gallusa.bsky.social
@gallusa.bsky.social
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There’s still time to participate in Action for ME’s Big Survey!

To take part and find out more, head to Action for ME’s website: www.actionforme.org.uk/research-cam...

Thank you for supporting ME/CFS research.
December 16, 2025 at 10:45 AM
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Disguising yourself as a civilian in order to carry out a lethal attack is called perfidy and it’s one of the most serious of war crimes. The usual punishment is execution.
U.S. Attacked Boat With Aircraft That Looked Like a Civilian Plane
www.nytimes.com
January 13, 2026 at 12:31 AM
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Pretty willd how the DOJ just straight up stopped releasing the Epstein files even though they're legally obligated to do so.
January 12, 2026 at 7:39 PM
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A bruised hand is minor, soft tissue bleeding. We're talking about a 38% increased risk of brain/head bleeds and other severe hemorrhagic events with low-dose aspirin in people aged 70+
January 4, 2026 at 5:07 PM
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Your fact of the day:

The US Center for Disease Control and Prevention estimates that one in six American citizens suffers a food-borne illness annually. In the UK, the figure is one in 132.

bylinetimes.com/2020/02/28/f...
Fowl Play: How US Chicken Imports will Pollute Britain's Poor
Since joining the EU British food has gone from bog-awful to top-notch, but Otto English reveals how a US Trade deal will unravel 40 years of progress.
bylinetimes.com
January 4, 2026 at 9:12 AM
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Our latest News in Brief summary has headlines and links to further reading for #MECFS, #LongCovid, and related news for the week of Dec. 29 - Jan. 4.

Topics:
News, advocacy and articles
Coming events
Research news and commentary
& Published research

www.s4me.info/threads/news...
News in Brief - January 2026
This thread has a Science for ME 'News in Brief' post for each week in January 2026 by a team including @Trish, @Kalliope, @ahimsa and @SNT Gatchaman. Scroll down to see this week's news.
www.s4me.info
January 4, 2026 at 10:36 PM
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Over the last 12 mths we have seen an increase in requests from #caregivers & #education professionals.

We have a small team working hard to add content each week, keep checking in to see what's new.

www.longcovidkids.org/educational-...

#CharityWebsite #Volunteers #WebsiteDesign #LongCovidKids
November 28, 2025 at 7:12 AM
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Very much like medicine's early resistance to the germ theory of disease, because germs couldn't be observed directly at the time.

This isn't about the same mistakes, it's about the same fallacious reasoning that leads to repeating the same mistakes over and over again.
Irish Farmers Journal: "My life has been shattered by long COVID"

'Part of the reason is because long COVID is “a very hidden disease,” he explains. “Because people get this debilitating fatigue and brain fog..."

www.farmersjournal.ie/life/health/...
‘My life has been shattered by long COVID’
There are more than 200 symptoms related to long COVID, which have a substantial impact on the daily lives of those living with it.
www.farmersjournal.ie
November 28, 2025 at 4:59 PM
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"Our hope is that our research will lead to effective diagnoses and clinical trials in the future." @cgatist.bsky.social talks about his research into Myalgic Encephalomyelitis (ME) which affects 400k people in the UK. Watch here 👉 edin.ac/4p7CFvO
@cmvm-edinburghuni.bsky.social
November 28, 2025 at 3:39 PM
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‘They don’t have symptoms’: CAR-T therapies send autoimmune diseases into remission www.nature.com/articles/d41...
‘They don’t have symptoms’: CAR-T therapies send autoimmune diseases into remission
Engineered T cells that have been used to treat ulcerative colitis, rheumatoid arthritis and lupus show promising results.
www.nature.com
November 27, 2025 at 12:03 PM
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Our recap of last week's Long COVID International Conference is up now at @thesicktimes.org! Featuring summaries of talks that we found most notable (and a few hints about interesting results that aren't public yet). thesicktimes.org/2025/11/25/i...
International Long COVID conference spotlights biomarker and mechanism research - The Sick Times
The event, now in its third year, also revealed updates about clinical trials and healthcare for the disease.
thesicktimes.org
November 25, 2025 at 6:04 PM
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as her advocates.
As a reg SW, I have emailed to share PFD report, NHS Devon clinical guidance, and newly published NHS e-Learning module 3: a lot to digest for any busy hospital.
As yet no invitation to join Zoom or MSTeams meeting.
#pwME, please post support to Savannah. She is afraid for her life
September 8, 2025 at 6:12 PM
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The risk of Trump’s attacks on mail-in ballots is less that he will succeed in muzzling the franchise and more that the president will—as he did in 2020—kick up enough doubt that many Americans no longer trust election results, @qjurecic.bsky.social writes:
Trump Has No (Legal) Power to Mess With the Election
But that won’t stop him from finding ways to make chaos.
bit.ly
August 22, 2025 at 4:15 PM
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Clip from The Guardian’s Science Weekly podcast: MIT researcher Beth Pollack explains #MECFS — severe fatigue not relieved by rest, with post-exertional malaise as the hallmark. She says up to 61% are bedbound some days and severe #MECFS has been compared to late-stage AIDS.
August 22, 2025 at 7:13 AM
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Clip from The Guardian’s Science Weekly podcast: @nickyproctor.bsky.social describes how doctors dismissed her #MECFS as psychological, before she crashed completely and became mostly bedbound, unable even to hold a conversation.
August 21, 2025 at 10:33 AM
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YouTube is using AI to tweak videos on its platform—without creators' knowledge. Alex Reisner reports on the concerning experiment:
YouTube’s Sneaky AI ‘Experiment’
The video platform is quietly using AI to “improve clarity” in uploaded content. Why?
bit.ly
August 22, 2025 at 7:56 PM
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This is absolutely about racism.

White women everywhere this is a call for you to stand up to white men now. We have been too silent for too long with too much fear. We are powerful. We have a voice.

Time to use it.
August 21, 2025 at 3:18 PM
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We did suspect, but this is beyond the pale. Apparently when large, US- centered datasets were inaccessible, their content was altered. 🧪
www.psypost.org/secret-chang...
www.psypost.org
July 16, 2025 at 6:05 PM
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We know that living with ME can be hard, especially when you’re young. The lack of understanding of the condition can make you feel isolated and frustrated.

We’re here to help 🧡

Our free Young People’s Counselling Service is available for children aged 11-18 with suspected or diagnosed ME.
July 14, 2025 at 9:01 AM
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June 5, 2025 at 10:49 PM
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I’m on @todayinfocus.bsky.social podcast talking about my new book, Who Wants Normal?, the “million inequalities” still facing disabled people in the U.K. and why Labour’s cuts mean a positive narrative around disability is more important than ever.

Listen here: www.theguardian.com/p/x2t9a6?CMP...
“It’ll push disabled people into poverty”: Labour’s controversial welfare bill – podcast
Guardian columnist Frances Ryan on the reality of being disabled in the UK and the impact of the government’s proposed cuts
www.theguardian.com
June 27, 2025 at 8:28 AM
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fwiw and I know it’s not much I am a Jew who lives in New York City and while I am neither afraid of Zohran Mamdani nor his views on Israel and Palestine, I’m actually scared as hell about the horrific wave of racism, Islamophobia, and xenophobia that has been unleashed since his primary win
June 26, 2025 at 10:06 PM
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Let’s be absolutely clear. This decision, based on fringe conspiracy theories, will kill children.
www.washingtonpost.com/health/2025/...
RFK Jr. says U.S. will stop funding global vaccine alliance Gavi
Gavi works to expand access to vaccines for children in some of the world’s poorest countries. Health experts say the move could have deadly consequences.
www.washingtonpost.com
June 27, 2025 at 12:27 AM
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Louder for the people in the back: "It has been a public health failure that the public does not realize how much organ damage #COVID infection can cause to things that aren’t your lungs (or throat or nose or taste buds)."

The image below is based on data collected from 80,071 kids and teens:
June 14, 2025 at 3:46 AM
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I urge everyone to read Unbreaking’s new page on everything the govt is doing to destroy & diminish medical research funding.

It’s the best thing I’ve read on this topic: @lizneeley.bsky.social & co have such done an incredible job.

unbreaking.org/issues/medic...
Medical Research Funding — Unbreaking
How the administration is breaking the government, and what that means for all of us.
unbreaking.org
May 30, 2025 at 9:38 PM