kate
@bookhaven.bsky.social
1.4K followers 980 following 2.4K posts
Neurodivergent library ghost 👻 Napping instead of making lemonade 😴 ♿🦓🛏️ 😷 📚🚀 🪫 Often limited capacity Don't share my posts on other platforms without asking. Header: Will Santino 🍋🥛 PFP: Pies Are Awesome 🥧
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Reposted by kate
treeaffinity.bsky.social
🍁🍂🍃🍁
#forestfriday #redmaple #nature #trees #autumn
A group of maple trees display red leaves in Autumn.
bookhaven.bsky.social
thinkingautism.com
"For autistic people who are nonspeaking or have intermittent, unreliable, or insufficient speech, being denied access to augmentative & alternative communication (AAC) tools and supports that work for them results in a kind of complex trauma in & of itself."

autismspectrumnews.org/can-being-de...
Can Being Denied Augmentative and Alternative Communication (AAC) Cause Lifelong Trauma?
Being denied AAC impacts nonspeaking autistic individuals, leading to trauma, isolation, and barriers to communication and inclusion.
autismspectrumnews.org
bookhaven.bsky.social
thinkingautism.com
"Some professionals in the field of special education believe that given their restricted verbal abilities [autistic people] should only be exposed to 1 language. However, my own experience has been very different." Speller & violinist Sid Ramaswamy, at TPGA:

thinkingautismguide.com/2025/08/mast...
Sid Ramaswamy, a young Indian man with short black hair, sits on a mat and plays violin.

Overlaid text reads, "I would like to say—believe in us! Please don’t assess our potential based entirely on our outward behavior or what we may not be able to say verbally.”

"Sid mastered classical Indian violin and is also nonspeaking and autistic"

"Read our interview with Sid Ramaswamy at TPGA"

"tinyurl.com/SidRamaswamy"
Reposted by kate
thinkingautism.com
We know that nonspeaking people have #MoretoSay. October is AAC Awareness Month, and AAC app maker @assistiveware.bsky.social is celebrating with a short AAC understanding video. Please watch, take to heart, and share.

youtu.be/jGpglhW7I54?... #AACawarenessMonth #nonspeaking #neurodiversity
Nonspeaking people have #MoretoSay
YouTube video by AssistiveWare
youtu.be
bookhaven.bsky.social
thinkingautism.com
We know that nonspeaking people have #MoretoSay. October is AAC Awareness Month, and AAC app maker @assistiveware.bsky.social is celebrating with a short AAC understanding video. Please watch, take to heart, and share.

youtu.be/jGpglhW7I54?... #AACawarenessMonth #nonspeaking #neurodiversity
Nonspeaking people have #MoretoSay
YouTube video by AssistiveWare
youtu.be
bookhaven.bsky.social
Whoa! That's great, I'm so happy for you!!
Reposted by kate
shengokai.blacksky.app
I am bound by the ancient contract of the internet to repost this.
bassoonysu.bsky.social
As is always correct and in accordance with all the laws of the internet, I just watched Tom Holland's epic Lip Sync Battle performance, and now I am sharing it with all of you so you can do the same.
Lip Sync Battle - Tom Holland
YouTube video by Comedy Central Latinoamérica
youtu.be
Reposted by kate
exceedhergrasp1.bsky.social
I love this story 😭

TIMELINE CLEANSE ✨
nwhyte.bsky.social
Dr Ramsdell, whose phone had been on airplane mode, told the BBC's Newshour Programme that his first response when his wife said, "You've won the Nobel prize" was: "I did not."

To which Ms O'Neill replied that she had 200 text messages that suggested he had.

www.bbc.com/news/article...
Scientist on three-week off-grid hike finds out he's won the Nobel prize
Dr Fred Ramsdell was "living his best life" offline when the Nobel committee tried to contact him.
www.bbc.com
Reposted by kate
stevefifield.bsky.social
#pwME

iPhone just upgraded to iOS 26, and now when I drag down to see notifications, the “Liquid Glass” feature distorts / flashes the display icons and in a sensory overload way that totally screws with my head 😬
It is impossible to disable this feature 🤷‍♂️

#Accessibility
#ios26
#liquidglass
Reposted by kate
exceedhergrasp1.bsky.social
Benefit:
This distinguishes #MECFS folks with severe presentation (housebound only) VERY well from healthy controls

Drawback:
It doesn't diagnose ME/CFS vs other diseases / disorders.

Corollary:
They COULD compare it to superficially similar diseases, next, and find something far more specific.
Reposted by kate
exceedhergrasp1.bsky.social
OK so I read through this study, and here are my conclusions:
- What a cool tech to examine epigenetic factors so closely!
- This is a small study
- This only differentiates severe-presenting patients from healthy controls; hasn't been used to diagnose ME/CFS *versus* other inflammatory illness. 🧪
bhanlon15.bsky.social
Open Access Government: 'UEA develops blood test for ME/CFS with 96% accuracy'

'A groundbreaking blood test from UEA can diagnose ME/CFS with 96% accuracy, offering hope for patients and new insights into chronic fatigue syndrome'

www.openaccessgovernment.org/uea-develops...
UEA develops blood test for ME/CFS with 96% accuracy
A blood test from UEA can diagnose ME/CFS with 96% accuracy, offering hope for patients and new insights into chronic fatigue syndrome
www.openaccessgovernment.org
Reposted by kate
erinbiba.bsky.social
LMAO Dolly Parton’s sister fucked up so massively the poor woman had to come on camera to confirm that she’s still alive 🤦🏻‍♀️😂
Reposted by kate
chromatowski.bsky.social
It’s exhausting
There must be well over 100 ME/CFS biomarker studies, all claiming success – but none have been replicated.

And that's probably no better bet for forgetting media coverage either – it makes such a nice story (every time).
cgatist.bsky.social
The research used to claim reliability of a ME/CFS blood test has important limitations, shown here.

www.theguardian.com/society/2025...
Reposted by kate
luckytran.com
You’ll now be able to get an updated coronavirus shot in every state without a prescription, according to the American Pharmacists Association.

CVS and Walgreens have stated you won’t need to attest to any underlying conditions and the questions will be removed from their online booking system.
bookhaven.bsky.social
#NEISvoid FYI
gaildrakes.bsky.social
Are you a non-Black person pissed at Bluesky leadership and feeling a little jealous of all the good vibes coming from Blacksky?

There are Blacksky adjacent options for you! Here’s info from the Blacksky migration guide!

docs.blacksky.community/migrating-to...
Screengrab from Blacksky migration guide:

blacksky algorithms

A Warning: Anyone else using a blacksky.app handle will receive a warning at first and then a suspension.

Alternative PDSs for Everyone
Blacksky Algorithms also operates two other
PDSs that are open to anyone:
• myatproto.social - Open to all
• cryptoanarchy.network - Open to all

These servers run on the same infrastructure as blacksky.app and are maintained by the same team, but are available for anyone to use regardless of background.
Reposted by kate
pollyrowena.bsky.social
And the last thing likely to help any disabled people stay in work? Creating a toxic debate around diagnoses which enables employers to refuse accommodations even more than they already do. The govt should be helping employers to accommodate disabled workers, not trying to claim we're imaginary.
Reposted by kate
pollyrowena.bsky.social
This #overdiagnosis discourse is dangerous and will be deadly to many - not just those with ME who have been at the mercy of quacks like Wesseley and O'Sullivan for years -
but everyone who the govt wishes to remove support from and has to find a way to claim are not actually disabled to do so.
Reposted by kate
johnniejae.bsky.social
Excited to share this interview with Navajo and Taos Pueblo artist Daryl Begaye who I met in a galaxy far, far away in a Yahoo Messenger chat for Natives 🤣 I knew we were gonna be lifelong friends when he survived my family....the rugged side.

redpopnews.com/creating-his...

#redpopnews
Creating His Own Space in Contemporary Native Art | An Interview with Daryl Begaye
For Daryl Begaye (Diné/Taos Pueblo), art was always present, but not what he pursued until later in his life. He first studied computer science before realizing that his creative spirit was being call...
redpopnews.com
bookhaven.bsky.social
The numbers are terrible and cruel, but also, as someone decades into this without dx, some of those numbers sound nice from the other side.... 🫠

We all deserve so much better
Reposted by kate
patrickwyman.bsky.social
Even beyond the grave the man is still out here doing good in the world. Blessings to Bob Ross and whatever happy little cloud he's sitting on right now.
pbsnews.org
Thirty paintings created by the bushy-haired, soft-spoken Bob Ross will soon be up for auction to defray the costs of programming for small and rural public television stations suffering under cuts in federal funding. https://to.pbs.org/4nEQMrw
Bob Ross paintings to be auctioned to support public TV stations after federal funding cuts
All profits will help public TV stations with licensing fees for popular programs that include "The Best of Joy of Painting" and "America's Test Kitchen."
www.pbs.org