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derringdo.bsky.social
@derringdo.bsky.social
#LongCovid since March 2020. Art nature science. Mostly here for #LongCovid & adjacent community & topics.
Reposted
Today's column is about the government's huge, unprecedented assault on nature ... and about the eerie, astonishing silence of the big nature groups. The RSPB, National Trust, Wildlife Trusts have 7.5m members between them. A vast force, completely unmobilised. 🧵
www.theguardian.com/commentisfre...
Wage war on nature to build new homes: that’s Labour’s offer, but it’s a con trick | George Monbiot
The government’s new planning bill is tearing down environmental protections to benefit developers. This nation of nature lovers won’t stand for it, says Guardian columnist George Monbiot
www.theguardian.com
October 16, 2025 at 5:52 AM
Reposted
A man was arrested for causing a public nuisance at Heathrow Airport. He'd released tear gas causing several people to feel suddenly ill

IMO the *real* public nuisances were the psych academics who'd claimed the initial symptoms were just "mass psychogenic illness" 🤦

Via @davetuller1.bsky.social
Trial By Error: "Mass Psychogenic Illness" at Heathrow Airport--NOT! | Virology Blog
By David Tuller, DrPH On Monday afternoon, a bunch of people in Terminal 4 at Heathrow, London’s biggest airport, reported feeling ill. The reports led to c ...
virology.ws
September 12, 2025 at 8:48 PM
Reposted
At the final discharge meeting he said she needed to meet other people in recovery from being so poorly. She was literally being starved to death; and there are no venues or opportunities for meeting other people in recovery from very severe ME anywhere. The man is a narcissist equal to all others.
August 20, 2025 at 6:17 AM
Reposted
I'm sure many I know here remember Sheila from our days on X. I'm so sad to read this news. Her advocacy influenced my thinking and was part of the inspiration for my pollinators' garden.

What a loss to her family, community, bumblebees and science.

#GiftLink 🎁

www.thestar.com/news/gta/she...
July 12, 2025 at 12:58 PM
Reposted
Do not use Premier Inn. I booked (it was a rush, don't ask), a 3-bed room in Cardiff.
Here's what they sold me.
Here's what I got.
Despite a long argument, all they will offer is a 19% refund.
Their reason? "Room size and set up can vary based on the hotel and the number of guests."
June 23, 2025 at 9:45 AM
Reposted
🧪
@sunny-rae1.bsky.social
@johnmcdonnellmp.bsky.social
Thank you
Rae for the briefing on #LongCovid you gave John and
John for putting it forward in today’s debate on the Pandemic
June 12, 2025 at 6:02 PM
Reposted
Grateful to @putrinolab.bsky.social and the clinicians, researchers, & PLRC members who authored this response piece in the BMJ yesterday. There are countless biological findings in severe ME, and people with severe ME need to be treated with effective therapies! #pwME www.bmj.com/content/389/...
Patients with severe ME/CFS need hope in the form of evidence-based interventions, not opinions.
www.bmj.com
May 22, 2025 at 5:44 PM
Reposted
A new departure for us as an immunology journal, emphasising the role of patient-led research. Send us submissions 👇
No one has more motivation to advance clinical discovery than patients, which is why Oxford Open #Immunology is launching a special issue spotlighting original patient-led research.

Submit a paper—or tag a colleague who should!

https://oxford.ly/3F6MWX4

#Immunosky @daltmann.bsky.social
May 21, 2025 at 8:22 AM
Reposted
Thank you to some amazing colleagues who took time and precious energy to craft this rapid response to the recent @bmj_latest piece. When people try to hijack #LongCOVID, #MECFS and other complex illness as psychosomatic it is important we strike back: www.bmj.com/content/389/... 1/
Patients with severe ME/CFS need hope in the form of evidence-based interventions, not opinions.
www.bmj.com
May 21, 2025 at 11:07 AM
Reposted
I mean aside from even what it can mean for care, physicians have such a hard time recognizing what a diagnosis can mean for a human who has been struggling damn near their entire life: answers, community, relief, the ability to finally process what is going on in their bodies. It has so much value
May 8, 2025 at 10:08 AM
Reposted
Always feel moved to announce that 90% of my "wild a doctor said this" stories are the same guy.

malpractice Georg, who lives in cave & makes over 10,000 diagnostic errors each day, is an outlier adn should not have been counted
May 8, 2025 at 10:53 AM
Reposted
These threads are always so depressing!

I'll go for my go-to.

When I first told my doc my heart was pounding, often first thing in the morning when I stood up, he told me I had a "phobia of standing".

POTS, folks. That would be POTS.
When I was diagnosed with hEDS at Mayo Clinic the geneticist I spoke to said there was nothing that could be done for it.

In the 6+ years since, I’ve realized just how wrong that was.

What wild, unhelpful, or inaccurate things have you been told by your doctors about your medical condition(s)?
May 8, 2025 at 10:47 AM
Reposted
Are there any more GPs with Long Covid out there who would be interested in reading my article in the British Journal of General Practice (BJGPlife) and maybe comment on it?

#LongCovid

bjgplife.com/suzanne-osul...
April 5, 2025 at 2:03 PM
Reposted
This one was hard.

I wrote about being the wrong kind of victim.

The kind who stayed. The kind who didn't call the police. The kind who texted three days after.

#Writing #Women #Scotland #WritingThroughTrauma #Memoir #BreakingTheSilence

kristie-de-garis.ghost.io/not-the-righ...
Not The Right Kind Of Victim
Most of my friends will learn about many things for the first time when they read my book. Not because I was hiding them. Not exactly. But because the kind of trauma I carry doesn’t naturally come up ...
kristie-de-garis.ghost.io
April 1, 2025 at 10:00 AM
Reposted
🚨 BREAKING: Long COVID research grants rescinded earlier this week have been restored, according to researchers & patient reps. Advocates organized quickly yesterday in response to the news, helping reverse the decision.

Exclusive in @thesicktimes.bsky.social

thesicktimes.org/2025/03/28/u...
UPDATE: RECOVER Long COVID pathobiology grants restored - The Sick Times
Long COVID research grants from the National Institutes of Health’s RECOVER program will be restored following news stories about their abrupt cancellations and advocacy to restore the funding, accord...
thesicktimes.org
March 28, 2025 at 7:36 PM
Reposted
CE&N: 'NIH cancels RECOVER grants for long COVID projects'

'all grants for pathobiology studies that RECOVER funded in 2022 and 2023 were canceled this week'

“For a lot of the researchers on the call, they kind of felt like this was a death knell for RECOVER entirely"

cen.acs.org/policy/resea...
NIH cancels grants through flagship long COVID initiative
Termination ‘a waste of the money we’ve spent already’
cen.acs.org
March 27, 2025 at 2:33 PM
Reposted
I’ve had a several dozen requests to write or be interviewed about the 5th anniversary of Covid and said no to all of them… except this one with @alexis-madrigal.bsky.social. Here’s our chat on the things we’ve memory-holed, and where we go from here.

www.kqed.org/forum/201010...
Ed Yong on the Pandemic’s Legacy on Science Research and Reporting | KQED
As part of our series looking at the legacy of the pandemic five years on, we talk to Ed Yong about how COVID changed our relationship with health news, reporting and research.
www.kqed.org
March 24, 2025 at 8:12 PM
Reposted
Our upcoming trial will evaluate the feasibility of Microtesla Magnetic Therapy (MMT) for addressing cognitive challenges in individuals with #LongCOVID. We are studying those with moderate to severe cognitive impairment. For inquiries email [email protected].
March 13, 2025 at 2:56 PM
Reposted
The new issue of Science Advances (open-access) has multiple papers on women's health. These 2 are related to menopause, hormone replacement and brain health
www.science.org/toc/sciadv/c...
March 5, 2025 at 7:30 PM
Reposted
More propaganda about the Lightning Process, this time in the form of a New Zealand marketing effort cosplaying as an academic paper. virology.ws/2025/03/02/t...
Trial By Error: New Hyped-Up Lightning Process Study from New Zealand | Virology Blog
By David Tuller, DrPH In January, the Journal of Family Medicine and Primary Care published a paper from New Zealand called “An audit of 12 cases of long CO ...
virology.ws
March 2, 2025 at 6:23 PM
Reposted
Important line of research to follow up on — & another example of how there’s not a clear dividing line between infectious & chronic diseases.

alz-journals.onlinelibrary.wiley.com/doi/10.1002/...
Human herpesvirus‐associated transposable element activation in human aging brains with Alzheimer's disease
INTRODUCTION Human herpesvirus (HHV) has been linked to Alzheimer's disease (AD), but the underlying mechanisms remain unknown. METHODS We leveraged functional genomics data from Religious Orders ...
alz-journals.onlinelibrary.wiley.com
February 28, 2025 at 9:05 PM
Reposted
It's remarkable that an 83-year-old is probably generating the most energy in resisting Trumpism, with the exception of AOC.
February 23, 2025 at 9:07 AM
Reposted
Waste clearance from the brain relies on glymphatics, driven by arterial blood flow.
What happens in atrial fibrillation? Evidence for impaired glymphatic and cognition function.
Open-access @escardio.bsky.social
academic.oup.com/eurheartj/ad...
February 21, 2025 at 2:23 PM