs. 11/6 you can Ask an MS Expert live at 11 AM CST, streaming on FB, YouTube & Twitch.
#vaccines #MultipleSclerosis #disability #caregiving
Got questions about MS & vaccines? On Thurs. 11/6 you can Ask an MS Expert live at 11 AM CST, streaming on FB, YouTube & Twitch.
#vaccines #MultipleSclerosis #disability #caregiving
Empowering people affected by MS to live their best lives
The National Multiple Sclerosis Society exists because there are people with MS. Our vision is a world free of MS.
www.nationalmssociety.org
November 4, 2025 at 11:49 PM
Last week I got a triple poke: flu, Covid and RSV — it went well, no side effects.
Got questions about MS & vaccines? On Thurs. 11/6 you can Ask an MS Expert live at 11 AM CST, streaming on FB, YouTube & Twitch.
#vaccines #MultipleSclerosis #disability #caregiving
Got questions about MS & vaccines? On Thurs. 11/6 you can Ask an MS Expert live at 11 AM CST, streaming on FB, YouTube & Twitch.
#vaccines #MultipleSclerosis #disability #caregiving
"Hungry for Help," Angie Leventis Lourgos, Chicago Tribune today:
Statewide, about 45% of
SNAP benefits go to households
with kids and 44%
include a person with a
#disability, according to
the Illinois Department of Human Services.
Statewide, about 45% of
SNAP benefits go to households
with kids and 44%
include a person with a
#disability, according to
the Illinois Department of Human Services.
November 1, 2025 at 4:39 AM
"Hungry for Help," Angie Leventis Lourgos, Chicago Tribune today:
Statewide, about 45% of
SNAP benefits go to households
with kids and 44%
include a person with a
#disability, according to
the Illinois Department of Human Services.
Statewide, about 45% of
SNAP benefits go to households
with kids and 44%
include a person with a
#disability, according to
the Illinois Department of Human Services.
Halloween spooks + gruff tabloid journalist + the great character actor Darren McGavin ==> FUN
Carl Kolchak: An Appreciation
New post from me on a great collision of actor and character, and the films, shows and post-cancellation afterlife of one of the greats
arowofopengraves.co.uk/2025/10/29/c...
New post from me on a great collision of actor and character, and the films, shows and post-cancellation afterlife of one of the greats
arowofopengraves.co.uk/2025/10/29/c...
Carl Kolchak: An Appreciation
Darren McGavin as Carl Kolchak It’s my esteemed and correct opinion that Carl Kolchak is one of popular culture’s greatest characters. As brought to life by Darren McGavin in a shabby seersuc…
arowofopengraves.co.uk
October 29, 2025 at 10:51 PM
Halloween spooks + gruff tabloid journalist + the great character actor Darren McGavin ==> FUN
Many of us using mobility aids have struggled at times with others’ staring. There’s something joyous then about costuming you & your cane/chair together & provoking even more staring but on your terms. This is me. This is my chair. Also,my costume’s better than yours. #MultipleSclerosis #disability
They Came from Planet Wheelchair! How Costuming Your Wheelchair Adds to the Halloween Fun
Making costumes that work with a wheelchair takes creativity and commitment, but for those who go all in at Halloween, the experience also offers something unexpected: empowerment.
newmobility.com
October 29, 2025 at 5:07 PM
Many of us using mobility aids have struggled at times with others’ staring. There’s something joyous then about costuming you & your cane/chair together & provoking even more staring but on your terms. This is me. This is my chair. Also,my costume’s better than yours. #MultipleSclerosis #disability
"Halloween is for everybody.”
To Gina Schuh, 40, a Mesa, Arizona real estate investor & a quadriplegic from a diving accident, it was never a question of whether or not to dress up with her wheelchair. “Oh, heck no. I think I went even bigger because of it,” she says. #MultipleSclerosis #disability
To Gina Schuh, 40, a Mesa, Arizona real estate investor & a quadriplegic from a diving accident, it was never a question of whether or not to dress up with her wheelchair. “Oh, heck no. I think I went even bigger because of it,” she says. #MultipleSclerosis #disability
October 29, 2025 at 4:54 PM
"Halloween is for everybody.”
To Gina Schuh, 40, a Mesa, Arizona real estate investor & a quadriplegic from a diving accident, it was never a question of whether or not to dress up with her wheelchair. “Oh, heck no. I think I went even bigger because of it,” she says. #MultipleSclerosis #disability
To Gina Schuh, 40, a Mesa, Arizona real estate investor & a quadriplegic from a diving accident, it was never a question of whether or not to dress up with her wheelchair. “Oh, heck no. I think I went even bigger because of it,” she says. #MultipleSclerosis #disability