@chrissie4btrwrld.bsky.social
Reposted
My #MECFS scandal explainer video has just passed 200,000 views.
Given the level of interest, I’ve written a follow-up article covering key examples I didn’t include, as well as some developments since.
medium.com/@abrokenbatt...
Given the level of interest, I’ve written a follow-up article covering key examples I didn’t include, as well as some developments since.
medium.com/@abrokenbatt...
ME/CFS Scandal Follow up
The ME/CFS scandal goes much deeper than my 27-minute explainer video. That was just an introduction — how for decades patients were told…
medium.com
January 19, 2026 at 7:53 AM
My #MECFS scandal explainer video has just passed 200,000 views.
Given the level of interest, I’ve written a follow-up article covering key examples I didn’t include, as well as some developments since.
medium.com/@abrokenbatt...
Given the level of interest, I’ve written a follow-up article covering key examples I didn’t include, as well as some developments since.
medium.com/@abrokenbatt...
Reposted
New research on ME/CFS finds unusual cell signals after exercise.
Tiny packages released by cells (extracellular vesicles) show problems with energy production, an overactive immune system, and cell stress. Let’s break it down in simple terms.
Tiny packages released by cells (extracellular vesicles) show problems with energy production, an overactive immune system, and cell stress. Let’s break it down in simple terms.
January 13, 2026 at 12:13 PM
New research on ME/CFS finds unusual cell signals after exercise.
Tiny packages released by cells (extracellular vesicles) show problems with energy production, an overactive immune system, and cell stress. Let’s break it down in simple terms.
Tiny packages released by cells (extracellular vesicles) show problems with energy production, an overactive immune system, and cell stress. Let’s break it down in simple terms.
Reposted
#medsky
ME/CFS is an umbrella term so it's important to stratify patients.
But all Dr's need to understand the danger of exercise in these patient groups.
Pushing patients to exercise has led to dire outcomes.
ME/CFS is an umbrella term so it's important to stratify patients.
But all Dr's need to understand the danger of exercise in these patient groups.
Pushing patients to exercise has led to dire outcomes.
More evidence that exercise should be approached with extreme caution in people with #MECFS , as well as those with #longcovid or other chronic illnesses who experience post-exertional malaise: www.medscape.com/viewarticle/...
Multiple Abnormal Responses to Exertion Seen in ME/CFS
Findings underscore the risk for graded exercise in people with post-exertional malaise and point to careful activity pacing as a safer approach.
www.medscape.com
January 9, 2026 at 6:01 PM
#medsky
ME/CFS is an umbrella term so it's important to stratify patients.
But all Dr's need to understand the danger of exercise in these patient groups.
Pushing patients to exercise has led to dire outcomes.
ME/CFS is an umbrella term so it's important to stratify patients.
But all Dr's need to understand the danger of exercise in these patient groups.
Pushing patients to exercise has led to dire outcomes.
Reposted
BBC Radio 4 Inside Science interview with Professor @daltmann.bsky.social (8 mins) discussing the Rosetta Stone study, a £1.1m research programme funded by the @meassociation.org.uk to investigate shared immunological pathways between #MECFS and #LongCovid.
youtu.be/eu8Lj_R-OtQ?...
youtu.be/eu8Lj_R-OtQ?...
BBC Inside Science - £1.1M ME/CFS and Long Covid Study
YouTube video by Broken Battery
youtu.be
January 8, 2026 at 5:20 PM
BBC Radio 4 Inside Science interview with Professor @daltmann.bsky.social (8 mins) discussing the Rosetta Stone study, a £1.1m research programme funded by the @meassociation.org.uk to investigate shared immunological pathways between #MECFS and #LongCovid.
youtu.be/eu8Lj_R-OtQ?...
youtu.be/eu8Lj_R-OtQ?...
Reposted
New petition UK Save Savannah Victora-May - Prevent Another ME Tragedy.
Please sign this petition!!!
c.org/QrfRt55v9d
Please sign this petition!!!
c.org/QrfRt55v9d
Sign the Petition
Save Savannah Victora-May - Prevent Another ME/CFS Tragedy
c.org
January 2, 2026 at 5:34 PM
New petition UK Save Savannah Victora-May - Prevent Another ME Tragedy.
Please sign this petition!!!
c.org/QrfRt55v9d
Please sign this petition!!!
c.org/QrfRt55v9d
Reposted
UK residents can use this template letter from @pscupdates.bsky.social to write to David Lammy: palestinecampaign.eaction.org.uk/LammyHungerS...
Demand David Lammy act now to preserve the lives of the hunger strikers
palestinecampaign.eaction.org.uk
December 22, 2025 at 7:48 AM
UK residents can use this template letter from @pscupdates.bsky.social to write to David Lammy: palestinecampaign.eaction.org.uk/LammyHungerS...
Reposted
Communiqué de presse + FAQ 👉 precisionlife.com/me-genetics-study
The most detailed genetic analysis of myalgic encephalomyelitis ever conducted
Groundbreaking ME study identifies 250+ genes, links with long COVID, and uncovers new drug repurposing opportunities to advance targeted treatments
precisionlife.com
December 4, 2025 at 12:59 PM
Communiqué de presse + FAQ 👉 precisionlife.com/me-genetics-study
Reposted
I know this petition has much more support than it currently has. Please share far and wide. Petition to require generative AI to carry a watermark and to make it illegal to use a person’s likeness in generative AI without permission.
petition.parliament.uk/petitions/73...
petition.parliament.uk/petitions/73...
Petition: Require generative AI watermarks & ban using people’s likeness without consent
As AI generated content becomes increasingly realistic, we think laws should be put in place to prevent misuse. All such media should carry a permanent watermark or disclosure, alongside a blanket ban...
petition.parliament.uk
November 29, 2025 at 12:55 PM
I know this petition has much more support than it currently has. Please share far and wide. Petition to require generative AI to carry a watermark and to make it illegal to use a person’s likeness in generative AI without permission.
petition.parliament.uk/petitions/73...
petition.parliament.uk/petitions/73...
Reposted
I wish I didn’t have to share this. But the BBC has decided to censor my first Reith Lecture.
They deleted the line in which I describe Donald Trump as “the most openly corrupt president in American history.” /1
They deleted the line in which I describe Donald Trump as “the most openly corrupt president in American history.” /1
November 25, 2025 at 9:26 AM
I wish I didn’t have to share this. But the BBC has decided to censor my first Reith Lecture.
They deleted the line in which I describe Donald Trump as “the most openly corrupt president in American history.” /1
They deleted the line in which I describe Donald Trump as “the most openly corrupt president in American history.” /1
Reposted
This is the Davos clip that Anita Anand mentioned at the beginning of the Reith Lecture this morning on BBC Radio 4.
And had the BBC not censored his lecture, I would not have found it.
So maybe they've done us a service?
#UnintendedConsequences
www.youtube.com/watch?v=paae...
And had the BBC not censored his lecture, I would not have found it.
So maybe they've done us a service?
#UnintendedConsequences
www.youtube.com/watch?v=paae...
How a Historian Nailed Billionaires for Their Greed at Davos | NowThis
YouTube video by NowThis Impact
www.youtube.com
November 25, 2025 at 11:25 AM
This is the Davos clip that Anita Anand mentioned at the beginning of the Reith Lecture this morning on BBC Radio 4.
And had the BBC not censored his lecture, I would not have found it.
So maybe they've done us a service?
#UnintendedConsequences
www.youtube.com/watch?v=paae...
And had the BBC not censored his lecture, I would not have found it.
So maybe they've done us a service?
#UnintendedConsequences
www.youtube.com/watch?v=paae...
Reposted
If you haven’t turned it off yet then this is yet another reminder
Google defaulting all Gmail users to a setting that enables Google to harvest all your emails into chatbot training is straight-up evil and invasive.
www.huffpost.com/entry/opt-ou...
www.huffpost.com/entry/opt-ou...
If You Use Gmail, You're Going To Want To Turn Off This 1 Automatic Setting ASAP
Plus: a quick guide to the two-step process for opting out.
www.huffpost.com
November 22, 2025 at 9:51 AM
If you haven’t turned it off yet then this is yet another reminder
Reposted
“TOO LITTLE, TOO LATE”, VALIDATION FOR PEOPLE WITH LONG COVID
The Covid-19 Inquiry has found that the UK Government should have acknowledged Long Covid and made the risks clear to the public. It has found that by Oct 2020 the UK Government knew #LongCovid was a significant health and policy issue.
The Covid-19 Inquiry has found that the UK Government should have acknowledged Long Covid and made the risks clear to the public. It has found that by Oct 2020 the UK Government knew #LongCovid was a significant health and policy issue.
November 20, 2025 at 10:37 PM
“TOO LITTLE, TOO LATE”, VALIDATION FOR PEOPLE WITH LONG COVID
The Covid-19 Inquiry has found that the UK Government should have acknowledged Long Covid and made the risks clear to the public. It has found that by Oct 2020 the UK Government knew #LongCovid was a significant health and policy issue.
The Covid-19 Inquiry has found that the UK Government should have acknowledged Long Covid and made the risks clear to the public. It has found that by Oct 2020 the UK Government knew #LongCovid was a significant health and policy issue.
Reposted
It's not "less" though. NHS provision is positively harmful for #pwME (unless you are a psych patient wrongly diagnosed) because there is 0 patient safety advice in:
NG206;
every UK ME org;
NHS e-Learning;
ME specialist docs in Harley Street;
DHSC FDP.
Patient safety in ME costs £0
NG206;
every UK ME org;
NHS e-Learning;
ME specialist docs in Harley Street;
DHSC FDP.
Patient safety in ME costs £0
November 20, 2025 at 11:29 PM
It's not "less" though. NHS provision is positively harmful for #pwME (unless you are a psych patient wrongly diagnosed) because there is 0 patient safety advice in:
NG206;
every UK ME org;
NHS e-Learning;
ME specialist docs in Harley Street;
DHSC FDP.
Patient safety in ME costs £0
NG206;
every UK ME org;
NHS e-Learning;
ME specialist docs in Harley Street;
DHSC FDP.
Patient safety in ME costs £0
Reposted
Today’s Westminster Hall debate on government support for people with #MECFS is now on YouTube. Led by Tessa Munt MP (Wells and Mendip Hills, Liberal Democrat), and lasts around an hour.
youtu.be/wZFEUnjWgOA?...
youtu.be/wZFEUnjWgOA?...
Westminster Hall Debate on Support for People with ME/CFS - November 2025
YouTube video by Broken Battery
youtu.be
November 19, 2025 at 7:23 PM
Reposted
Tessa Munt MP highlights the economic impact of ME: based on a 2014–15 estimate, adjusted for inflation and increased case numbers, ME is estimated to cost the UK around £7 billion a year — rising to ~£20 billion including people who meet the criteria for ME with long COVID
November 19, 2025 at 8:51 PM
Tessa Munt MP highlights the economic impact of ME: based on a 2014–15 estimate, adjusted for inflation and increased case numbers, ME is estimated to cost the UK around £7 billion a year — rising to ~£20 billion including people who meet the criteria for ME with long COVID
Reposted
Available to buy now: One Red Leaf at a Time Greetings Cards.
All proceeds go to our #MEcfs research @uoe-igc.bsky.social.
Thank you @drjogreer.bsky.social & Dr Clare Raynor!
theredtreeandme.substack.com/p/one-red-le...
#oneredleafatatime
All proceeds go to our #MEcfs research @uoe-igc.bsky.social.
Thank you @drjogreer.bsky.social & Dr Clare Raynor!
theredtreeandme.substack.com/p/one-red-le...
#oneredleafatatime
One Red Leaf at a Time Greetings Cards - Raising funds for research into Myalgic Encephalomyelitis
Since so many of you have asked, greetings cards featuring images from the Red Leaf Creative Collaborative are now available to purchase.
theredtreeandme.substack.com
November 16, 2025 at 12:36 PM
Available to buy now: One Red Leaf at a Time Greetings Cards.
All proceeds go to our #MEcfs research @uoe-igc.bsky.social.
Thank you @drjogreer.bsky.social & Dr Clare Raynor!
theredtreeandme.substack.com/p/one-red-le...
#oneredleafatatime
All proceeds go to our #MEcfs research @uoe-igc.bsky.social.
Thank you @drjogreer.bsky.social & Dr Clare Raynor!
theredtreeandme.substack.com/p/one-red-le...
#oneredleafatatime
Reposted
MP Tessa Munt has tabled ME/CFS debate in Westminster Hall this week - template letter with important points from Dr Charles Shepherd
Please write to your MP (via email) and ask them to attend the debate on Wednesday 19th November at 4.30pm.
https://meassociation.org.uk/crlc
#pwME
Please write to your MP (via email) and ask them to attend the debate on Wednesday 19th November at 4.30pm.
https://meassociation.org.uk/crlc
#pwME
MP Tessa Munt has tabled ME/CFS debate in Westminster Hall this week - The ME Association
MP Tessa Munt has tabled a debate on ME/CFS in […]
meassociation.org.uk
November 17, 2025 at 10:41 AM
MP Tessa Munt has tabled ME/CFS debate in Westminster Hall this week - template letter with important points from Dr Charles Shepherd
Please write to your MP (via email) and ask them to attend the debate on Wednesday 19th November at 4.30pm.
https://meassociation.org.uk/crlc
#pwME
Please write to your MP (via email) and ask them to attend the debate on Wednesday 19th November at 4.30pm.
https://meassociation.org.uk/crlc
#pwME
Reposted
1) 🇩🇪 Some really good news! Germany plans to invest half a billion euros in research on diseases such as ME/CFS and Long Covid.
They are calling it "The National Decade Against Post-Infectious Diseases"
They are calling it "The National Decade Against Post-Infectious Diseases"
November 14, 2025 at 8:30 AM
1) 🇩🇪 Some really good news! Germany plans to invest half a billion euros in research on diseases such as ME/CFS and Long Covid.
They are calling it "The National Decade Against Post-Infectious Diseases"
They are calling it "The National Decade Against Post-Infectious Diseases"
Reposted
8) Link to the paper:
Shahbaz et al. 2025. Integrated immune, hormonal, and transcriptomic profiling reveals sex-specific dysregulation in long COVID patients with ME/CFS.
Shahbaz et al. 2025. Integrated immune, hormonal, and transcriptomic profiling reveals sex-specific dysregulation in long COVID patients with ME/CFS.
Integrated immune, hormonal, and transcriptomic profiling reveals sex-specific dysregulation in long COVID patients with ME/CFS
Shahbaz et al. find that female long COVID patients with ME/CFS exhibit heightened
inflammation, altered hematopoiesis, disrupted hormone levels, and neuroinflammatory
gene signatures. In parallel, our study identifies sex-specific immune and hormonal
biomarkers that correlate with clinical symptoms, supporting the need for tailored
therapeutic strategies, including consideration of hormone replacement therapy.
www.cell.com
November 12, 2025 at 10:08 AM
8) Link to the paper:
Shahbaz et al. 2025. Integrated immune, hormonal, and transcriptomic profiling reveals sex-specific dysregulation in long COVID patients with ME/CFS.
Shahbaz et al. 2025. Integrated immune, hormonal, and transcriptomic profiling reveals sex-specific dysregulation in long COVID patients with ME/CFS.
Reposted
Today, hundreds of millions face #MECFS & #LongCOVID without FDA-approved treatments. Until December 2, your support goes 3X further to advance critical research and bring us closer to answers.
💙Donate today: ow.ly/rZEb50Xr8wI.
💙Donate today: ow.ly/rZEb50Xr8wI.
November 13, 2025 at 3:30 PM
Today, hundreds of millions face #MECFS & #LongCOVID without FDA-approved treatments. Until December 2, your support goes 3X further to advance critical research and bring us closer to answers.
💙Donate today: ow.ly/rZEb50Xr8wI.
💙Donate today: ow.ly/rZEb50Xr8wI.
Reposted
8 ) The full interview with Dr. Missailidis was published by ME Group Australia and can be watched here:
Understanding ME: Investigating cellular and body-wide features of ME
Presenter: Dr Daniel Missailidis, PhD
Dr Daniel Missailidis is a postdoctoral research fellow and molecular biologist at La Trobe University in Melbourne, Australia.
Daniel has researched ME since 2016 and completed his PhD in 2021, having published 11 research papers on ME or Long COVID to date.
www.youtube.com
November 3, 2025 at 9:21 AM
8 ) The full interview with Dr. Missailidis was published by ME Group Australia and can be watched here:
Reposted
🙏 to everyone who took part in the LCK Summer Poster Competition, our judges were blown away by the creativity and powerful messaging in the 30+ entries
🏆 Here’s the age 5-11 category winner, designed by Clara M, Age 10
🎨 Poster Title: “Understand We Need Your Support”
🏆 Here’s the age 5-11 category winner, designed by Clara M, Age 10
🎨 Poster Title: “Understand We Need Your Support”
November 4, 2025 at 7:47 AM
🙏 to everyone who took part in the LCK Summer Poster Competition, our judges were blown away by the creativity and powerful messaging in the 30+ entries
🏆 Here’s the age 5-11 category winner, designed by Clara M, Age 10
🎨 Poster Title: “Understand We Need Your Support”
🏆 Here’s the age 5-11 category winner, designed by Clara M, Age 10
🎨 Poster Title: “Understand We Need Your Support”
Reposted
1) Researchers tested an new in-ear device to estimate blood flow to the brain.
In an ME/CFS patient blood flow decreased by 23% after an exercise test compared to only 5% in the healthy control participant.
In an ME/CFS patient blood flow decreased by 23% after an exercise test compared to only 5% in the healthy control participant.
October 31, 2025 at 3:01 PM
1) Researchers tested an new in-ear device to estimate blood flow to the brain.
In an ME/CFS patient blood flow decreased by 23% after an exercise test compared to only 5% in the healthy control participant.
In an ME/CFS patient blood flow decreased by 23% after an exercise test compared to only 5% in the healthy control participant.
Reposted
We've just launched the first large, site-less (home, direct to participant) randomized trial for treatment of #LongCovid, testing tirzepatide (a GLP-1 drug) vs placebo. Please help spread the word
www.scripps.edu/news-and-eve...
www.scripps.edu/news-and-eve...
Scripps Research scientists launch new digital clinical trial to test repurposed drug for long COVID symptom relief
www.scripps.edu
October 31, 2025 at 5:07 PM
We've just launched the first large, site-less (home, direct to participant) randomized trial for treatment of #LongCovid, testing tirzepatide (a GLP-1 drug) vs placebo. Please help spread the word
www.scripps.edu/news-and-eve...
www.scripps.edu/news-and-eve...