Sorry. In the first reply you said you recovered in 3 years? was wondering if anything helped recovery? Then you say you never recovered?

Anything help with recovery for you? How old were you if you don’t mind me asking? I’ve improved a lot from where I was, but struggling to restart work or exercise. If I limit everything I don’t feel like death. I’m at 4 years.

ME/CFS is a devastating condition that has long been denied, dismissed, psychologised and underdiagnosed. Research is at last starting to catch up with it, with glimmers of hope for those who have been left untreated for so long.
There's a huge BUT coming ...🧵
www.theguardian.com/society/2025...

“You described Reform and other parties across Europe today as among the 'right wing equivalents of the fascists in the 1930s'. Why?”

“Because that’s what they are”

@vicderbyshire.bsky.social asks Lord Heseltine about remarks he made at Conservative Party Conference.

#Newsnight

I just watched The Bleeding Edge documentary from 2018, about medical devices mainly in the US, and how poorly they are (or at least were, not sure if things have changed) regulated.

A few things stood out 🧵

Nice thread. Despite a long history of medical cover ups, mistakes and oversights, it is remarkable how confident and dismissive the medical community are when faced with patients reporting issues following administration of a new product.

And we saw similar in the covid vaccine trials - participants who were injured were (allegedly) booted from the trials, not included in safety data to regulators, not properly coded on why they didnt complete the trial, and not compensated per their consent form agreement

This is a story we hear over and over again. Doctors repeatedly do not believe what they didnt learn...until they experience it. Its a real problem that things arent believed without experience and this undoubtedly causes a lot of medical harm

This study seems riddled with selection and detection biases and I can't see how any knowledgeable expert could just take the results at face value and conclude a doubling of risk of long-covid with reinfection.

A few comments on this study which finds a doubling of long covid risk with reinfections in children.

1/

Bloody hell.

Ed Miliband turns on Elon Musk. “He incites violence on our steeets. He calls for the overthrow of our government. He disseminates disinformation. He thinks he can tell us how to run Britain. We have a message for Elon Musk: ‘Get the hell out of our politics and our country!’”

Because of Kremlin interference?

🔴Calls for New Inquiry Into Russian Interference After Reform’s Former Welsh Leader Pleads Guilty to Bribery

As the Kremlin steps up its political interference efforts in the West, is it time for a new Russia Report?

bylinetimes.com/2025/10/01/c...

Nathan Gill is no fringe politician.

He was the leader of the Reform Party and before that UKIP in Wales.

A Brexit Party MEP.

A friend and ally of Nigel Farage, who in 2016 called him:

"terrific," and "as honest as the day is long."

This is a MASSIVE story

www.bbc.co.uk/news/article...

Agree
Gill was a UKIP MEP under Farage’s leadership for 6 years
Farage has appeared on Russian state tv 17 times, he says Putin is the leader he most admires and blames NATO for Russia invading Ukraine
Brexit party MEPs under Farage’s leadership vote against plans to tackle Russian propaganda

How is this not front page news?

www.bbc.co.uk/news/article...

this is an extraordinary canary in the coal mine

Nathan Gill, Reform's leader in Wales at the last Welsh parliament election, has pled guilty to 8 bribery charges, taking Russian cash while he was one of Nigel Farage’s MEPs to speak in favour of Putin's Russia in that parliament
www.theguardian.com/uk-news/2025...

Issue is they don’t really care about the rare cases of vaccine/medication harm; it’s just about sowing doubt and division, then utilising that to disassemble public health care. 2nd problem is that nobody else seems to care about rare cases of vaccine harm.

Useful reminder from Peter Kellner on the problems we refuse to acknowledge are getting better, and the politics of hopelessness that this breeds

open.substack.com/pub/kellnerp...

This study ⤵️ + MRI study on brainstem 'broken bridge syndrome' + igg/aabs transmission to mice + decodeME + everything we know from MS
🟰
ME as an (auto)immune reaction affecting specific parts of CNS and nerve-related tissue/cells.

Different symptoms, different nerves, but looks like same model

I wonder for how many years patient groups have pointed out the higher rates of autoimmune issues in endometriosis patients and been met with eye rolls? Similar to POTS, MCAS, ME, Fibro, etc etc. Doctors really need to reassess how they treat patients with conditions that have been under-researched

"described for the first time widespread abnormalities in the function of unmyelinated C fibers, both somatosensory and sympathetic, that could represent a common pathophysiological mechanism explaining the multiplicity of symptoms in #longCOVID"

#MECFS

onlinelibrary.wiley.com/doi/10.1002/...