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Michiel

@murtoz.bsky.social

880 followers 2.4K following 2.3K posts

Dutchman in Scotland. Lounge based Landscape Photographer. Medically Retired Hardware Engineer. Tired Tinkerer. FOSS Fan. Ally. PwME/LC. Volunteer with #MEAction Scotland. He/Him. #BIPOCLivesMatter #EndGenocide #CovidIsAirborne #YallMaskin #CleanTheAir

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Michiel @murtoz.bsky.social · Dec 5

I did an interview last week about living with ME. This article is the result.
Pleased with it overall, no glaring errors, and most of my key messages are in the article even if she didn't put some of the more 'difficult' points in there verbatim.

#mecfs #pwME

www.scotsman.com/health/me-ch...

'My daughter has ME, she went into appointments walking and came out in a wheelchair'

There are an estimated 1.3 million people in the UK with ME 🏥

www.scotsman.com

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Reposted by Michiel

Didier @medidier.bsky.social · 3h

I only needed one episode back in march 2022 to realise it was smtg totally different.

I still knew nothing about #ME, and yet that night I googled "allergic to exercise is possible?".

The doctors? "Nah, a little fatigue from virus"...

If you know, you know.

#pwME
#GreatestMEdicalScandal

valebodi.bsky.social @valebodi.bsky.social · 3h

Absolutely agree with you. #PEM is qualitatively & quantitatively different from fatigue. And it’s the core distinguishing feature of ME. PwME know very well what it is and how punishing and disabling it is to try to live with it. On top of it still being misunderstood a/o invalidated by medicine.

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Reposted by Michiel

Dr Elisa Perego @elisaperego78.bsky.social · 18h

A kind reminder that a strong, collective, grassroots #LongCovid movement would be an existential threat to those who pushed mass infection dynamics. Hence, the attacks on the name itself, the concept, the links between the disease and a pandemic driven by a SARS virus

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Reposted by Michiel

Binita Kane @binitakane.bsky.social · 20h

**PREPRINT** from Harvard & Massachusetts General - children with Long COVID show markedly increased levels of fibrinaloid microclots in their blood.
The highest levels appear in those with persistent SARS-CoV-2 spike protein in circulation.

www.researchsquare.com/article/rs-7...

Quantification of fibrinaloid clots in plasma from pediatric Long COVID patients using a microfluidic assay

Long COVID (LC) impacts one in five children after an acute SARS-CoV-2 infection. Typical LC symptoms include fatigue, brain fog, pain, and shortness of breath, which can significantly impact individu...

www.researchsquare.com

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Michiel @murtoz.bsky.social · 20h

Oh this is awesome news! One step closer to actually being able to screen all of us for microclots 🤞🏻

Screenshot from the study: "We overcame the limitations of current microclot assessment methods, which are qualitative, by developing a microfluidic device to quantify the number of microclots in patient blood samples. We found significantly higher microclot levels in samples from pediatric LC patients than from healthy children. We evaluated the diagnostic power of the device in a cohort of 45 LC patients and 14 healthy pediatric donors. We estimated a 94% accuracy for the microclot count using the devices, significantly higher than the traditional counting of microclots on slides (66% accuracy). Intriguingly, we found the highest microclot counts in samples from patients with persistent SARS-CoV-2 spike protein in the blood. Further studies"

Source: https://www.researchsquare.com/article/rs-7483367/v1

Reposted by Michiel

Linda Lombard @heavensgone.bsky.social · 1d

The report was compiled by campaign groups #QueerAF and #WhatTheTrans!? using figures obtained under the Freedom of Information Act.

It reveals the Tavistock and Portman gender identity clinic in London currently has 16500 patients on its waiting list

#Trans+

socialistworker.co.uk/lgbt/trans-p...

Trans+ people speak out over NHS waiting times scandal

Trans + people are forced to wait up to 25 years for their first health care appointment, according to a shocking new report.

socialistworker.co.uk

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Michiel @murtoz.bsky.social · 1d

plus all the economic and societal instability it brings is the perfect opportunity for the filthy rich to enrich themselves even further.

Michiel @murtoz.bsky.social · 1d

fully agreed. At first I thought it was just short-termism, only caring about next quarters financial figures.

But there've been many studies now showing the true cost of letting covid rip free and I can only conclude this is an intentional cull.

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Michiel @murtoz.bsky.social · 1d

This is the exact reason I joined the green party.

Also the only one with an actual clean air and long covid policy.

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Reposted by Michiel

Harriet Carroll: Long Covid Scientific Consultancy @angryhacademic.bsky.social · 1d

Lol I was just reminded of the time when I was in hospital waiting for emergency surgery and I asked the staff if we could turn the lights off and they said no but if the lights are a problem "you can just put your jumper over your head"

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Reposted by Michiel

The Sick Times @thesicktimes.org · 1d

A group of 53 people with #LongCOVID joined a clinical trial for Vyvgart. For many of them, the treatment changed everything.

Then, without warning, Argenx canceled the trial.

Most of them have now relapsed.

They're calling on the NIH and HHS to study the drug: bit.ly/48l1Qp5

A photo Nicole Barrick, a woman in a pink KN95 mask, receives an infusion of Vyvgart. The text reads, "The Sick Times. Vyvgart brought us back to life, but the Long COVID trial was canceled. We are calling on the NIH and HHS to study the drug. By Clare Banaszewski, Nicole Barrick, Mike Bilik, Addie Davis, Mia Delli Gatti, Ellie Hayes, Roman White."

"For those living with Long COVID, every ounce of hope is hard-won. This isn’t just about physical symptoms. It’s about the emotional toll of being given hope — and then having it taken away." - Vyvgart clinical trial participants
Clare Banaszewski, Nicole Barrick, Mike Bilik, Addie Davis, Mia Delli Gatti, Ellie Hayes, Roman White

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Reposted by Michiel

vee.soy @vashetc.bsky.social · 2d

Do you all think it’s inhumane to leave people rotting in bed (literally, not metaphorically)? Im talking about people who cannot tolerate light and sound, and maybe even touch. People who can’t drink or chew on their own. For decades.

If so then you should look up Myalgic Encephalomyelitis.

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Michiel @murtoz.bsky.social · 2d

for a couple of years I was able to get free covid jabs due to my ME/CFS, but I think they've taken that away too now.

The UK government are eugenicists.

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Michiel @murtoz.bsky.social · 2d

Yet another good reason to support the green party!

Dr Jackie Turvey Tait @jaxtait.bsky.social · 2d

The Green Party are STILL the only major political party in the UK with compassionate, science-based policy on #Covid. Schools are not safe for kids & teachers. Workers are forced into unsafe workplaces. CV families still face hatred & exclusion. #LongCovid still destroys lives & livelihoods.

Greens Against Covid @greensagainstcovid.bsky.social · Nov 22

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Michiel @murtoz.bsky.social · 2d

we can't actually keep doing this forever. We will run out of healthy people to do all the work.

Michiel @murtoz.bsky.social · 2d

Thank you Naomi, you're awesome!

Reposted by Michiel

Eleanor Fielding @meownersclub.bsky.social · 2d

Useful chart for explaining to your loved ones when yet another doctor is COMPLETELY MISINFORMED AND WRONG about PEM

youtu.be/UkS6L3Klc00?...

Chart showing short term and long term symptoms of PEM

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Reposted by Michiel

Cat Vincent, (he/him, Useless Eater) @catvincent.bsky.social · 2d

www.youtube.com/watch?v=XjhS...

The Onion Investigates: Jeffrey Epstein

YouTube video by The Onion

www.youtube.com

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Michiel @murtoz.bsky.social · 2d

It might be apt that your handle is dutch for 'tomorrow' (but also for 'morning' because we just like to confuse people.)

I hope you have a better day today!

Reposted by Michiel

Mark Ungrin @mark-ungrin.bsky.social · 2d

Turns out institutional medicine's Dunning-Kruger + ego + power to kill people + zero accountability model wasn't such a great idea after all.

Who knew?

🤷

Well yeah, ok, Semmelweis, obviously.

It was probably a clue that they're still crowing about the one thing they learned since 1846.

🤔

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Michiel @murtoz.bsky.social · 2d

It's David's birthday today, so I've donated to his crowdfunder. Please try to join me if you can!

Happy Birthday, @davetuller1.bsky.social, and thank you for still fighting for us!

David Tuller @davetuller1.bsky.social · 3d

Berkeley's crowdfunder has reached 5% of the goal after its first day, with 49 donors! This pace won't keep up, but it's a decent start. Thanks to all past, current and future supporters!
crowdfund.berkeley.edu/project/47768

David Tuller's Trial by Error Fall 2025

Help UC Berkeley raise $68,000 for the project: David Tuller's Trial by Error Fall 2025. Your gift will make a difference!

crowdfund.berkeley.edu

Michiel @murtoz.bsky.social · 2d

The pubs could be open 24/7 but if people don't have money to spend it won't make a blind bit of difference.

Fix the economy by uplifting people out of poverty (>30% of us!) and addressing cost of greed.

TAX THE FUCKING FILTHY RICH!

Prem Sikka @premnsikka.bsky.social · 2d

Pubs could stay open longer under Starmer plan to revive British night out

Who will provide extra police, staff, public services?

Nights out restricted due to cost of living crisis

Govt can help hospitality industry by cutting energy/water bills, rents, improving public transport.

Pubs could stay open longer under Starmer plan to revive British night out

PM’s initiative, which could lead to ‘bonfire’ of old licensing rules, aims to ‘bring the buzz back’ to high streets

www.independent.co.uk

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Reposted by Michiel

Dan O'Hara @skeuomorphology.bsky.social · 2d

The PCR positivity map is out, and UKHSA have finally deigned to describe covid activity as "medium".

UKHSA national positivity is 13.23%.

Adjusted for non-reporting we make it 15.27%.

jamestindall.info/skeuomorphol...

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EveryDoctor @everydoctor.org.uk · 3d

Private healthcare executives were invited onto Wes Streeting’s working groups to help draft Labour’s 10-Year Health Plan.

This is outrageous. A plan for the NHS should reflect the needs of patients and the public, not private sector interests.

Learn more 👉 everydoctor.org.uk/talking-poin...

Text reads “The NHS 10-Year Plan should have been guided by those who know it best — frontline staff and patients. But private healthcare executives got a seat at the table.” Below are logos of InHealth, Spire (SV), United Healthcare, and Independent Healthcare Providers Network.

A person in business attire grips a rope in a tug-of-war pose with text reading “Profit vs Patients. The plan includes partnerships with private firms, digital systems led by tech giants, and focus on cost-cutting, not care.” A quote from Dr Julia Patterson reads, “Why should the corporations which seek to profit from the NHS be allowed a seat at the table?”

A background of the door to Number 10 Downing Street with text reading “Why It Matters. This could accelerate NHS privatisation with decisions being made behind closed doors.” A QR code and a red button labeled “Read more” appear below.

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Michiel @murtoz.bsky.social · 2d

you think he actually believes this himself? no way, he knows full well he is spouting propaganda so he can enrich himself even further.

Reposted by Michiel

The Canary @thecanaryuk.bsky.social · 3d

Dear Eric Bogosian, AMC: what happened to our open letter over long Covid?

Disabled, Long COVID theater makers request transparency ahead of New York Comic Con 'Interview with the Vampire' event
www.thecanary.co/global/world...

Dear Eric Bogosian, AMC: what happened to our open letter over long Covid?

Disabled, Long COVID theater makers request transparency ahead of New York Comic Con 'Interview with the Vampire' event

www.thecanary.co

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