Mom of a kid with POTS
@momofakidwithpots.bsky.social
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Reposted by Mom of a kid with POTS
Air pollution ups ANA+: Ontariio Canadi study of 3548 serum samples (2010-13) corrlated particulate matter (PM2.5) w/ serologies. Highest vs lowest quartile PM2.5 showed higher risk of ANA ≥1:640 (OR 1.46) & ≥1:1280 (OR 1.54). Pollution has systemic immune effects! academic.oup.com/rheumatology...
Fine particulate matter air pollution and anti-nuclear antibodies
AbstractObjectives. Air pollution has been increasingly linked to systemic autoimmune rheumatic diseases (SARDs), but studies regarding fine particulate ma
academic.oup.com
February 2, 2026 at 3:02 PM
Air pollution ups ANA+: Ontariio Canadi study of 3548 serum samples (2010-13) corrlated particulate matter (PM2.5) w/ serologies. Highest vs lowest quartile PM2.5 showed higher risk of ANA ≥1:640 (OR 1.46) & ≥1:1280 (OR 1.54). Pollution has systemic immune effects! academic.oup.com/rheumatology...
Reposted by Mom of a kid with POTS
Dr. Kevin Tracey showed that the vagus nerve links the brain to the immune system.
One minute of daily stimulation can reduce inflammation and just got FDA approval for hard-to-treat rheumatoid arthritis.
His book was one of my favorites last year.
erictopol.substack.com/p/vagus-nerv...
One minute of daily stimulation can reduce inflammation and just got FDA approval for hard-to-treat rheumatoid arthritis.
His book was one of my favorites last year.
erictopol.substack.com/p/vagus-nerv...
Vagus Nerve Stimulation and the Immune System
Kevin Tracey, the pioneering neurosurgeon who discovered the connection, talks about the recent FDA approval for rheumatoid arthritis and where this is headed
erictopol.substack.com
February 1, 2026 at 5:28 PM
Dr. Kevin Tracey showed that the vagus nerve links the brain to the immune system.
One minute of daily stimulation can reduce inflammation and just got FDA approval for hard-to-treat rheumatoid arthritis.
His book was one of my favorites last year.
erictopol.substack.com/p/vagus-nerv...
One minute of daily stimulation can reduce inflammation and just got FDA approval for hard-to-treat rheumatoid arthritis.
His book was one of my favorites last year.
erictopol.substack.com/p/vagus-nerv...
Reposted by Mom of a kid with POTS
"Proteomic analysis revealed 35 differentially expressed proteins in hEDS, with 43% involved in the complement cascade and 80% linked to immune, coagulation, or inflammatory pathways."
Proteomic discoveries in hypermobile Ehlers–Danlos syndrome reveal insights into disease pathophysiology October 2025 Griggs, Daylor, Petrucci et al
academic.oup.com/immunohorizo...
#EDS #hEDS #Hypermobility #HSD #Research #Science #Proteomics #Zebras #NEISvoid #Immunology
academic.oup.com/immunohorizo...
#EDS #hEDS #Hypermobility #HSD #Research #Science #Proteomics #Zebras #NEISvoid #Immunology
Proteomic discoveries in hypermobile Ehlers–Danlos syndrome reveal insights into disease pathophysiology
Abstract. Hypermobile Ehlers–Danlos Syndrome (hEDS) is a poorly understood connective tissue disorder that lacks molecular diagnostic markers. This study a
academic.oup.com
January 30, 2026 at 8:53 AM
"Proteomic analysis revealed 35 differentially expressed proteins in hEDS, with 43% involved in the complement cascade and 80% linked to immune, coagulation, or inflammatory pathways."
Reposted by Mom of a kid with POTS
Yeah, what they said #LongCovid
“you wake up with a certain amount of energy currency each day (let’s say 100 units). A healthy person might have 1,000 units. Everything costs energy: showering 10, getting dressed 5, making breakfast 8, driving to work 15. Work shift 300 units”
“you wake up with a certain amount of energy currency each day (let’s say 100 units). A healthy person might have 1,000 units. Everything costs energy: showering 10, getting dressed 5, making breakfast 8, driving to work 15. Work shift 300 units”
🧵
"Why I Can’t Just Meet You for Dinner: The Reality of Post-Exertional Malaise"
substack.com/home/post/p-...
Thoughtful blog post which tries to explain postexertional malaise & how those who suffer from it need to be very careful with which activities they take on
#LongCovid #PwME #MEcfs
1/
"Why I Can’t Just Meet You for Dinner: The Reality of Post-Exertional Malaise"
substack.com/home/post/p-...
Thoughtful blog post which tries to explain postexertional malaise & how those who suffer from it need to be very careful with which activities they take on
#LongCovid #PwME #MEcfs
1/
January 28, 2026 at 2:41 PM
Yeah, what they said #LongCovid
“you wake up with a certain amount of energy currency each day (let’s say 100 units). A healthy person might have 1,000 units. Everything costs energy: showering 10, getting dressed 5, making breakfast 8, driving to work 15. Work shift 300 units”
“you wake up with a certain amount of energy currency each day (let’s say 100 units). A healthy person might have 1,000 units. Everything costs energy: showering 10, getting dressed 5, making breakfast 8, driving to work 15. Work shift 300 units”
Reposted by Mom of a kid with POTS
1) "...While studies on biopsychosocial factors in physiologic disorders like POTS can be informative, they can also be weaponized by those who continue to erroneously believe that patients with POTS have abnormal behavioral, emotional and coping mechanisms..."
January 26, 2026 at 8:18 AM
1) "...While studies on biopsychosocial factors in physiologic disorders like POTS can be informative, they can also be weaponized by those who continue to erroneously believe that patients with POTS have abnormal behavioral, emotional and coping mechanisms..."
Reposted by Mom of a kid with POTS
Make Visible Podcast: 'The truth about exercise & pacing in ME/CFS, Long Covid, POTS, with Todd Davenport'
www.youtube.com/watch?v=uAXJ...
www.youtube.com/watch?v=uAXJ...
#26 The truth about exercise & pacing in ME/CFS, Long Covid, POTS, with Todd Davenport
YouTube video by Make Visible Podcast
www.youtube.com
January 23, 2026 at 7:33 PM
Make Visible Podcast: 'The truth about exercise & pacing in ME/CFS, Long Covid, POTS, with Todd Davenport'
www.youtube.com/watch?v=uAXJ...
www.youtube.com/watch?v=uAXJ...
“One of your big points is that .. post exertional symptom exacerbation.. is NOT de conditioning “
open.spotify.com/episode/7bgT...
open.spotify.com/episode/7bgT...
#26 The truth about exercise & pacing in ME/CFS, Long Covid, POTS, with Todd Davenport
open.spotify.com
January 23, 2026 at 6:22 PM
“One of your big points is that .. post exertional symptom exacerbation.. is NOT de conditioning “
open.spotify.com/episode/7bgT...
open.spotify.com/episode/7bgT...
Reposted by Mom of a kid with POTS
Our latest work now posted as a pre-print on Research Square: "ME/CFS and Long COVID Demonstrate Similar Bioenergetic Impairment and Recovery Failure on Two-Day Cardiopulmonary Exercise Testing"
Read more: www.researchsquare.com/article/rs-8...
#MECFS #LongCOVID #PEM @sunsopeningband.bsky.social
Read more: www.researchsquare.com/article/rs-8...
#MECFS #LongCOVID #PEM @sunsopeningband.bsky.social
January 22, 2026 at 6:31 PM
Our latest work now posted as a pre-print on Research Square: "ME/CFS and Long COVID Demonstrate Similar Bioenergetic Impairment and Recovery Failure on Two-Day Cardiopulmonary Exercise Testing"
Read more: www.researchsquare.com/article/rs-8...
#MECFS #LongCOVID #PEM @sunsopeningband.bsky.social
Read more: www.researchsquare.com/article/rs-8...
#MECFS #LongCOVID #PEM @sunsopeningband.bsky.social
Reposted by Mom of a kid with POTS
Rome-based researchers studied 96 people post-COVID and found that those with long COVID showed a flattened daily cortisol rhythm.
Morning levels were low, evening levels were high, and severity of symptoms matched the degree of hormonal disruption.
www.frontiersin.org/journals/cel...
Morning levels were low, evening levels were high, and severity of symptoms matched the degree of hormonal disruption.
www.frontiersin.org/journals/cel...
Frontiers | Salivary cortisol in long COVID: a marker of broader stress system and circadian rhythm dysregulation
IntroductionLong COVID (LC) has been associated with hypothalamic–pituitary–adrenal (HPA) axis dysfunction, although findings from blood cortisol measurement...
www.frontiersin.org
January 22, 2026 at 10:42 PM
Rome-based researchers studied 96 people post-COVID and found that those with long COVID showed a flattened daily cortisol rhythm.
Morning levels were low, evening levels were high, and severity of symptoms matched the degree of hormonal disruption.
www.frontiersin.org/journals/cel...
Morning levels were low, evening levels were high, and severity of symptoms matched the degree of hormonal disruption.
www.frontiersin.org/journals/cel...
Reposted by Mom of a kid with POTS
Scientists just mapped tiny veins across the entire living human brain in under 7 minutes using ultra-high resolution MRI.
Previously this kind of detailed view was mainly built from postmortem (after death) methods.
Here’s what they did and why it matters.
Previously this kind of detailed view was mainly built from postmortem (after death) methods.
Here’s what they did and why it matters.
January 23, 2026 at 1:26 PM
Scientists just mapped tiny veins across the entire living human brain in under 7 minutes using ultra-high resolution MRI.
Previously this kind of detailed view was mainly built from postmortem (after death) methods.
Here’s what they did and why it matters.
Previously this kind of detailed view was mainly built from postmortem (after death) methods.
Here’s what they did and why it matters.
#POTS and Mast Cell Activation -
Dr. Amro Stino, MD , University of Michigan
youtu.be/47s4eMYdA54?...
Dr. Amro Stino, MD , University of Michigan
youtu.be/47s4eMYdA54?...
Dysautonomia in Mast Cell Activation Disorders
YouTube video by Dysautonomia International
youtu.be
January 21, 2026 at 9:37 PM
#POTS and Mast Cell Activation -
Dr. Amro Stino, MD , University of Michigan
youtu.be/47s4eMYdA54?...
Dr. Amro Stino, MD , University of Michigan
youtu.be/47s4eMYdA54?...
Reposted by Mom of a kid with POTS
#Medsky🧪 #IDsky #Neurosky #publichealth Histological evidence that autonomic small fiber damage is a central feature of painful #longCOVID
www.frontiersin.org/journals/hum...
Patients with painful #longCOVID show a significant reduction in autonomic nerve fiber densities, specifically
www.frontiersin.org/journals/hum...
Patients with painful #longCOVID show a significant reduction in autonomic nerve fiber densities, specifically
Frontiers | Autonomic small fiber involvement in painful long COVID: a histological and clinical study
BackgroundDespite growing recognition of painful long COVID syndrome as a chronic neurological condition marked by pain and autonomic symptoms, the precise c...
www.frontiersin.org
January 15, 2026 at 3:32 AM
#Medsky🧪 #IDsky #Neurosky #publichealth Histological evidence that autonomic small fiber damage is a central feature of painful #longCOVID
www.frontiersin.org/journals/hum...
Patients with painful #longCOVID show a significant reduction in autonomic nerve fiber densities, specifically
www.frontiersin.org/journals/hum...
Patients with painful #longCOVID show a significant reduction in autonomic nerve fiber densities, specifically
Reposted by Mom of a kid with POTS
UC Davis studied 11 cats with FIP and found the virus infects not just macrophages but also T and B cells.
It replicates inside lymphocytes and can linger even after treatment, offering clues to how long COVID might persist in humans.
www.discovermagazine.com/what-cats-ar...
It replicates inside lymphocytes and can linger even after treatment, offering clues to how long COVID might persist in humans.
www.discovermagazine.com/what-cats-ar...
What Cats Are Revealing About How COVID May Linger in the Human Immune System
Learn how a naturally occurring cat coronavirus is helping reveal how viral infections can linger inside the immune system.
www.discovermagazine.com
January 14, 2026 at 1:51 PM
UC Davis studied 11 cats with FIP and found the virus infects not just macrophages but also T and B cells.
It replicates inside lymphocytes and can linger even after treatment, offering clues to how long COVID might persist in humans.
www.discovermagazine.com/what-cats-ar...
It replicates inside lymphocytes and can linger even after treatment, offering clues to how long COVID might persist in humans.
www.discovermagazine.com/what-cats-ar...
Reposted by Mom of a kid with POTS
New important publication in #LongCovid & #MECFS!
After a viral infection, cells lining our blood vessels can become damaged and enter senescence, similar to accelerated aging. These cells are not healthy, but they also don’t disappear. Instead, they send out constant stress & inflammatory signals.
After a viral infection, cells lining our blood vessels can become damaged and enter senescence, similar to accelerated aging. These cells are not healthy, but they also don’t disappear. Instead, they send out constant stress & inflammatory signals.
January 14, 2026 at 3:31 PM
New important publication in #LongCovid & #MECFS!
After a viral infection, cells lining our blood vessels can become damaged and enter senescence, similar to accelerated aging. These cells are not healthy, but they also don’t disappear. Instead, they send out constant stress & inflammatory signals.
After a viral infection, cells lining our blood vessels can become damaged and enter senescence, similar to accelerated aging. These cells are not healthy, but they also don’t disappear. Instead, they send out constant stress & inflammatory signals.
Reposted by Mom of a kid with POTS
Researchers from the University of Adelaide reviewed over 30 years of data and found that POTS is a complex, often misdiagnosed disorder that affects mostly women and can take 5 to 7 years to diagnose.
Symptoms often worsen after COVID-19.
www.heartlungcirc.org/article/S144...
Symptoms often worsen after COVID-19.
www.heartlungcirc.org/article/S144...
Postural Orthostatic Tachycardia Syndrome: A State-of-the-Art Review
Postural orthostatic tachycardia syndrome (POTS) is a complex disorder mainly of orthostatic
intolerance, often accompanied by a spectrum of symptoms related to autonomic nervous
system dysfunction. A...
www.heartlungcirc.org
January 12, 2026 at 9:01 PM
Researchers from the University of Adelaide reviewed over 30 years of data and found that POTS is a complex, often misdiagnosed disorder that affects mostly women and can take 5 to 7 years to diagnose.
Symptoms often worsen after COVID-19.
www.heartlungcirc.org/article/S144...
Symptoms often worsen after COVID-19.
www.heartlungcirc.org/article/S144...
Reposted by Mom of a kid with POTS
"We believe that internal tremors [in #LongCovid] represent... dysautonomia & small fiber neuropathy... caused by hypovolemia, cerebral hypoperfusion, hyperadrenergic state, mast cell hyperactivation, & neuropathic processes affecting small nerve fibers."
www.mdpi.com/2035-8377/17...
www.mdpi.com/2035-8377/17...
www.mdpi.com
January 8, 2026 at 10:04 PM
"We believe that internal tremors [in #LongCovid] represent... dysautonomia & small fiber neuropathy... caused by hypovolemia, cerebral hypoperfusion, hyperadrenergic state, mast cell hyperactivation, & neuropathic processes affecting small nerve fibers."
www.mdpi.com/2035-8377/17...
www.mdpi.com/2035-8377/17...
Reposted by Mom of a kid with POTS
So many Athletes have had their whole careers derailed by long covid. Busting the narrative proving it can happen to anyone. COVID doesn’t care what our plans are sadly.
January 8, 2026 at 11:37 AM
So many Athletes have had their whole careers derailed by long covid. Busting the narrative proving it can happen to anyone. COVID doesn’t care what our plans are sadly.
Reposted by Mom of a kid with POTS
@lisanoren.bsky.social @stenhelmfrid.bsky.social @bmhughes.bsky.social
@davetuller1.bsky.social
Some Swedish researchers are hard at work to revive the pseudoscience of "illness prone personality" of Eysenck, now considered unsafe, as well as the BPS model (hysteria), applied for long covid & ME.
@davetuller1.bsky.social
Some Swedish researchers are hard at work to revive the pseudoscience of "illness prone personality" of Eysenck, now considered unsafe, as well as the BPS model (hysteria), applied for long covid & ME.
Swedish research on long Covid likes to revive pseudoscience:
"The symptoms commonly reported by PCC patients align with cultural narratives surrounding high-achieving women who ultimately experience collapse under cumulative pressure which has been a recurrent theme in the media."
Hysteria anyone?
"The symptoms commonly reported by PCC patients align with cultural narratives surrounding high-achieving women who ultimately experience collapse under cumulative pressure which has been a recurrent theme in the media."
Hysteria anyone?
January 9, 2026 at 12:12 PM
@lisanoren.bsky.social @stenhelmfrid.bsky.social @bmhughes.bsky.social
@davetuller1.bsky.social
Some Swedish researchers are hard at work to revive the pseudoscience of "illness prone personality" of Eysenck, now considered unsafe, as well as the BPS model (hysteria), applied for long covid & ME.
@davetuller1.bsky.social
Some Swedish researchers are hard at work to revive the pseudoscience of "illness prone personality" of Eysenck, now considered unsafe, as well as the BPS model (hysteria), applied for long covid & ME.
Reposted by Mom of a kid with POTS
More evidence that exercise should be approached with extreme caution in people with #MECFS , as well as those with #longcovid or other chronic illnesses who experience post-exertional malaise: www.medscape.com/viewarticle/...
Multiple Abnormal Responses to Exertion Seen in ME/CFS
Findings underscore the risk for graded exercise in people with post-exertional malaise and point to careful activity pacing as a safer approach.
www.medscape.com
January 9, 2026 at 2:57 PM
More evidence that exercise should be approached with extreme caution in people with #MECFS , as well as those with #longcovid or other chronic illnesses who experience post-exertional malaise: www.medscape.com/viewarticle/...
Reposted by Mom of a kid with POTS
Khoryati et al. identify a T cell receptor Vβ21.3 signature in #SARSCoV2–related multisystem inflammatory syndrome in adults (MIS-A) similar to that previously reported in children (MIS-C), suggesting a shared immune-related mechanism between the two conditions. rupress.org/jhi/article/...
January 8, 2026 at 5:00 PM
Khoryati et al. identify a T cell receptor Vβ21.3 signature in #SARSCoV2–related multisystem inflammatory syndrome in adults (MIS-A) similar to that previously reported in children (MIS-C), suggesting a shared immune-related mechanism between the two conditions. rupress.org/jhi/article/...
Reposted by Mom of a kid with POTS
BBC Radio 4 Inside Science interview with Professor @daltmann.bsky.social (8 mins) discussing the Rosetta Stone study, a £1.1m research programme funded by the @meassociation.org.uk to investigate shared immunological pathways between #MECFS and #LongCovid.
youtu.be/eu8Lj_R-OtQ?...
youtu.be/eu8Lj_R-OtQ?...
BBC Inside Science - £1.1M ME/CFS and Long Covid Study
YouTube video by Broken Battery
youtu.be
January 8, 2026 at 5:20 PM
BBC Radio 4 Inside Science interview with Professor @daltmann.bsky.social (8 mins) discussing the Rosetta Stone study, a £1.1m research programme funded by the @meassociation.org.uk to investigate shared immunological pathways between #MECFS and #LongCovid.
youtu.be/eu8Lj_R-OtQ?...
youtu.be/eu8Lj_R-OtQ?...
Reposted by Mom of a kid with POTS
Nature research paper: Neuro-epithelial circuits promote sensory convergence and intestinal immunity
go.nature.com/4qeRjlt
go.nature.com/4qeRjlt
Neuro-epithelial circuits promote sensory convergence and intestinal immunity - Nature
Specific pain-sensing nociceptors and chemosensory tuft cells form a circuit to promote type 2 immune responses in the intestine.
go.nature.com
January 7, 2026 at 5:28 PM
Nature research paper: Neuro-epithelial circuits promote sensory convergence and intestinal immunity
go.nature.com/4qeRjlt
go.nature.com/4qeRjlt
Reposted by Mom of a kid with POTS
The Scientist: 'The Ear as a Therapeutic Gateway to the Vagus Nerve'
'Auricular vagal neuromodulation therapy is a non-invasive and non-surgical treatment that could aid cardiovascular disease management, Long COVID relief, and more.'
www.the-scientist.com/the-ear-as-a...
'Auricular vagal neuromodulation therapy is a non-invasive and non-surgical treatment that could aid cardiovascular disease management, Long COVID relief, and more.'
www.the-scientist.com/the-ear-as-a...
The Ear as a Therapeutic Gateway to the Vagus Nerve
Auricular vagal neuromodulation therapy is a non-invasive and non-surgical treatment that could aid cardiovascular disease management, Long COVID relief, and more.
www.the-scientist.com
January 6, 2026 at 4:24 PM
The Scientist: 'The Ear as a Therapeutic Gateway to the Vagus Nerve'
'Auricular vagal neuromodulation therapy is a non-invasive and non-surgical treatment that could aid cardiovascular disease management, Long COVID relief, and more.'
www.the-scientist.com/the-ear-as-a...
'Auricular vagal neuromodulation therapy is a non-invasive and non-surgical treatment that could aid cardiovascular disease management, Long COVID relief, and more.'
www.the-scientist.com/the-ear-as-a...
Reposted by Mom of a kid with POTS
New Cell paper from the team that discovered glymphatic clearance (how your brain removes waste during sleep).
Sleep hours DIDN'T predict brain cleaning. Neither did REM or deep sleep.
They found what actually matters - and why some sleeping pills might undermine it 🧵
Sleep hours DIDN'T predict brain cleaning. Neither did REM or deep sleep.
They found what actually matters - and why some sleeping pills might undermine it 🧵
January 2, 2026 at 1:09 PM
New Cell paper from the team that discovered glymphatic clearance (how your brain removes waste during sleep).
Sleep hours DIDN'T predict brain cleaning. Neither did REM or deep sleep.
They found what actually matters - and why some sleeping pills might undermine it 🧵
Sleep hours DIDN'T predict brain cleaning. Neither did REM or deep sleep.
They found what actually matters - and why some sleeping pills might undermine it 🧵