Mic Edwards
@fuckmecfs.bsky.social
Queer, autistic, and disabled library assistant in her late 20s. Long COVID and M.E. since 2022. Passionate about disability justice, community care, and collective liberation. 😷❤️🇵🇸
Reposted by Mic Edwards
The number of American adults in the labour force with a disability since Covid
April 7, 2025 at 11:42 PM
The number of American adults in the labour force with a disability since Covid
Reposted by Mic Edwards
Long read, very instructive on the mechanisms & misconceptions re LC. „Long COVID is blood vessel damage, brain damage, organ damage, immune system damage, and mitochondrial damage. It is real, it is devastating, and it is happening to people every day. And it can happen to you, after any infection“
Worked hard on this, and I hope it will be a useful resource for many.
A beginner’s guide to Long COVID, with a discussion of mechanisms:
www.thegauntlet.news/p/what-is-lo...
A beginner’s guide to Long COVID, with a discussion of mechanisms:
www.thegauntlet.news/p/what-is-lo...
What is Long COVID?
A Beginner's Guide
www.thegauntlet.news
February 8, 2025 at 6:30 AM
Long read, very instructive on the mechanisms & misconceptions re LC. „Long COVID is blood vessel damage, brain damage, organ damage, immune system damage, and mitochondrial damage. It is real, it is devastating, and it is happening to people every day. And it can happen to you, after any infection“
Reposted by Mic Edwards
I just found out that someone I was close to who had the same disease as I do, just passed away today. One thing that isn’t talked about enough is how often the disability community grieves from those who pass away too soon due to our diagnosis. It’s a kind of grief that most don’t understand.
February 6, 2025 at 9:45 PM
I just found out that someone I was close to who had the same disease as I do, just passed away today. One thing that isn’t talked about enough is how often the disability community grieves from those who pass away too soon due to our diagnosis. It’s a kind of grief that most don’t understand.
Reposted by Mic Edwards
An entire lineage of influenza B viruses literally went extinct due to COVID mitigation measures and people will still say “masks don’t work”
I don't know if regular people will ever realize how insane it was that we literally did not have a flu or RSV season in January 2021.
January 20, 2025 at 7:35 PM
An entire lineage of influenza B viruses literally went extinct due to COVID mitigation measures and people will still say “masks don’t work”
Reposted by Mic Edwards
Today in @thesicktimes.bsky.social, Jenna Laila Bitar writes about the experience of being a Palestinian American with Long COVID.
"When I reflect on my own experience of disability...sometimes it feels like a manifestation of generational trauma."
thesicktimes.org/2025/01/17/i...
"When I reflect on my own experience of disability...sometimes it feels like a manifestation of generational trauma."
thesicktimes.org/2025/01/17/i...
Instead of supporting people with Long COVID, our government funds a genocide - The Sick Times
My final rejection for disability benefits was sent to me in March 2024, during Israel’s horrific, ongoing genocide in Gaza. Before becoming disabled with Long COVID, I worked full-time in the movemen...
thesicktimes.org
January 17, 2025 at 5:04 PM
Today in @thesicktimes.bsky.social, Jenna Laila Bitar writes about the experience of being a Palestinian American with Long COVID.
"When I reflect on my own experience of disability...sometimes it feels like a manifestation of generational trauma."
thesicktimes.org/2025/01/17/i...
"When I reflect on my own experience of disability...sometimes it feels like a manifestation of generational trauma."
thesicktimes.org/2025/01/17/i...
Reposted by Mic Edwards
Y’all, mask up! This ain’t a joke. You’re not just breathing in ash from burnt trees and bushes. You’re breathing in ash from burnt HOMES. Not just the wood, every single thing that can be found in a home. Appliances, electronics, etc.
“Risks from ash and air pollution remain for people returning after wildfires. “
www.cnn.com/2025/01/13/h...
www.cnn.com/2025/01/13/h...
Risks from ash and air pollution remain for people returning after wildfires. Here’s how to stay safe | CNN
As people return to the structures spared from Los Angeles wildfires, experts warn that they should be careful of the air inside and be especially cautious when cleaning up. Smoke, ash and all the tox...
www.cnn.com
January 18, 2025 at 8:35 PM
Y’all, mask up! This ain’t a joke. You’re not just breathing in ash from burnt trees and bushes. You’re breathing in ash from burnt HOMES. Not just the wood, every single thing that can be found in a home. Appliances, electronics, etc.
Reposted by Mic Edwards
Not the news I’d hope to share but—NIH’s massive Long Covid study has a new paper finding 1 in 22 participants who had Covid developed the neuro disease I have, ME/CFS.
80% of people w/ME are too sick to hold a full-time job—gov abandoning us to face this risk on a daily basis is unconscionable.
80% of people w/ME are too sick to hold a full-time job—gov abandoning us to face this risk on a daily basis is unconscionable.
Incidence and Prevalence of Post-COVID-19 Myalgic Encephalomyelitis: A Report from the Observational RECOVER-Adult Study - Journal of General Internal Medicine
Background Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) may occur after infection. How often people develop ME/CFS after SARS-CoV-2 infection is unknown. Objective To determine the inci...
link.springer.com
January 18, 2025 at 1:09 AM
Not the news I’d hope to share but—NIH’s massive Long Covid study has a new paper finding 1 in 22 participants who had Covid developed the neuro disease I have, ME/CFS.
80% of people w/ME are too sick to hold a full-time job—gov abandoning us to face this risk on a daily basis is unconscionable.
80% of people w/ME are too sick to hold a full-time job—gov abandoning us to face this risk on a daily basis is unconscionable.
Reposted by Mic Edwards
This is an incredibly stunning anti-science, anti-life, anti-medicine action by the CDC.
Every public health physician needs to disavow this.
Every public health physician needs to disavow this.
IMPORTANT
The US CDC has announced that, going forward, reported SARS-CoV-2 wastewater levels will be normalized to an endemic baseline
"Zero" on this baseline will be levels in the previous year
@evanblake17.bsky.social @benjaminmateus.bsky.social
The US CDC has announced that, going forward, reported SARS-CoV-2 wastewater levels will be normalized to an endemic baseline
"Zero" on this baseline will be levels in the previous year
@evanblake17.bsky.social @benjaminmateus.bsky.social
January 19, 2025 at 5:46 AM
This is an incredibly stunning anti-science, anti-life, anti-medicine action by the CDC.
Every public health physician needs to disavow this.
Every public health physician needs to disavow this.
Reposted by Mic Edwards
Syllabusing as classes start next week 🙃
January 7, 2025 at 6:51 PM
Syllabusing as classes start next week 🙃
Reposted by Mic Edwards
The biggest threat to all of us is climate change. In 2024 we hit >1.5C global warming, well in advance of when scientists thought it would happen. Here are some of the graphics I’ve come across that I think are helpful in communicating to skeptics. Please share as needed—we are running out of time
January 12, 2025 at 6:56 PM
The biggest threat to all of us is climate change. In 2024 we hit >1.5C global warming, well in advance of when scientists thought it would happen. Here are some of the graphics I’ve come across that I think are helpful in communicating to skeptics. Please share as needed—we are running out of time
Reposted by Mic Edwards
This type of cognitive impairment is so badly underestimated.
I lost the ability to read for months and to communicate for years. It was like juggling with 50 balls. Impossible.
I lost almost all income and have nothing in life because of it.
We need answers ASAP.
I lost the ability to read for months and to communicate for years. It was like juggling with 50 balls. Impossible.
I lost almost all income and have nothing in life because of it.
We need answers ASAP.
Out today at www.nature.com/articles/s41...
These numbers are crazy. A generation of young people with dementia waits for us in the near future, and we are not prepared for that. #NeuroCovid
These numbers are crazy. A generation of young people with dementia waits for us in the near future, and we are not prepared for that. #NeuroCovid
January 12, 2025 at 1:14 AM
This type of cognitive impairment is so badly underestimated.
I lost the ability to read for months and to communicate for years. It was like juggling with 50 balls. Impossible.
I lost almost all income and have nothing in life because of it.
We need answers ASAP.
I lost the ability to read for months and to communicate for years. It was like juggling with 50 balls. Impossible.
I lost almost all income and have nothing in life because of it.
We need answers ASAP.
Reposted by Mic Edwards
People with #LongCOVID deserve equal access to prescriptions that could lessen their symptom burden & information about potential risks.
More about how & why in this op-ed by Charlie McCone & me which was sparked by a discussion the @patientled.bsky.social team:
www.statnews.com/2024/10/24/l...
More about how & why in this op-ed by Charlie McCone & me which was sparked by a discussion the @patientled.bsky.social team:
www.statnews.com/2024/10/24/l...
‘Do no harm’ is hurting 400 million long Covid patients worldwide
Opinion: Some medications for #LongCovid that are already on the market may provide relief. Obtaining them requires a lot of time and money.
www.statnews.com
October 25, 2024 at 1:41 PM
People with #LongCOVID deserve equal access to prescriptions that could lessen their symptom burden & information about potential risks.
More about how & why in this op-ed by Charlie McCone & me which was sparked by a discussion the @patientled.bsky.social team:
www.statnews.com/2024/10/24/l...
More about how & why in this op-ed by Charlie McCone & me which was sparked by a discussion the @patientled.bsky.social team:
www.statnews.com/2024/10/24/l...
Reposted by Mic Edwards
oh how the (mask distro) tables have turned
January 12, 2025 at 8:15 PM
oh how the (mask distro) tables have turned
Reposted by Mic Edwards
The disease is end-stage capitalism. It's terminal, barring a miraculous intervention or global upheaval.
The symptoms: corporate greed, climate breakdown caused by oil execs, genocide, colonialism, unrelenting pandemics, wealth inequality, gun violence etc
The symptoms: corporate greed, climate breakdown caused by oil execs, genocide, colonialism, unrelenting pandemics, wealth inequality, gun violence etc
January 12, 2025 at 8:22 PM
The disease is end-stage capitalism. It's terminal, barring a miraculous intervention or global upheaval.
The symptoms: corporate greed, climate breakdown caused by oil execs, genocide, colonialism, unrelenting pandemics, wealth inequality, gun violence etc
The symptoms: corporate greed, climate breakdown caused by oil execs, genocide, colonialism, unrelenting pandemics, wealth inequality, gun violence etc
Reposted by Mic Edwards
Given all talk re: Post Exertional Malaise/Post Exertional Symptom Exacerbation in #LongCovid:
Here is "Symptoms made worse due to physical or cognitive exertion" in #MyalgicEncephalomyelitis & #ChronicFatigueSyndrome
Also shows all the range of ME/#CFS
symptoms
#MECFS
1/
Here is "Symptoms made worse due to physical or cognitive exertion" in #MyalgicEncephalomyelitis & #ChronicFatigueSyndrome
Also shows all the range of ME/#CFS
symptoms
#MECFS
1/
January 12, 2025 at 10:02 PM
Reposted by Mic Edwards
Disabled people are not acceptable casualties.
Not during natural disasters.
Not during a pandemic.
Not during climate collapse.
Not for profit.
Not for optics.
Not at protests.
Not at school.
Not for election goals.
Not for personal comfort.
There is no justice without disability justice.
Not during natural disasters.
Not during a pandemic.
Not during climate collapse.
Not for profit.
Not for optics.
Not at protests.
Not at school.
Not for election goals.
Not for personal comfort.
There is no justice without disability justice.
September 28, 2024 at 10:30 PM
Disabled people are not acceptable casualties.
Not during natural disasters.
Not during a pandemic.
Not during climate collapse.
Not for profit.
Not for optics.
Not at protests.
Not at school.
Not for election goals.
Not for personal comfort.
There is no justice without disability justice.
Not during natural disasters.
Not during a pandemic.
Not during climate collapse.
Not for profit.
Not for optics.
Not at protests.
Not at school.
Not for election goals.
Not for personal comfort.
There is no justice without disability justice.
Reposted by Mic Edwards
Read an excerpt from @violetblue.bsky.social’s The COVID Safety Handbook: bit.ly/3WeXiJY
January 12, 2025 at 3:57 PM
Read an excerpt from @violetblue.bsky.social’s The COVID Safety Handbook: bit.ly/3WeXiJY
Reposted by Mic Edwards
Community organizing saving the day where local and state government falls short.
As the skies of Los Angeles filled with smoke this week from multiple raging wildfires, COVID-19 advocates and mutual aid groups stepped in to fill the gaps left by local and state governments, providing respirators and crucial information about clean air. bit.ly/4jaTnYs
January 11, 2025 at 5:01 PM
Community organizing saving the day where local and state government falls short.
Reposted by Mic Edwards
“But the people who died had preexisting conditions.” So what? Does that mean their lives didn’t matter? Does that mean they weren’t important? Disabled people can hear you when you excuse our deaths. Our lives have value.
January 12, 2025 at 7:14 PM
“But the people who died had preexisting conditions.” So what? Does that mean their lives didn’t matter? Does that mean they weren’t important? Disabled people can hear you when you excuse our deaths. Our lives have value.
Reposted by Mic Edwards
Mask blocs have been doing heroic work distributing tens of thousands of masks to communities exposed to dangerous wildfire smoke. This is incredible, but we should also be outraged that it has been left to people with limited resources who have been abandoned by the state to do this critical work.
January 11, 2025 at 10:19 PM
Mask blocs have been doing heroic work distributing tens of thousands of masks to communities exposed to dangerous wildfire smoke. This is incredible, but we should also be outraged that it has been left to people with limited resources who have been abandoned by the state to do this critical work.
Reposted by Mic Edwards
NotCovid and NotClimate are incredibly similar comms approaches
"It's not covid that killed it's something something pre-existing conditions. Died with covid not from covid."
"It's not climate that burned down LA, it's something something forest management. With climate not from climate"
"It's not covid that killed it's something something pre-existing conditions. Died with covid not from covid."
"It's not climate that burned down LA, it's something something forest management. With climate not from climate"
January 10, 2025 at 12:02 AM
NotCovid and NotClimate are incredibly similar comms approaches
"It's not covid that killed it's something something pre-existing conditions. Died with covid not from covid."
"It's not climate that burned down LA, it's something something forest management. With climate not from climate"
"It's not covid that killed it's something something pre-existing conditions. Died with covid not from covid."
"It's not climate that burned down LA, it's something something forest management. With climate not from climate"
Reposted by Mic Edwards
Time to share this quick air filter solution for wildfire smoke once again. All you need is a box fan and a home air/furnace filter that you can get at pretty much any hardware store. Optional is some duct tape to get a good seal. Stay safe! #LAFires
January 8, 2025 at 9:15 PM
Time to share this quick air filter solution for wildfire smoke once again. All you need is a box fan and a home air/furnace filter that you can get at pretty much any hardware store. Optional is some duct tape to get a good seal. Stay safe! #LAFires
Reposted by Mic Edwards
Reminder that the teen in Canada went to the ER while symptomatic - and was sent home. She had to return two days later.
That’s multiple other people potentially exposed… which is why we need masks in healthcare now.
www.disabledginger.com/p/a-plea-to-...
That’s multiple other people potentially exposed… which is why we need masks in healthcare now.
www.disabledginger.com/p/a-plea-to-...
A Plea to Maskless Healthcare Workers from Vulnerable Patients
If you see a mask - wear a mask. Better yet - wear a mask all the time and show us you understand that we're still IN a pandemic. We are depending on you to keep us safe - please don't betray that.
www.disabledginger.com
January 7, 2025 at 8:20 AM
Reminder that the teen in Canada went to the ER while symptomatic - and was sent home. She had to return two days later.
That’s multiple other people potentially exposed… which is why we need masks in healthcare now.
www.disabledginger.com/p/a-plea-to-...
That’s multiple other people potentially exposed… which is why we need masks in healthcare now.
www.disabledginger.com/p/a-plea-to-...