grumpyhobbit
@grumpyhobbit.bsky.social
I have a main account, @lattesdotter.bsky.social, but I wanted a separate account to talk about chronic illness and chronic fatigue. I have been suffering Chronic Fatigue for over 10 years and have gotten a lot of support from online communities.
Reposted by grumpyhobbit
In the halls of Congress today for #WorldAIDSDay, activists displayed quilts inspired by the AIDS Memorial Quilt as a reminder for every passerby—visitors, tourists, staff, and Members of Congress alike—that HIV #CutsKill.
Save HIV funding. Save public health. Save lives.
Save HIV funding. Save public health. Save lives.
December 1, 2025 at 9:33 PM
In the halls of Congress today for #WorldAIDSDay, activists displayed quilts inspired by the AIDS Memorial Quilt as a reminder for every passerby—visitors, tourists, staff, and Members of Congress alike—that HIV #CutsKill.
Save HIV funding. Save public health. Save lives.
Save HIV funding. Save public health. Save lives.
Reposted by grumpyhobbit
My mum shared this earlier. 'How long can I sit upright?' has been a daily question for me, especially since 2022 and 'How much pain is 'worth it'?' has been with me most of the time since I fell ill over 20 years ago.
November 24, 2025 at 12:26 AM
My mum shared this earlier. 'How long can I sit upright?' has been a daily question for me, especially since 2022 and 'How much pain is 'worth it'?' has been with me most of the time since I fell ill over 20 years ago.
Reposted by grumpyhobbit
#ME/CFS When the pain flare is active → even small movements hurt
When you do too much → the system reacts
During a flare:
Muscles are more irritable
Threshold is lower
Post-exertional symptoms spike faster
Recovery (from a flare) takes longer
Patience here is protective, not avoidance.
When you do too much → the system reacts
During a flare:
Muscles are more irritable
Threshold is lower
Post-exertional symptoms spike faster
Recovery (from a flare) takes longer
Patience here is protective, not avoidance.
November 26, 2025 at 4:40 AM
#ME/CFS When the pain flare is active → even small movements hurt
When you do too much → the system reacts
During a flare:
Muscles are more irritable
Threshold is lower
Post-exertional symptoms spike faster
Recovery (from a flare) takes longer
Patience here is protective, not avoidance.
When you do too much → the system reacts
During a flare:
Muscles are more irritable
Threshold is lower
Post-exertional symptoms spike faster
Recovery (from a flare) takes longer
Patience here is protective, not avoidance.
Reposted by grumpyhobbit
CALLOUT: I am looking to interview individuals who have sought health care at crisis pregnancy centers, whether intentionally or unintentionally, and want to talk about their experience. The center can be located anywhere. If you or someone you know might be interested, please email or send me a DM.
December 1, 2025 at 8:19 PM
CALLOUT: I am looking to interview individuals who have sought health care at crisis pregnancy centers, whether intentionally or unintentionally, and want to talk about their experience. The center can be located anywhere. If you or someone you know might be interested, please email or send me a DM.
Reposted by grumpyhobbit
If you'd like some good news on AI, the last few weeks have seen execs across multiple industries strive to hide AI usage labeling on their products because, as many of us have said FOR YEARS, the audience that *doesn't* want AI is substantial and we will reject your product whole hog for using it.
December 1, 2025 at 9:35 PM
If you'd like some good news on AI, the last few weeks have seen execs across multiple industries strive to hide AI usage labeling on their products because, as many of us have said FOR YEARS, the audience that *doesn't* want AI is substantial and we will reject your product whole hog for using it.
👋 Call for sources: My name is Julia Métraux, and I am @motherjones.com disability reporter. I am working on a series (to be published before May 1) profiling three American aging adults (50+) about how you're aging independently while taking care of your health. docs.google.com/forms/d/e/1F...
Aging with complex chronic illnesses and disabilities at home
Hi! My name is Julia Métraux, and I am Mother Jones' disability reporter. I am working on a series (to be published before May 1) profiling three American aging adults (50+) about how you're aging ind...
docs.google.com
December 1, 2025 at 9:56 PM
Reposted by grumpyhobbit
They told us that if you didn't have one of these Real ID's we wouldn't be able to fly. WTF?!!!
December 1, 2025 at 9:36 PM
They told us that if you didn't have one of these Real ID's we wouldn't be able to fly. WTF?!!!
Reposted by grumpyhobbit
"Why I Can't Just Meet You for Dinner"
Article by Fred Rossi on the hard and complex realities of #PEM [post-exertional malaise] which are unrecognised by the outside world.
substack.com/home/post/p-...
Screenshot from latest Science for ME weekly update
#MEcfs #LongCovid
Article by Fred Rossi on the hard and complex realities of #PEM [post-exertional malaise] which are unrecognised by the outside world.
substack.com/home/post/p-...
Screenshot from latest Science for ME weekly update
#MEcfs #LongCovid
December 1, 2025 at 12:20 AM
"Why I Can't Just Meet You for Dinner"
Article by Fred Rossi on the hard and complex realities of #PEM [post-exertional malaise] which are unrecognised by the outside world.
substack.com/home/post/p-...
Screenshot from latest Science for ME weekly update
#MEcfs #LongCovid
Article by Fred Rossi on the hard and complex realities of #PEM [post-exertional malaise] which are unrecognised by the outside world.
substack.com/home/post/p-...
Screenshot from latest Science for ME weekly update
#MEcfs #LongCovid
Reposted by grumpyhobbit
To Ground Research in the Lived Experience of Patients and Caregivers, Give Us a Voice! by Jeffrey Lubell @jefflubellc19.bsky.social
www.annfammed.org/content/23/6...
Screenshot from latest Science for ME weekly update
#MEcfs #hEDS #EDS #LongCovid #chronicillness
www.annfammed.org/content/23/6...
Screenshot from latest Science for ME weekly update
#MEcfs #hEDS #EDS #LongCovid #chronicillness
December 1, 2025 at 1:57 AM
To Ground Research in the Lived Experience of Patients and Caregivers, Give Us a Voice! by Jeffrey Lubell @jefflubellc19.bsky.social
www.annfammed.org/content/23/6...
Screenshot from latest Science for ME weekly update
#MEcfs #hEDS #EDS #LongCovid #chronicillness
www.annfammed.org/content/23/6...
Screenshot from latest Science for ME weekly update
#MEcfs #hEDS #EDS #LongCovid #chronicillness
Reposted by grumpyhobbit
Hey guys! Check out my shop! Everything is 25% off for Black Friday :D
#sale #etsysale #pickypad #sensorytoy #stressrelief
#sale #etsysale #pickypad #sensorytoy #stressrelief
Hello BlueSky! Please repost to help a disabled, woman owned small business! I really want my products to bring a little joy to ppl in these tough times. Reusable picky pads, taba squishies, stress balls, and junk phone cases! Every repost is deeply appreciated! snapdragonsquishies.etsy.com
November 28, 2025 at 6:16 PM
Hey guys! Check out my shop! Everything is 25% off for Black Friday :D
#sale #etsysale #pickypad #sensorytoy #stressrelief
#sale #etsysale #pickypad #sensorytoy #stressrelief
Reposted by grumpyhobbit
I have a doctors appointment on Tuesday to get blood tests done. I haven’t had any in 3+ years (or see a doctor actually) so I really should get them but.
Ugh. I don’t wanna. #pwME #MECFS
There are so many other things I could be doing with that little bit of energy instead. And the PEM too. Sigh
Ugh. I don’t wanna. #pwME #MECFS
There are so many other things I could be doing with that little bit of energy instead. And the PEM too. Sigh
November 30, 2025 at 8:30 PM
Reposted by grumpyhobbit
Plasma Pineapple
@plasmapineapple.bsky.social
Science for ME - News in Brief
Week beginning 24th November 2025
Research articles, advocacy, media, and other news related to #MECFS and #LongCOVID
Click the link below to see all news.
@plasmapineapple.bsky.social
Science for ME - News in Brief
Week beginning 24th November 2025
Research articles, advocacy, media, and other news related to #MECFS and #LongCOVID
Click the link below to see all news.
News in Brief - November 2025
This thread has a Science for ME 'News in Brief' post for each week in November 2025 by a team including @Trish, @Kalliope, @ahimsa and @SNT Gatchaman. Scroll down to see this week's news.
www.s4me.info
November 30, 2025 at 8:31 PM
Plasma Pineapple
@plasmapineapple.bsky.social
Science for ME - News in Brief
Week beginning 24th November 2025
Research articles, advocacy, media, and other news related to #MECFS and #LongCOVID
Click the link below to see all news.
@plasmapineapple.bsky.social
Science for ME - News in Brief
Week beginning 24th November 2025
Research articles, advocacy, media, and other news related to #MECFS and #LongCOVID
Click the link below to see all news.
Reposted by grumpyhobbit
In our DDA Review submission we call for a broader disability definition and stronger protection from discrimination for people with ME/CFS and long COVID.
More: zurl.co/NXjkT
#InvisibleDisabilities
More: zurl.co/NXjkT
#InvisibleDisabilities
November 30, 2025 at 9:00 PM
In our DDA Review submission we call for a broader disability definition and stronger protection from discrimination for people with ME/CFS and long COVID.
More: zurl.co/NXjkT
#InvisibleDisabilities
More: zurl.co/NXjkT
#InvisibleDisabilities
Reposted by grumpyhobbit
## Hyper-Specific Sub-Field Selection & Research Topic Generation: **Neuro-Immune Systemic Signaling Modulation via Targeted Microglial Network Rewiring for Mitigation of Chronic Fatigue Syndrome**
**Rationale:** Chronic Fatigue Syndrome (CFS/ME) presents a persistent, debilitating condition with…
**Rationale:** Chronic Fatigue Syndrome (CFS/ME) presents a persistent, debilitating condition with…
## Hyper-Specific Sub-Field Selection & Research Topic Generation: **Neuro-Immune Systemic Signaling Modulation via Targeted Microglial Network Rewiring for Mitigation of Chronic Fatigue Syndrome**
**Rationale:** Chronic Fatigue Syndrome (CFS/ME) presents a persistent, debilitating condition with profound neurological and immunological implications, demonstrating a strong interplay between the nervous and immune systems. Microglia, the brain’s resident immune cells, are increasingly recognized as central drivers of CFS/ME pathology, exhibiting dysregulated activation and aberrant signaling. Targeted modulation of microglial network interactions offers a potentially transformative avenue for therapeutic intervention.
freederia.com
November 30, 2025 at 11:58 PM
## Hyper-Specific Sub-Field Selection & Research Topic Generation: **Neuro-Immune Systemic Signaling Modulation via Targeted Microglial Network Rewiring for Mitigation of Chronic Fatigue Syndrome**
**Rationale:** Chronic Fatigue Syndrome (CFS/ME) presents a persistent, debilitating condition with…
**Rationale:** Chronic Fatigue Syndrome (CFS/ME) presents a persistent, debilitating condition with…
Reposted by grumpyhobbit
The second #art poster inspired by the works of Walter Crane, "Labour is Entitled" (2024) is another three cat portrait commission. The slogan itself was first used in the early 19th century. It features three workers in industries vital to cats: fishing, biscuit making, and catnip production.
November 30, 2025 at 8:20 PM
The second #art poster inspired by the works of Walter Crane, "Labour is Entitled" (2024) is another three cat portrait commission. The slogan itself was first used in the early 19th century. It features three workers in industries vital to cats: fishing, biscuit making, and catnip production.
Reposted by grumpyhobbit
I just found a ramen noodle packet with a use by date in 2021 and folks, I am here to tell you they can absolutely go bad.
November 30, 2025 at 4:11 AM
I just found a ramen noodle packet with a use by date in 2021 and folks, I am here to tell you they can absolutely go bad.
Reposted by grumpyhobbit
November 30, 2025 at 10:10 PM
Reposted by grumpyhobbit
Need a list of local Wawas where the tire air pressure hoses have NOT been chewed on by goblins
November 30, 2025 at 10:39 PM
Need a list of local Wawas where the tire air pressure hoses have NOT been chewed on by goblins
Reposted by grumpyhobbit
Pink-footed Goose this morning on the Mill Pool at Hill Hook NR was a probably a site first (certainly a first for me); also added to house list. Also 2 Cormorant, 2 Shoveler (m+f) & an impressive 115 BHG; 2 Little Egret + 3 Cormorant present yesterday @ecorecord.bsky.social @ruthnewby.bsky.social
November 30, 2025 at 12:28 PM
Pink-footed Goose this morning on the Mill Pool at Hill Hook NR was a probably a site first (certainly a first for me); also added to house list. Also 2 Cormorant, 2 Shoveler (m+f) & an impressive 115 BHG; 2 Little Egret + 3 Cormorant present yesterday @ecorecord.bsky.social @ruthnewby.bsky.social
Reposted by grumpyhobbit
If I told someone I was feeling bad, or having a bad #pain day, I would quickly be reminded there are worse conditions than mine, that I could be dead already..These are all true things, but do not negate my right to have a #BadDay.”: buff.ly/5PkS7w3
from thoughtcatalog
#ChronicPain #NEisVoid
from thoughtcatalog
#ChronicPain #NEisVoid
buff.ly
November 30, 2025 at 12:30 PM
If I told someone I was feeling bad, or having a bad #pain day, I would quickly be reminded there are worse conditions than mine, that I could be dead already..These are all true things, but do not negate my right to have a #BadDay.”: buff.ly/5PkS7w3
from thoughtcatalog
#ChronicPain #NEisVoid
from thoughtcatalog
#ChronicPain #NEisVoid
Reposted by grumpyhobbit
For those that would like to help me now I have a youtube channel that all it takes is a follow and it helps me immensely youtube.com/@FennecFable...
Fennec Fables
Welcome to Fennec Fables! Have a seat at the bar and lets Tell Better Tails!
I post videos about TTRPG systems i love, discuss World Building and Game Mechanic ideas and even share some of my own pe...
youtube.com
November 30, 2025 at 6:47 AM
For those that would like to help me now I have a youtube channel that all it takes is a follow and it helps me immensely youtube.com/@FennecFable...
Reposted by grumpyhobbit
When I had a shop, which wasn't even my lively hood, getting a big order had me skipping and singing
Shop small yall it does wonders and truly helps people
Shop small yall it does wonders and truly helps people
Shopping small is meaningful!
November 30, 2025 at 5:52 AM
When I had a shop, which wasn't even my lively hood, getting a big order had me skipping and singing
Shop small yall it does wonders and truly helps people
Shop small yall it does wonders and truly helps people
Reposted by grumpyhobbit
All packed up now and waiting for a taxi back to my hotel!
Have the luxury of a lie-in tomorrow morning before my trip home tomorrow. 😴
Have the luxury of a lie-in tomorrow morning before my trip home tomorrow. 😴
November 30, 2025 at 6:52 PM
All packed up now and waiting for a taxi back to my hotel!
Have the luxury of a lie-in tomorrow morning before my trip home tomorrow. 😴
Have the luxury of a lie-in tomorrow morning before my trip home tomorrow. 😴
Reposted by grumpyhobbit
1) melatonin
2) breathing exercises
3) white noise machine
4) fan on
5) pajamas
6) special pillow
7) 90 minutes of screen time
2) breathing exercises
3) white noise machine
4) fan on
5) pajamas
6) special pillow
7) 90 minutes of screen time
November 25, 2025 at 4:12 PM
1) melatonin
2) breathing exercises
3) white noise machine
4) fan on
5) pajamas
6) special pillow
7) 90 minutes of screen time
2) breathing exercises
3) white noise machine
4) fan on
5) pajamas
6) special pillow
7) 90 minutes of screen time