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Reposted by Claus Ernst

Christophe Veltsos @drinfosec.bsky.social · 16h

🚨🧵 by @ZdenekVrozina on Twitter about post-Covid dysregulated B cell, CD4+ T cell, and treg compartments

"This sustained adaptive immune deficit may represent a important mechanism underlying Long COVID, resembling immunological patterns seen in chronic..."

🧵
threadreaderapp.com/thread/19762...

7-12% of patients recovering from moderate to severe COVID-19 show persistently low counts of B cells, CD4 T cells, and Tregs, even after clinical recovery.🧵

Followed by screenshot of this post: https://x.com/BagaiDr/status/1976253010893287877

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Ronja Büchner @buechnerronja.bsky.social · 13d

„How can we be sure we are not gaslighting our patients? By remaining humble.“

Sehr guter Artikel einer betroffenen Ärztin über die nötige Haltung von Mediziner*innen gegenüber Patient*innen mit #LC, #MECFS, #PCVS et al.

Anbei ein paar Zitate: 🧵
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When We Don’t Have All the Answers: Long COVID and the Need for Humility in Medicine

pmc.ncbi.nlm.nih.gov

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Living Safely With Covid @covidsafenz.bsky.social · 1d

#LongCovid “No one is immune to this”

Offered rest home care at 24: the lonely plight of formerly healthy young Kiwis suffering with long Covid

The pandemic never ended, and we're all living proof of that.

www.1news.co.nz/2025/10/10/o...

Offered rest home care at 24: the lonely plight of young Kiwis with long Covid

A group of young Kiwis prove what international studies show: that long Covid has a particularly debilitating effect on young people. But how much medical support is there for them?

www.1news.co.nz

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Claus Ernst @clausernst.bsky.social · 1d

True.

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sibylle dahrendorf @sibylledahrendorf.bsky.social · 1d

1/ Am 14. Oktober, 17 Uhr (deutsche Zeit) darf ich nochmals dabei sein bei Talia Smith @taliasmith2021.bsky.social #ThisIsFloxed mit weiteren Gästen!

Fluorchinolone und deren Langzeitschäden dürfen nicht weiter ignoriert werden!

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Petit Feu @petitfeu.bsky.social · 1d

Dorothee Bär gestern im Bundestag: Sie nimmt ME/CFS "sehr ernst", sie ist "im ständigen Austausch", sie macht eine "gemeinsame große Veranstaltung" mit @bmg-bund.bsky.social und BMFTR und ist "natürlich" auch mit den Betroffenenverbänden "sehr stark im Gespräch".

Dokumente des Versagens.

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Sus Scrofa @susscrofa.bsky.social · 1d

Evidence should stand on its own merit, regardless of whether it aligns with our preconceptions or professional identity.

Changing one’s mind is not a weakness. It’s the essence of scientific integrity.

www.biorxiv.org/content/10.1...

We often underestimate how much our evaluation of an argument depends on who says it, not what is being said.

In science, this is fatal. Evidence should stand on its own merit, regardless of whether it aligns with our preconceptions or professional identity.

I’m struck time and again by how some colleagues dismiss biological evidence simply because it contradicts their established worldview.

If an illness can be transferred to healthy mice through immunoglobulin G, it is — by any rational standard — organic.

And yet, in the debate around ME and Long Covid, the same pattern repeats: a refusal to reconsider, even in the face of converging studies, meta-analyses, and international scientific consensus.

Changing one’s mind is not a weakness. It’s the essence of scientific integrity.

https://www.biorxiv.org/content/10.1101/2024.05.30.596590v1 Transfer of IgG from Long COVID patients induces symptomology in mice | bioRxiv

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Claus Ernst @clausernst.bsky.social · 1d

Ist ja leider schon so, dass Schwerstbetroffene auch an der Erkrankung sterben können.

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Constanze Ertl @constanzeertl.bsky.social · 1d

Von Sabine und Joachim Hermisson habe ich in den letzten Jahren soviel gelernt - es ist höchste Zeit, dass auch die Verantwortlichen im Gesundheitssystem auf sie hören und jetzt Versorgung für #MECFS Betroffene schaffen.

Dr. Sabine Hermisson 🦋 @sabinehermisson.bsky.social · 2d

"Sie kann nicht sprechen, erträgt keine Geräusche, keine Menschen – Milena, 22, hat #MECFS.
Ihre Eltern Sabine und Joachim Hermisson kümmern sich seit fünf Jahren um sie. Hier berichten sie, worauf es in der Pflege ankommt."
www.spiegel.de/gesundheit/d...

(S+) Tochter mit ME/CFS: »Unsere Tochter verträgt kein Licht. Wir pflegen sie deshalb in Dunkelheit«

Sie kann nicht sprechen, erträgt keine Geräusche, keine Menschen – Milena, 22, hat ME/CFS. Ihre Eltern Sabine und Joachim Hermisson kümmern sich seit fünf Jahren um sie. Hier berichten sie, worauf es ...

www.spiegel.de

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Denis - The COVID Info Guy @thecovidinfoguy.bsky.social · 2d

Brainstem damage found to be behind long-lasting effects of severe Covid-19.

"Using ultra-high-resolution scanners that can see the living brain in fine detail, researchers from the Universities of Cambridge and Oxford were able to observe the damaging effects Covid-19 can have on the brain."

Brainstem damage found to be behind long-lasting effects of severe Covid-19

Damage to the brainstem - the brain's 'control center' - is behind long-lasting physical and psychiatric effects of severe Covid-19 infection, a study suggests.

www.news-medical.net

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Claus Ernst @clausernst.bsky.social · 2d

Frage an die Bubble (oder liebevoll Hasmob): Kennt jemand ein Hospiz in Berlin, welches schwerstbetroffene #MECFS -Patienten aufnimmt?

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Dr. Sabine Hermisson 🦋 @sabinehermisson.bsky.social · 2d

"Sie kann nicht sprechen, erträgt keine Geräusche, keine Menschen – Milena, 22, hat #MECFS.
Ihre Eltern Sabine und Joachim Hermisson kümmern sich seit fünf Jahren um sie. Hier berichten sie, worauf es in der Pflege ankommt."
www.spiegel.de/gesundheit/d...

(S+) Tochter mit ME/CFS: »Unsere Tochter verträgt kein Licht. Wir pflegen sie deshalb in Dunkelheit«

Sie kann nicht sprechen, erträgt keine Geräusche, keine Menschen – Milena, 22, hat ME/CFS. Ihre Eltern Sabine und Joachim Hermisson kümmern sich seit fünf Jahren um sie. Hier berichten sie, worauf es ...

www.spiegel.de

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Dr David Joffe MB BS(Hons), PhD, FRACP @davidjoffe64.bsky.social · 2d

More Opthalmic complications of Cøvid. Vaccinations reduce the risk.

www.nature.com/articles/s41...

Ophthalmic complications associated with COVID-19: a large US national database analysis - Eye

Eye - Ophthalmic complications associated with COVID-19: a large US national database analysis

www.nature.com

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Verena Hackl @verhac.bsky.social · 2d

„Wir haben lange nach einem Hausarzt gesucht. Viele an ME/CFS Erkrankte haben keinerlei medizinische Betreuung.“

Im Interview mit @sabinehermisson.bsky.social & ihrem Mann über schwerstes #MECFS & Pflegeroutinen bei ihrer Tochter Mila.

#FlächendeckendeKatastrophe

www.spiegel.de/gesundheit/d...

(S+) Tochter mit ME/CFS: »Unsere Tochter verträgt kein Licht. Wir pflegen sie deshalb in Dunkelheit«

Sie kann nicht sprechen, erträgt keine Geräusche, keine Menschen – Milena, 22, hat ME/CFS. Ihre Eltern Sabine und Joachim Hermisson kümmern sich seit fünf Jahren um sie. Hier berichten sie, worauf es ...

www.spiegel.de

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Danielle Beckman @daniellebeckman.bsky.social · 2d

Join us at the Canadian Collaborative Conference on #ME, 100% free and online!
Register here: icancme.ca/research/202...
#MyalgicEncephalomyelitis #MECFS #LongCovid

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George Monbiot @georgemonbiot.bsky.social · 3d

ME/CFS is a devastating condition that has long been denied, dismissed, psychologised and underdiagnosed. Research is at last starting to catch up with it, with glimmers of hope for those who have been left untreated for so long.
There's a huge BUT coming ...🧵
www.theguardian.com/society/2025...

Scientists develop first ‘accurate blood test’ to detect chronic fatigue syndrome

Research could offer hope for ME patients – but some experts urge caution and say more studies needed

www.theguardian.com

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valebodi.bsky.social @valebodi.bsky.social · 2d

This wecrunchME visual shows how people w/ #ME/CFS typically wait many years from onset to receiving a diagnosis. Avarages range from 5- 12 years.

To correct this we need better medical education (especially of #PEM), and readily availably clinical biomarkers

@europeanmealliance.bsky.social

Infographics on the lag between developing ME/CFS and being diagnosed in several countries:

ME/CFS patients typically wait many years from onset before receiving a diagnosis
Average (mean) time from onset to diagnosis for surveyed ME/CFS patients
Ireland
UK
Australia
Norway
5.2
15.2
CrunchME

Italy
Finland

Czech Republic

Canada

France

USA

Belgium

Serbia

Switzerland

Germany

Austria

The Netherlands

Iceland

Spain

Sweden

Denmark

Croatia
5.9
5.9
6.1
6.2
6.5
6.6 • 6.7
6.8
1 6.9
7.0
7.1
7.1
By country averages range from ~ 5 - 12 years
8.2
8.2
8.4
8.5
8.6 • 9.3
• 11.8
12.0
0.0
2.0
4.0
6.0
8.0
10.0
Average (Mean) Years from Onset to Diagnosis
Data Source: European ME Alliance Survey 2024 (Figure 12, p. 35), n = 8,981
Note: these averages are for all respondents, regardless of date or age of onset

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Paracetamolfee @paracetamolfee.bsky.social · 2d

Es ist SO EKELHAFT, was man sich heutzutage alles bieten lassen muss.

Verzweifelter Versuch einen Arzttermin auszumachen:

MFA 1) keine Kinder
MFA 2) kein ME/CFS
MFA 3) sOlChE KiNdEr MüsSeN StAtIoNäR
MFA 4) Sollen die selbst machen die eins brauchen

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Kelly @broadwaybabyto.bsky.social · 2d

We’ve known for years that many viruses are oncogenic in nature… there’s ample evidence to suggest Covid is as well.

Yet another reason to wear a good quality mask like an N95, get boosted, clean the air and keep fighting for paid time off & better mitigations!

Megaholt 𓅃 @megaholt.medsky.social · 2d

That’s…not good.

pubmed.ncbi.nlm.nih.gov/40813533/

SARS-CoV-2 infection heightens the risk of developing HPV-related carcinoma in situ and cancer - PubMed

SARS-CoV-2 infection is associated with elevated risks of HPV-related carcinoma in situ and cancer, irrespective of age or race. The findings underscore the importance of understanding the interplay b...

pubmed.ncbi.nlm.nih.gov

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Conor Browne @brownecfm.bsky.social · 2d

1. I've had a surprising number of conversations about Covid-19 over the past week or so, all sparked by the fact that I was, as always, wearing an FFP2 respirator. People in healthcare facilities, taxi drivers, people on trains and buses.

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Claus Ernst @clausernst.bsky.social · 2d

It may be or may not be that BP is similar to HC. But pulse most definitely isn't, considering many LC patient get POTS.

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#9 Dream @gayfabfourfan.bsky.social · 3d

“y’all need to stop asking these questions if you’re gonna ignore the answer.” #COVID

Denis - The COVID Info Guy @thecovidinfoguy.bsky.social · 3d

People under 25 collapsing at concerts isn’t a mystery — it’s COVID and Long COVID. Both can trigger POTS and other post-viral issues, but too many still ignore that reality.

Source: x.com/AgathasSapph...

Screenshot of a tweet by Fin replying to Sam Parker.

Sam’s tweet reads: “not to be so millennial but why is everyone under 25 about to collapse and die of thirst at concerts now.”

Fin responds: “it’s Covid it’s fucking Long Covid which causes POTS and a plethora of other issues. y’all need to stop asking these questions if you’re gonna ignore the answer.”

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Michael Stingl @neurostingl.bsky.social · 2d

Auf in einen neuen Tag der flächendeckenden Versorgung von #MECFS!

Hund aus dem "This is fine"-Meme, sitzt gemütlich in einem brennenden Raum und sagt "This is flächendeckend"

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Sheep in Fog @brebis.bsky.social · 3d

Scientists say they have developed the world’s first blood test to diagnose myalgic encephalomyelitis, also known as chronic fatigue syndrome (ME/CFS).

Blood test = less medical gaslighting

Scientists develop first ‘accurate blood test’ to detect chronic fatigue syndrome | ME / Chronic fatigue syndrome - EUROPE SAYS

Scientists say they have developed the world’s first blood test to diagnose myalgic encephalomyelitis, also known as chronic fatigue syndrome (ME/CFS).

www.europesays.com

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Petit Feu @petitfeu.bsky.social · 3d

Was beschäftigt Berliner Ärztinnen und Ärzte in ihrem Lebens- und Arbeitsalltag? Dr. med. Elisa Stein hat bereits in vielen Krisengebieten gearbeitet – und trägt jetzt dazu bei, dass in Deutschland Menschen mit schwer behandelbaren Krankheiten wie Post-COVID und ME/CFS nicht übersehen werden.

Mein Thema: In Extremsituationen da sein

Im Format „Mein Thema“ berichten Berliner Ärztinnen und Ärzte, was sie beschäftigt. Darüber haben wir mit Dr. med. Elisa Stein gesprochen.

magazin.aekb.de

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